Discussion Forums > Working Towards a Cure
EGT - company working on cures for Orphan Diseases
Andy Battaglia:
You will find that many of the leaders of the thal organizations around the world have also been affected by thalassemia in some way, often having a child with thal. I found it interesting that in the Maldives, much more attention was paid to thal when the head of the government had a thal grand child. In spite of the enormous problem in Maldives, thal care is a relatively new development there and is why the oldest Maldivian patients (Bassam and Niuma, two dear friends) are only 27. (Happy belated birthday Niuma! :stars ).
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