Thalassemia Patients and Friends

Discussion Forums => Working Towards a Cure => Topic started by: Manal on April 14, 2008, 11:30:14 PM

Title: News from Hemaquest
Post by: Manal on April 14, 2008, 11:30:14 PM

Hi everybody

I have good news, i used to email Dr. Suzan Perrine about my son's case and she is so helpful and answers my emails. Yesterday, i emailed her asking about the new oral drug that induces the fetal Hb as the trails were supposed to start last summer of 2007. She answered me as follows and i truely appreciate her reply

Quote

Dear Mrs. Zaatar,

 

Thank you for writing.

We will begin trials of the new medicine  in Lebanon later this year.

 

We will not yet be able to treat  young  children immediately, until we find the best dose.

We are working hard to find a good treatment for your son.

 

Please continue to stay in touch, so we can tell you when young children can participate.

Best wishes,

Susan  Perrine

 

 

Chief Scientific Officer

VP, Clinical Affairs

HemaQuest Pharmaceuticals Inc.

I wonder if this new medicine will be effective with all patients or like the hydrea some benefit and others don't, hope we get to know the answer soon

Manal

Title: Re: News from Hemaquest
Post by: Sharmin on April 15, 2008, 02:05:58 AM

That is great news Manal,  I hope that this treatment works like a miracle - and I hope it helps everyone!! 
Thank you for sharing the news:)

Sharmin

Title: Re: News from Hemaquest
Post by: §ãJ¡Ð ساجد on April 15, 2008, 05:26:15 AM

Thanks for the update Manal. :hugfriend

Hoping to hear about this breakthrough soon.

Title: Re: News from Hemaquest
Post by: kabir_love on May 10, 2008, 09:21:53 AM

new comes giving us a hope..  but our wait is like never ending..

i alwayd update there site if any updation any invitation. lol

Title: Re: News from Hemaquest
Post by: Sharmin on June 12, 2008, 03:37:52 AM

I am soooo hoping this comes through for all of us soon!