Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: Eponine on December 03, 2007, 12:28:47 PM

Title: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on December 03, 2007, 12:28:47 PM
Hi all

Would like to find out for those whom you think you cant make it for the Conference in Singapore from 8-11 Oct 2008, would you be willing to pay the registration fees but stay at home to watch the web cast of the going ons in the conference.

Would like to find out how popular this option is before we start planning for this option. Do respond k?
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Zaini on December 03, 2007, 01:03:47 PM
Hi Eponine,

I'd love to attend the conference in person, but i don't think it'd be possible for us ,and there are so many stupid reasons ,including finances.

ZAINI.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Andy Battaglia on December 03, 2007, 04:00:24 PM
Would the webcast be at a reduced rate? It just can't compare to being there in person and meeting everyone and no lunch! hehe.

I hope the organizers keep the vegetarians in mind for the lunches. There were some complaints in Dubai about the inadequate vegetarian offerings. Hey! We gotta eat too.  :biggrin
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: red on December 03, 2007, 10:03:42 PM
how much $ would it be to watch the webcast?

cuz if its not too high a price, it's better than nothing, i mean if you cant go.

going would be #1 option, like Andy said meeting everyone and so forth.  (lunches definetly)

but if some cant make it, it would be nice to see whats going on.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: KHALIFA on December 04, 2007, 04:34:08 AM
I'll be there with my bike Harlley davidson with full back bag of food ..  hey guys it's just few days......... even am going to bring a tent for two person i don't mind any body share me .... :wink                                             
                                             khalifa     
                                       state of kuwait
                              one for all and tent for two
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: red on December 04, 2007, 05:35:30 AM
ahahahahhaah! awsome khalifa! i have harley davidson boots!   :friday
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: §ãJ¡Ð ساجد on December 04, 2007, 12:50:54 PM
Hi all,

What about the sponsor program? If our Thal. center is directly associated with TIF can they provide a little support? If they can then I might be seeing you guys there as JSF is directly affiliated with TIF and Thal. Soc. of Pakistan :biggrin

P.S: Khalifa, I hope you have a BIG tent! Count me in!
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: jane_filipina38 on December 08, 2007, 06:43:59 AM
that's good news! it would be a great reunion for all of thals. it would not only about the conference but the sense of belonging and real essence of togetherness on that day. we shall have a one day fellowship after the conference,God permits!  BUT THE PROBLEM IS.... finances! cant we not ask assistance from world health organization?or the international organization for thals? maybe we would send solicitation letters to donors signed by the administrator of international organization for  thallasemia? if only I am rich as 5% of the riches of Bill gates I would be giving away folic acids and pumps on that day  :dunno :-\
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on December 08, 2007, 04:41:50 PM
Would the webcast be at a reduced rate? It just can't compare to being there in person and meeting everyone and no lunch! hehe.

I hope the organizers keep the vegetarians in mind for the lunches. There were some complaints in Dubai about the inadequate vegetarian offerings. Hey! We gotta eat too.  :biggrin

We have to discuss further on the rates for the webcast thingy. Right now it's only an idea that has been thrown up. We have to discuss further on how feasible it is.

As for the food, thanks for reminding us about the vegetarian bit. We carnivorous tends to forget about that. But most certainly, the food will be halal to cater for our muslim friends.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Zaini on December 08, 2007, 05:40:55 PM
Thanx Eponine,

Though i don't think i'd be there  :(

ZAINI.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Ash on December 11, 2007, 05:47:20 AM
Would the webcast be at a reduced rate? It just can't compare to being there in person and meeting everyone and no lunch! hehe.

haha Guess whose idea it was for the webcast. It was a discussion in the Pune conference remember Andy you had come to India first time?

George and Ms. Tuli were in the meeting representing TIF and I was representing MTS thats when I gave them the idea.

Oh my god they listened to me how shocking! haha
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Andy Battaglia on December 11, 2007, 06:46:34 AM
Ash, you've been way ahead of TIF concerning the internet, all along. At least the Pune conference was video recorded. I was amazed at the Dubai conference when Shilpa tried to get copies of the tapes of the talks and found out most didn't exist. Let's hope the Singapore conference tapes every single talk and presentation and also webcasts them.

