Discussion Forums > Thalassemia Major

lumps due to desferal & wheatgrass confusion

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shivika23:
hi

i am shivika (26yrs thal major) from INDIA.

 I am taking desferals due to which there are lot of lumps in my stomach. These lumps are causing hindrance in passage of deaferal from needle to muscle. I have tried massaging that area but its not that effective.

Please suggest me a remedy for it as i am taking only desferal as a chelation and my iron levels are very high. :wah

One more thing i wanted to ask is that i m taking fresh wheat grass but its not regularly... (as in i take 10 days and due to some reason i m not able to take the 11th and 12th day).

So is it useless to take like this ? 
Is it effective only if i take it on a regular basis?
Is the juice of wheatgrass more effective than the tablets?
If yes, Can you Please Suggest me a Good Wheat Grass Tablet That I can find in INDIA ?

Thank you
Shivika

myaki:
Hello shivika.
How many hours of desferal injection do you do? Did you try to put it on your shoulder? Have you always been on desferal or were you used to take deferasirox/deferiprone?

Tablets and Juice should have the same effectiveness. It is a natural remedy, not a drug, so you can have 2 days of break, it doesn't make it useless at all!

msarika:
Hi,

As per Dr Ramanan .. wheat grass tablets or powder is more effective than fresh juice & off course it must be taken regularly ...

myaki:
Thank you for correcting me about the juice.
I thought that taking it everyday is the best, but having 2 days of break after 10 days of regular intake should decrease the effectiveness a bit but still being more effective that not taking at all!

Andy Battaglia:
Taking wheatgrass occasionally will have some benefit, but I suggest getting tablets or powder so you can take it regularly. Look for dehydrated wheatgrass JUICE, not just wheatgrass powder.

I would also suggest that you add Asunra to your chelation and take combination chelation. Your problems with desferal are keeping you from chelating enough, but this is easily remedied by adding a second chelator, either Asunra or Kelfer.

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