Discussion Forums > Thalassemia Major

Clenbuterol and ways to deal with low HB

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Nomad:
Dear all,
has anyone of you any experience with Clenbuterol ?
 I am looking for for some kind of better oxygene suply, (things like Arginine for example) and a way for us to survive the last 2  days bevore transfusion when the HB has fallen to 8,...
Any idea or recomendation?

Andy Battaglia:
I would advise against its use. It's only legal for horses in the US and its effects are similar to that of albuterol, which I am quite familiar with, having asthma, and the effects of regular use are and enough where albuterol is only to be used as a rescue inhaler in most cases. Doctors have shifted patients to long term preventative drugs, so the use of albuterol on a regular basis is now discouraged. My own experience agrees.
For a good discussion of Clenbuterol, see http://www.medscape.com/viewarticle/549131

Nomad:
Thank you for the answer Andy. So what is recommended for the last days before transfusion when Hb is dropped and oxygen supply is very low? Anyone any recommendations? I should've named the topic "how to survive the last two days..." What ever helps, if you know anything please write it down here.

Andy Battaglia:
What's your folate dose?

Nomad:
I am taking a high doses vitamin B complex from "Pure encapsulations" which contains

B3 as
Niacinamid 100mg & inositol hexaniacinate 10mg
Vitamin B5 as calciumpantothenate 100mg
Thiamine HCL (B1) 100mg
Activated B6 as pyridoxal 5 phosphate 10mg and pyridoxin HCL 10mg
Activated B2 as riboflavin 5' phosphate 10mg and riboflavin 5mg
Biotin 400mcg
Metafolin (as calcium L-methyl folate) 400mcg
Activated B12  400mcg
I take it every second day because it is very high dose. Do you think I can take it daily? Or what do you think about it in general? I have also heard that to much B3 could isn't good for high Uric acid.

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