Discussion Forums > Working Towards a Cure
haploidentical transplants
Himanshu Kumar:
I agree with Gabriellavanessa. Though BMT is fraught with risk and is a difficult process, it is not as scarry as we all have made it to look. If things go right then every day is a joyful experience.
zahra:
Hi Gabriellavanessa,
Thank you so much for your post. It gives the rest of us hope. May I ask which doctor you had and whether you met any 4/8 success stories. I mean half matched successful transplants where Mother was not the donor.
Zahra
catchR:
Hi Andy,
Are we now suggesting to try Haplo-identical BMT, as opposed waiting for gene therapy or luspatercept trails??
very confused at the moment, in terms of direction to take in getting our daughter of Thal.
warm regards
R
Andy Battaglia:
Haplo is all the rage these days, but I would have to see the success rates of the intended hospital before even considering it.
gabriellavanessa:
Hi Zahra,
sorry late response, just read.... my daughter was using donor from her father with 5/8 matching. For Haplo minimun is 4/8, for risk of GVHD. Our doctor is Suradej, you can contact this doctor using website from bumrungrad hospital, cost for consultation in that hospital 3000bath, around 100 usd. but if u want to do the bmt,and want to save the money, better ask doctor to use another hospital, such as Samitivej, or paya thai. Around 20-30% more cheaper. Suradej is good doctor, may be for me is Best doctor :-). He is open minded doctor, so you can consultation or debat something with him :-), he will answer every things.
Advise for who want to do this procedure, first thing, must know the RISK, every patient is different, some patient go through this procedure easily, but some patient with worse complication. two, MUST KNOW, cost for BMT for each person is different, depand on complication after bmt. Just now, my friend , done the bmt on june, till know still in ICU room, cause of bad complication, till now already spend almost 10million bath, around 350.000 usd. So better to do a consultion first with the doctor, know the risk. But till now, succesfull rate still above 90%.
Above all, pray to GOD, surrender all to the GOD, and believe every things will be fine in time. GBU
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