Discussion Forums > Thalassemia Major

Jaakafi

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djema:
Andy I sent You a private message , thought I wrote on the forum everyone. :rolleyes

djema:
Hello, friends . my friends from Dagestan told me about Gakavi, they took Gakavi for six months, the children started to gain kilos, the need for transfusion became less. before transfusion was every week, now once a month. Gakavi expensive for the price, it began to give children who are preparing for a bone marrow transplant. all the Djakavis are not given. we'll also get Gakavi for Aysel, write how my daughter will feel when she drinks Giacavi.

djema:
Hello, friends .
my daughter Aysel accepts jakavi ( ruxolitinib) medical treatment for a month, after jakavi she constantly wants to eat, a good appetite.
the face looks almost like a healthy child. Blood is also needed every month, and when it's sick for 2-3 weeks.
Six months after receiving jakavi, there will be bone marrow transplantation. :dunno
Let you all be well!

Andy Battaglia:
Good to learn this. Ruxolitinib is currently in trials and has shown great value in reducing spleen size and improving pre-transfusion Hb level.

djema:
Hello, friends. 
Jakavi really reduced the size of my daughter's spleen , hemoglobin no longer drops to low numbers as before . Hemoglobin is better . My daughter on the spine were the centers of blood from the treatment of Jakavi tumor is not gone . we did 10 sessions of radiotherapy to go these centers and we continue to make Jakavi. The transplant will not be done until we have the foci of hematopoiesis .
It's okay !

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