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Miracle?

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Christine Mary:
Hey guys!

Just thought I'd update you on Lauryns health. We went to the hospital for her bi-weekly appt and this is the great news. Her hemoglobin went UP 2 points from a 9 (2 weeks ago) to a 9.2 !!!!
the md said her heart rate was faster last time (170) indicating her heart was working a little harder. Today it was normal at 140! She weighs 13.5 lbs and he was very suprised with her colour, (she is very pink). He does not want to see us for another 3 1/2 weeks. This is the 3rd visit we thought we might have to tranx her. What a great Thanksgiving for us. We certainly have a lot to be thankful for.

Does anyone have any explanations as to why her hgb is raising??? I still want the DNA test but he insists it will not matter. Should I just wait to see if she continues to go up?
Also, we cannot find low iron cereal anywhere!!!! SO, I biught her ORGANIC whole grain cereal for now. (I have a call into her hemo.)It says there is 45% iron in it. Is this ok? Also, can i start her on peaches? It says there is  0 % iron in that. ??

Thanks guys for your input

Christine

Sharmin:
Hi Christine,

Things sound great!  We fed my son organic cereal.  His iron levels remain at a good level with regular desferal and we avoid and fortified iron products. Organic foods don't tend to be enriched with iron.   He has a balanced diet, we limit the number of high iron meats he eats (beef and pork to once or twice a month) but he eats everything else. We absorb more iron from meat then fruits and vegetables.

We also make sure that he has enough calcium - with yogurt and milk. 

Your daughter has not been transfused so her iron levels should not be an issue at this time.  It is a good idea to keep her away from iron fortified cereals and formulas though.  I would not restrict any fruits and vegetables, but you may wish to see a dietician.

Have a great Thanksgiving,
Sharmin

Manal:
Congratulations Christine. I am soooooooooooo  happy for you.  This is really good news.

 :cheer :cheer :cheer :cheer :cheer :veil :veil :veil :veil :veil :friday :friday :party :party :party :love :five                                         :thumbsup :thumbsup :cheer :cheer


Christine, I don't have an explanation for why this happened, but Ahmad for example, has his hb tested every month and he had several readings. We started with 6.4 , then 7 , then 6.1 then 6.4 again and the doctor keeps saying that it is normal to go up or down,it all depends on the hemolysis rate. 

Is Lauyrn taking folic acid ??  It is very important to have it as it helps alot in the formation of blood.

There is also one important thing which is that you have to do your CBC in the same lab each time so that you can compare the readings .  Labs use different kits to give their results and changing labs everytime could lead to some variations.

Anyway, enjoy it and happy thanksgiving

Manal

jzd24:
That is such great news, Christine! I know one thing that really affects hemoglobin levels is hydration. If you are dehydrated at all, your blood will be more coagulated together, and your hemoglobin count will be higher, perhaps not accurately reflecting your true level.  At least that is what my doctor told me, and it sems to be true. My hemoglobin level went up when I was dehydrated with the flu, even though I hadn't had a transfusion. I'm sure there are other things that affect it too, higher or lower.
     Anyway, let's be happy for the good news. Take care, Jean
     
     

§ãJ¡Ð ساجد:
Great news!

I still don't understand why your doc is not recommending DNA test. It can solve all your queries. I guess he thinks once you know Lauryn is not Thal major by DNA, you won't be visiting him this often.  :plot

I smell something fishy! :waiting Does he charge you every time you visit?

Take care, Peace!

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