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I need some good thoughts and prayers, please.

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Courtenay1826:
Oh, my sweet Danielle -  :hugfriend  :wah

I am so very sorry to hear of this development.  Be sure to know that you are in my prayers day and night - you have been such a HUGE support for me.  I wish I could sit down over coffee with you and just let you vent - I know how difficult the feelings are, when surgeons don't give you much options, etc.

That having been said, I am very upset that this is all the options that the docs in NYC are giving you.  There is a WONDERFUL doc/surgeon here in Syracuse named Dr. Jaswant Bal - he trained first in India (he is familiar with thal and the degenerating effects on the organs) and he is an OB/GYN and reproductive/ureter and colon surgeon.  He fixes bladders, colons, vaginal prolapses, rectal prolapses...you name it.  He helped a family friend of mine with a v. prolapse and bladder prolapse, and what he did so she maintained her bladder continence was: he took a piece of skin inside and actually "anchored" the bladder and v. canal into place.  She has perfect continence now, 6 mos post op.  Would you like his number? It wouldn't hurt to see if he might be able to anchor the colon to allow it to focus on maintaining continence rather than holding itself in place with its limited muscular capabilities.  Would you like his number? PM me if you'd like it.

All our love,
Courtenay, Karol, and Mychael

Andy Battaglia:
HI Danielle,

I agree completely with Courtenay that you should seek another opinion. There are other doctors that can do advanced procedures and you shouldn't be limited to your local surgeons if they aren't familiar with the newer techniques. Definitely check into it. Syracuse is not so far to travel and if the doctor there can keep your functions intact it is well worth the trip.

Take care Danielle, and know you have a ton of friends here pulling for you.  :hugfriend

Manal:
Please Danielle, have the opinion of Courtenay's doctor. It seems that there are other options. As Courtenay said, it wouldn't harm. Good Luck :hugfriend :hugfriend :hugfriend :hugfriend :hugfriend

Manal

Canadian_Family:
Dear Danielle,

Our prayers are with you. We are very upset at the news. Please take care of yourself and remember that people around the world are praying for you. We are looking forward to a happy Danielle soon.

PS. Please pay attention to Andy's advise about another opinion.

Regards.

Sharmin:
Danielle,

I am so sad to read what you are going through!  My prayers are with you and hope and pray that the best case scenerio will be the case for you.  I hope you get another opinion and that you are given more favorable options.  You help everyone throught so much and you give us all such courage.  You are an inspiration and my prayers and good thoughts go out to you.   :hugfriend :hugfriend  Sharmin

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