Discussion Forums > Working Towards a Cure
Natural "Cures" for Thalassemia
Parin:
Thalassemia Society Pune Chapter having Patients - Parent meet on Ruby Hall Clinic on 17th October 2015 (Coming Saturday) and Along with other doctors Dr. Vijay Ramanan also is going to talk. If any one like to attened please do so.
http://thalassemiapune.co.in/
hardik:
hello everyone
pari 2005 ---->if you can manage ....plz record the conversation and kindly post it on site ....as we are far away so it is not possible for everyone to attend it....but if u or anyone in ur known who is attending the meeting ...can favor us by posting its recording(audio/vodeo).......it will be of great help.
Mukta and Anshul---->the person I m taking about is Mr Suchit Loundhe (09657453054).....He is doing such a noble cause of helping thal patients and parents...the condition for conducting HLA in your state is that ....minimum NO OF THAL PATIENTS(major /intermedia---whos BMT IS DESIRED) to be registered should be 15 and the donor can only be MOTHER, FATHER, REAL BROTHER, REAL SISTER......NO ONE ELSE IN FAMILY....kindly call him if anyone is interested .....he will give u all details ...you can also join then on WHAT'S UP with same no.....there u will get whole info.
Lokhi maa----->If u r really interested....then plz check for medical visa....govt has provided alot of facilities for thal.....jst take online appointment....you have to come a day before...stay in hotel....meet him....and can go same day back....he is such a busy person that he attends a patients only for 15-30 min ....give medicines... and told patients to come again after every 4 months.....As u r outside resident....kindly check...and try to contact if he can attend u through online.
Andy----->the confusion still persists .....If HYDROXYUREA ,THALLIDOMIDE ,LENID ....ARE SUCH OF GREAT USE ...then why dont any other doc in india prefer this....AS you mentioned about cost ....then cost from these also amounts alot to everyone here as I talked them ....and whenever we talked to docs about these medicines...they generally refuse it by saying that these medicines has long term side effects...as these medicines increases fetal hameoglobin.
I am confused that Blood transfusion also have its associated effects......+ .....iron overload problems....and its effects.
and if a person get rid of transfusions,...pricking,....iron overload,....and all such problems....then why not govt and other docs are paying attention to it....AS THALLASSEMIA is a big concept now.
Moreover Dr Ramanan says that if u r using this therapy then u have to wait for the blood to get down max to 6 before next transfusion ....as after starting therapy ....firstly blood goes down and then rises to maintain stability.....and after that maintain between 9-11.....or more depending upon body....
Doesn't this blood down factor effects growth as stability may take upto 3-4 months depending upon body...
When I talked to persson using therapy...they stated that baby / person remains active and is in good health condition though the blood level is low..
kindly guide about these medicines .....and above facts
Lokkhi maa:
Thank you so much Mukta and Hardik..
But I'm so much confused... ??? ??? :huh :huh
Lokkhi maa:
Hello Mukta,
Please share your novel therapy experience...
Lokkhi maa:
Hello Andy,
Expecting your valuable advice.Pls reply...
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