Discussion Forums > Thalassemia Major

Bluishness of skin

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Sharmin:
Yes Ankita, I know exactly what you are referring to.  The ash colour.  Are you taking an oral chelator?  Reducing your iron further, below 500 will also reduce copper or ash tones from the skin.  IP6 works like magic, it binds the free iron in your organs - heart, skin, etc.  The skin is the organ which is most visible to us therefore we notice it quickly. 

IP6 is not a substitute for the 3 main chelators exjade/ferriprox/desferal.  It simply enhances the chelation by binding some of the free iron. Clearing of the ashy appearance was an unexpected benefit many others on this sight have found.  I myself noticed this with my son.  The before and after pictures were unbelievable.   

Andy Battaglia:
A hidden benefit of IP6 that we don't see is what it does in the glands and brain, where desferal and Exjade have much trouble removing iron. The small molecule penetrates everywhere in the body, cleaning iron from even the pituitary gland, and as Sharmin noted, you will see its affect on skin tone very quickly.

Dharmesh:
First of all,
Increase the air circulation in your home, office by keeping windows and doors open.
Second,
Maintain your Hb at 11 gms% before BT.
If your FE is too low and T2* is normal ask your doctor to revise the dosage.
Excessive chelation can lead to hemolysis and other side effects.

ankita:
Thanks everyone .Yss,sharmin i am taking oral chelator kelfer ...i think u ppl call it L1 ,3 gms per day and desferal 1.5 gms per day..my ferritin is 800.T2* is normal both heart n liver.heart is 34.95 and liver is 29.63.Can i take ip6 along with my running of kelfer n desferal and if yss pls do send me link from where can i get.

Sharmin:
Ankita,

Yes, definitely you can take IP6 along with your other chelators.  I would start by taking it once daily and eventually you can take one pill in the morning and one in the evening. It is a natural supplement so it will not interact with your other medications.

You should see a change in your skin colour soon after - and to me that is an indicator of the benefit it has on your overall health. 

Best,

Sharmin

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