Discussion Forums > Working Towards a Cure
thal. cure
nkmis.mishra:
Today I talked to Dr. Mathur and he was saying that he need to get medicine prepared for Thalassemia and was claiming that a lot of patients getting benifit from his formula.
He always asks about blood group of the patient. I have a question, if his medicine sometimes makes HB very low, so that transfusion can be possible, if blood group is very common and easily available?
Also he was telling cost of medication is nearly $4000 and he is asking first time payment of $2000. Is it really worth of spending this huge amount without published result for his innovation?
As a member from this community already started his medicare, so it will be very appreciable, if we get full information about his medication.
Kindly help.
Mishra
§ãJ¡Ð ساجد:
--- Quote from: nkmis.mishra on March 26, 2007, 07:16:59 AM ---Also he was telling cost of medication is nearly $4000 and he is asking first time payment of $2000. Is it really worth of spending this huge amount without published result for his innovation?
--- End quote ---
This is what bothers me too. Why won't he publish his research. At least someone can come and fund him to make it more better. We are not asking for his secret recipe, but at least he should tell how his "medicine" goes to identify the faulty genes and correct them (if he claims a complete cure), or how it induces the HB if it is a treatment and not a final cure.
Take care, Peace!
kabir_love:
hi there everyone.
well my son HB LEVEL is up 0.1 than before. and now till the time he i also very active aswell. so for the money as he might had asked you for 2000 usd .. but as for me now its 5 months of treatment and i had paid him 400 usd instalment and had paid total 1800 usd till now in time.
well for this doctor he had published is other CURE FOR CANCER CALLED " CANCER CURE", this medican he had patent from government. and also he is opening up a big hosiptal in parmanu chandigarh for which he is been funded by punjab government. he had spend his all time for cancer before. now he is doing for THALASEMIA AND AIDS. he is a kind of researcher in hemopathy but as you meet him you feel more confident.
rest you guys please can also help me out. as i can just discuss with you cauz i m a father whoes son is under experiment so just any advice u have for me.........
my sone hb is increased than before and as docs said patient get very tired and sleep like that and spleen enlarged all of this. my son is in very best position till now.
ill keep u updated in future.
micky
9811639996
Zaini:
Hi Micky,
I hope everything is working well, but there are some points to be cleared,from ur last posts ,i am sorry but i was unable to understand how much exactly is ur son's hb right now, how much it has increased in last 4 months ,and wt's ur son age, i think he is below one year ? right? and if u are keeping him on hb level below 8,don't u think it will affect his bones, please watch for any bone expansion or deformation,bcoz if it starts, it ill be permanant,and for a growing child i think ,,,and i am not a docctor,, but from my personal experience ,that his hb should be between 9 and 10,otherwise it will affect his growth.please closely watch him.i am a bit worried,,, though i do heartily hope it works out.
Zaini.
Sharmin:
I hope a neutral physician, apart from Dr. Mathur is also following your son. I don't know what hg your child needs in order to thrive and in order to avoid bone deformation but please be careful. There is nothing more I could want than for there to be a simple cure for thalassemia - but I hope that your child is not harmed during this experiment.
As parents we all try to make the best possible decisions for our children. If you have reason to believe in this then please carry on, just keep having your child assessed. I don't know if there are any clear and right answers, parents of thalassemiacs have to make difficult decisions all we can do is keep trying out best.
Sharmin
Navigation
[0] Message Index
[*] Previous page
Go to full version