Discussion Forums > Working Towards a Cure
haploidentical transplants
Andy Battaglia:
You can contact him at curethalassemia.org but Dr Sodani is currently a man without a hospital.
gabriellavanessa:
My daughter just have haploidentical bmt in bangkok, 25 mei 2015. So for everything are good... may be i can share my experience.
azeemjaved:
--- Quote from: gabriellavanessa on April 26, 2016, 12:06:21 PM ---My daughter just have haploidentical bmt in bangkok, 25 mei 2015. So for everything are good... may be i can share my experience.
--- End quote ---
could you please share more information? like the age of your daughter? cost of BMT ? how long she stayed in hospital ?
zahra:
Gabriellavanessa,
Congratulations on your little ones transplant.
Thank you for the offer to share your experience. It would really help those who are thinking about this kind of transplants. I look forward to hearing more.
Zahra
gabriellavanessa:
sorry for late respone. I forgot already post this :-). My daughter was 6 years old,when do BMT in bangkok. Donor was her father, with 5/8 HLA matching. Actually we from other country. So we stay in bangkok for 4 months.
Our doctor is very brilliant, he already do Haploidentical BMT , for more than 40 cases, since this 2 years. Only 1 failure, the rest is success.
Cost depend on which hospital. For our case, we choose bumrungrad hospital , private hospital, the most expensive hospital in bangkok. Cost, ONLY for BMT, 70.000 usd. Not included, cost after bmt. Roughly, total cost of all cost, include stay in bangkok 120.000 usd.
For comparison, my friend, just spend for TOTAL cost, only 80.000 usd, but they choose other hospital, samitivej hospital, in the suburbs. The doctor is same, only hospital different.
BMT acctually is not so scarry as we read in internet. Most important is we must aware when in the BMT room. We must in good condition.
All the effect of chemo drug, can be solve by other preventif drug.
For south asia thal patient, i suggest go to bangkok for BMT. Singapore , malaysia, not recomended. Singapore good in cancer, but for thallasemia case, for them is very rare handle this case.
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