Discussion Forums > Thalassemia Major

NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!

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Christine Mary:
Hi guys!!!!!!!!!!!!!!!!!!!!

No transfusion for Lauryn today!!!!!!!!!
 :yahoo :yahoo :yahoo :cheer :cloud9 :cloud9 :cloud9 :cloud9 :cloud9 :heartred :clap :clap :veil :veil :veil :heartpink :love :love :party :stars :nurse :happydance :grouphug :high5 :bigparty :yay :wootwoot :yay :yay :bigparty :bigparty :wootwoot

Its been exactly 4 weeks since her last transfusion and she's still at a 10.2!!!!! Her dr doesnt want us back for another 2 weeks. Her retic count is also great-2.4 %.

We are still waiting for the DNA results to conme back. Is all of this strange? I didnt think majors went longer than 4 weeks... Lauryn will go 6!

Her dr also says it looks like she will transfuse less often than most majors?! Is this normal?

The only thing I didnt like was her spleen was STILL 3 cm. Is this okay?

I am so happy about this news. I wish I could hug all of you to show my appreciation for helping us and listening to me.

xoxoxoxo
 :hugfriend

Andy Battaglia:
WOW!  :biggrin  That's great news Christine! Of course we'll all start thinking about the possibility of intermedia and hydroxyurea but we best wait for the DNA results.

Sharmin:
That's wonderful.  The longer she can go between transfusions the better!  Transfusion requirements vary for different people, the average is about 4wks.  The longer your little one can go the better.  It's also nice that she didn't need to begin tx for such a long time.  This is good news and you should treat it as such.

All the best,
Sharmin

Kathy11:
christine .
Lauryn is cute and you are doing the best you can, for her.
I'm glad she doesn't require transfussion at this time.Let us hope it will holds up.a hug from me to Our darling little angel she has all the love to make it in this world,
Kathy

jzd24:
That is such good news, Christine!! I am so happy for you and Lauryn.  :veil :flowers Jean

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