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Back from the dead!

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Poirot:
Thanks much, Jay, Dharmesh and Zahra, for your kind words! Really appreciated and thank you for the support.

Jay - the Sovaldi case is now in front of the Delhi HC - Gilead has challenged the Patent office decision, saying it was biased and they did not apply their minds. This is actually a bit of a setback because Gilead was all set to licence the drug to 3-4 generic manufacturers in India, with a "india pricing" level - much like what they have done in Egypt. It was all set to be done in Feb, but the Patent office decision and the subsequent challenge means we now don't know when we can expect a decision, either way.

Poirot

Poirot:
Hi Andy,

Thanks much for your kind words and support during the ordeal. You would know that Lisa's case, and more recently Panos', were uppermost in my mind as I evaluated all the pros and cons of getting the transplant. Having gone through the procedure, I can now say that it was worth all the pain I suffered and probably my family feels the same way about the stress and strain that they went through! But, I do know what you mean as a parent - from my perspective, I am more happy for my daughters, than for myself, really - getting this chance to see them for many more years - absolutely priceless.

I remember the Pune trip vividly - I was very glad to have made the trip, as I met our mutual friend in Pune after years, and the time that I spent with Ashish on that trip was the longest time we had spent together over a single period. I was really glad of that, especially in hindsight. Getting to know you during that trip was an absolute pleasure and it has fostered a life long bond for me.

The amount of time, effort and money that you have spent on the cause of Thalassemia is just beyond any kind of praise or words that we can bestow on you, Andy. Very few people make a real and valued difference to the lives of hundreds and thousands of others - you are one of those few. We have all benefited from your research and the collective wisdom embodied by this group. In Lisa's absence, I am quite sure that this group would have just meandered away, without the consistent efforts put in by you. You have made a huge difference to Thal.

Warmest regards and lots of love,

Poirot


--- Quote from: Andy on March 03, 2015, 03:51:56 PM ---Poirot,

It is so good to see you posting again. You were the third person with thal that I ever met and our trip from Mumbai to Pune with Ashish is permanently etched inside my memory. In many ways, that Pune conference still reigns as my favorite conference, and the camaraderie is a big part of why that time has such a special place in my heart. It has been difficult following you through this new "adventure", having told only our one mutual friend, but always keeping hope that this time things would go differently than it had with our dear friend Panos. When you told me they found a liver, I just about went through the ceiling with joy. I know that can be the hardest part of this process and it happened so quickly that it renewed hope within me. Maybe this time, my friend would make it. I know it's been an ordeal and there will be future challenges. but I am overjoyed to see you here posting. And as happy I am for you, I find myself, as a parent, to be happiest for your daughters.

To our members, this is a time to celebrate life. A life that has had great influence on me and many others. I thought this most unfair that a man like Poirot, who has long ago put thalassemia in its place and gone on to have a great career and build a beautiful family, could be afflicted with cancer, after being such a model patient who has been an example to so many, but now again I see that Poirot has once again been a model of how to deal with the worst of the worst and overcome it.

Poirot, I salute your strength and will. It's been a long time since I dared have hope. Thank you for once again opening that door for me and thank you for remaining among us.

--- End quote ---

jay:
Hi Poirot,
What does it make Gilead to hold back from going ahead and manufature it in colaboration with country pharma?
:)  :huh

Poirot:
Jay -

I don't know all the details, but it seems this activist group was either not aware of Gilead's plans for contract mfg in india or they were funded by some rival pharma group - and they submitted all kinds of petitions to the patent office saying that this salt (sofosbuvir) is neither new nor unique and hence the patent for Gilead should be rejected in India.

Gilead obviously does not to share its manufacturing process and research data with any indian company unless it is protected by some kind of licence and copyright agreement.

Thx

Bostonian_04:
After reading your posts, I sincerely salute you and your family for courage, strength and determination. Wishing you speedy recovery and many many years of health, wealth and happiness!!!!

Thank you for sharing your story....

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