And Ash, even if they listen to you, you know the TIF people will never acknowledge your contributions. You've been an online pioneer and TIF's website is still fairly lame. They just don't seem to have the same appreciation for the way you speak your mind that I do.  :biggrin   That Pune conference was a great experience for me and looking back, there were some very interesting discussions, and some interesting attempts at other discussions. And then, there's some people who just don't like what we have to say. Dr CJ, perhaps.  :rotfl
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Ash on December 11, 2007, 07:48:54 AM
Lol thats a website I thought it was a poster!
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: red on December 12, 2007, 08:02:08 AM
i emailed TIF about the conference and what would make good candidacy for sponsorship.  they never wrote back and i sent the email about 3 weeks ago.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Ash on December 12, 2007, 11:29:12 AM
Dont expect a response. Talk to your local thal assoc they would have all the details. If not they will get a reply quicker than you will.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: red on December 13, 2007, 11:11:37 AM
thanks Ash!
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: roldan par on December 17, 2007, 01:47:19 PM
hello Andy!!!
 
Our local group here in Manila really want to be there at the conference but unfortunatelly not all of us have the financial capabilties, but we're making an effort in finding a sponsor to atleast have a representative for our  local group here in the Phillipines!I really love to be there.. :love
We hope nextime it'll be held here in our country?
More power to the group and fellow thal there!Godbless!!!
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on February 01, 2008, 04:19:31 PM
Hi guys

Those of you looking for sponsorship can look to the major pharmaceutical companies. They do sponsor quite a few from each country for every conference. Look to those comapanies that deals with chelation drugs. The major one  :winky
But best to go to your local NTAs cos these companies would give the grant to the NTAs for them to decide who should go.
But again, no harm trying.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on February 01, 2008, 04:23:58 PM

George and Ms. Tuli were in the meeting representing TIF and I was representing MTS thats when I gave them the idea.

Oh my god they listened to me how shocking! haha

Haha sorry ash to tell you this, but this webcast thing has totally NOTHING to do wtih TIF. We, the organisers came up with the idea somewhere along the way but not sure if it would work. Response doesnt look too good though. Might just scrape it because of the extra cost.
BTW this conference is organised by the local commitee in Singapore who has the full organisational control. TIF doesnt have much to do with it. They lend their support and give suggestions.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on February 01, 2008, 05:03:25 PM
Ash, you've been way ahead of TIF concerning the internet, all along. At least the Pune conference was video recorded. I was amazed at the Dubai conference when Shilpa tried to get copies of the tapes of the talks and found out most didn't exist. Let's hope the Singapore conference tapes every single talk and presentation and also webcasts them.


Hi Andy

Thanks for the suggestions. We will take into account these suggestions but I really cant promise ok? Cost is a VERY big factor here. We want the best for the patients and medical personnels attending this conference, but we have to jump through obstacles.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Nur on February 03, 2008, 05:05:48 AM

Those of you looking for sponsorship can look to the major pharmaceutical companies. They do sponsor quite a few from each country for every conference. Look to those comapanies that deals with chelation drugs. The major one  :winky
But best to go to your local NTAs cos these companies would give the grant to the NTAs for them to decide who should go.


Dear Eponine,

I agree that the best way in getting sponsorship is by local NGO's but my concern is that it only covers for a few patients per area. Like my NGO for instance, the most they can provide is only for 3 persons while the number of patients that are applying is more than that. So i'm not putting high hopes on local NGO's in providing me sponsorship.

My hope is thru sponsorship from pharmaceutical companys but i really have no idea on where to start, What kind of letter do i need to do and so on..... :dunno


Nur
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Sharmin on February 03, 2008, 05:45:17 AM
Gosh Eponine,

I would really like to be there.  I am yet undecided but I'll let you all know once I know. 
If I can not make it I would definitely like to watch online. 

Sharmin
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on February 03, 2008, 01:18:55 PM
Hi Sharmin

We will work on that online thing to see if its feasible.
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on February 03, 2008, 01:20:08 PM
Hi Nur

I've PMed you. Let's discuss more about it offline.  :grin
Title: Re: International Thalassaemia Conference 2008 (Singapore)
Post by: Eponine on August 14, 2008, 12:32:05 PM
Hi All

Just a reminder that the extended early bird registration closes tomorrrow, 15 Aug 2008. Do sign up if you have not done so!