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Thalidomide + Hydroxyurea combination

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Keru my angel:
Thanks so much....
We too are starting the same.

POAR:
After the first day of starting the medication he woke up with severe drowsiness and nausea. He had more than 9 hour sleep last night but not able to get up , even after having bath he is unable to walk normally due to dizziness and having vomiting sensation when tried to having breakfast. He went to sleep again.

Are these symptoms expected?

nitarora:
Hi,

We are trying this therapy too since last 3 years and quite satisfied.

I can say is these symptoms aren't expected. Kindly discuss there more with Dr. Ramanan if any issue you feel is severe one.

Kindly be some what more patient & try. May be with God grace Your son will get rid of pain of regular transfusions with this.

Pl. include Morning Pranayama & Yoga Asans further in your son schedule. It really helps a lot in gaining Momentum for child & supports for HB Improvement.

Thanks..

Nitin

POAR:
Thank you so much for your words. We had contacted dr yesterday and he asked us to continue the therapy. We are trying to give dinner early in the evening so that medicines can be taken early. He is completely fine today. Probably initial few days we have to allow him more sleep after hectic year end schedule of us. Just hoping things will be alright soon.
Thanks all for your prayers.

Keru my angel:
Dear Nitin
Can you pls give some details about your experience.
What were the readings etc during the first four months. And were you off BT immediately after starting this therapy.
How often you need to visit Pune now?
Pls advise...it will be immensely helpful. Thanks.

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