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Natural "Cures" for Thalassemia

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Lokkhi maa:

Hello Hardik,

I am interested for Hydroxyurea and want to give my baby.From July '2015 she taking wheat grass 500mg daily.Last week she completed 2 yr old. Please share your Hydroxyurea experience...

hardik:
Dear Lokki Maa

Can you plz tell me how much quantity in terms of tbs(tablespoon) does 500 mg will be??

Plz visit the facebook site of Thalpal and u will meet many people discussing about "hydroxyurea" and "Thallidomide" and about the doc in Pune(India) named as "dr Vijay Ramanan" who is treating Thal patients with wheat grass and either of these two.You can also get contact details of doc there.

On this site also many persons has refferred about it. and I had also talked to two person personally taking it.They are also giving positive response....One who is thal minor but is on regular transfusion last year due to growing needs had not has a transfusion from last 6 months(i.e approx 180 days)  and her hb is still on 11...she started taking "Thallidomide" medicine in feb 2015 and the other is thal major 3-4 year child and is not transfused from last two months ....and they had started "hydroxyurea" medicine near june /july 2015

just Imagine all our near and dear ones will be free of transfusion , iron overload, pricking, child crying and all such complexities by taking only medicine.... :cheer
"Ohhh" what a thought but still confused whether to deal or not

I dont know what to say  :mouthshut but if this medicine is really such useful and will have no side effects on long term on our babies ...then I also want to acknowledged it.

May be others can tell more about it

msarika:
Hello all,

I know 4 yrs old boy is free from BT since last 24 months because of whtargrass & hydraxurea, 1 boy 2.5 yrs old is free from BT since last 4 mnths bcoz of wheatgrass & lenid & , 1 girl 6 yrs old free from BT since 13 months , she is taking wheatgrass & thallodimide & all these are maintaining their HB above 8. That means in some cases hydrea is useful & in some cases lenid ....

There are many more who are now BT independent but all above 3 I know them personally & that's why I m posting details over here. All are taking Treatment under Dr Ramanan

DrRajpal:

--- Quote from: Andy on October 03, 2015, 02:14:18 PM ---I fully agree that the lives of thals can be made better by natural methods. I am not saying they won't need blood and chelation, but the overall health is greatly affected by diet, nutrition (including herbs) and exercise (including yoga). My own life is better the more I learn about natural methods. For example, in recent months, I have totally replaced ibuprofen (after 19 years of daily use) with capsules containing turmeric and black pepper.

--- End quote ---
hello andy sir
its apreaciable that you hv replaced ibrufin even after 19 ears of use and simply by turmeric n black pepper.
its great, i hv used turmeric in many cases and your example is also impressive.

Andy Battaglia:
Hardik,

The use of thalidomide in thalassemia has not been well publicized. The only doctor I know using this with hydroxyurea is Dr Vijay Ramanan, and he has been fairly closed mouthed about his exact formula.

Let me be frank. There is far more money to be made with new drugs than with using cheap drugs like hydroxyurea and thalidomide. I believe that this is a big reason you don't hear more about it in the West.

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