Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: B Thal Girl on May 08, 2008, 02:49:28 PM

Title: International thalassaemia day 2008
Post by: B Thal Girl on May 08, 2008, 02:49:28 PM: Dear friends,
Today is the international day for thals and I would just like to take this opportunity to extend best wishes to all my brothers and sisters here on this website. I have been able to find people who understand and share common problems and I am very grateful as I know that i am not alone in this fight.

I would also like to give thanks to everyone for our connection.
Title: Re: International thalassaemia day 2008
Post by: Andy Battaglia on May 08, 2008, 04:50:45 PM: Happy International Thalassemia Day to All!

A special thank you to Dr Asim, Marie, Noora and Amru for the lovely gift. I wish I could be celebrating again with your countrymen in the Maldives this year. Your gift brought a tear to my eyes. :grouphug I miss everyone so much.
Title: Re: International thalassaemia day 2008
Post by: Sharmin on May 08, 2008, 07:36:43 PM: Happy Thalassemia Day everyone!!
Title: Re: International thalassaemia day 2008
Post by: Narendra on May 08, 2008, 09:36:56 PM: Happy Thalassemia Day to All,

Let's HOPE for the best in the coming years

Cooley's Anemia and TAG are going to talk with representatives in Washington DC about the issues that affect Thalassemia, which include Blood Safety, Clinical Research Funding and Health Insurance Funding

For more info:- http://brucerod.com/tag/conference/2008/TAG_Conference_Legislative_2008.pdf
Title: Re: International thalassaemia day 2008
Post by: Kathy11 on May 08, 2008, 10:47:12 PM: Ok Guys lets parteeeeeeeeeeeeeeeeeeeeeee :run :run :offtobed :offtobed :offtobed :nurse :nurse :nurse :flirty :flirty :flirty :flirty :spit :spit :khalifa :khalifa :khalifa :frustrated :frustrated :frustrated

this brings new definition of party time.

Thats the best I can do. Always the clown and the party pooper

I think today its a reflection day for all of us thal sufferers .
Kathy
Title: Re: International thalassaemia day 2008
Post by: Manal on May 09, 2008, 01:03:17 AM: My dear friends :hugfriend :hugfriend :hugfriend

Wishing you a happy thalassemia day. I spent yesterday and today in the International Cairo conference, guys it was great. I have loads of information and updates that i will share with you all, but i will write the post tomorrow as i am terriblyyyyyyyyyyyy exhausted, i have many news, so until then prepare yourself for a looooooooooong post.

I love you soooooooo much and i miss you all
manal
Title: Re: International thalassaemia day 2008
Post by: nice friend on May 09, 2008, 01:23:06 AM: Hi all ::
HAPPY THALASSEMIA DAY To all of u too may this T'DAY will let us towards better treatment medications & researchs .... so all thals B Posistive as i m ........... ( B+ve is my yeah blood group thats y negtive thought can't enter in my Brain )
Title: Re: International thalassaemia day 2008
Post by: Zaini on May 09, 2008, 04:07:02 AM: On this thalassemia day,i just wish that our govts start seeing where their attention and funding is needed,which is definitely not getting weapons and waging wars against each others.

ZAINI.
Title: Re: International thalassaemia day 2008
Post by: §ãJ¡Ð ساجد on May 09, 2008, 04:39:13 AM: Yes, Zaini :agree !

Yesterday I had surfed through all channels to see a glimpse of the PIMS convention being covered on the T.V. It looked like all the media of Pakistan was there to cover; but I was really disappointed when I had to turn off the t.v as the only highlight news of yesterday on every channel was the news of destruction of humanity rather than the prosperity; it was the announcement of the new cruise missile that Pakistan developed; no Thal. Day report, not even a 20 sec slot; just a news ticker that passed within few seconds for a minute or so. What did all those shutterbugs did there?!?! What happened to the recording of every channel camera that was there?!??! :mad
Title: Re: International thalassaemia day 2008
Post by: nice friend on May 10, 2008, 03:20:32 AM: hi sajid :
on 8th may thalassemiia day i watch many documentarys on these chanels AAJ tv , GEO tv,Express News channel & dawn news chanel ... especialy on AAJ , EXPRESS NEWS and GEO tv reports was playing with each bulletin ..... i watched that the thalassemia society of lahore ( which is runing by mam javeria manan ) organized the show in which thal children showed their talent as participating in tablo n other activities .i watched a report on express news chanel in which they reporter's location peshawar center ( i dont know which thalasemia center that was fatmid or other )...........and AAJ tv i m not remember but it was karachi or pindi but i gues it was pindi pims.
Title: Re: International thalassaemia day 2008
Post by: §ãJ¡Ð ساجد on May 10, 2008, 12:03:55 PM: Hi Umair,
If you saw the Health/Info. Minister Ms. Sherry Rehman on it then that was PIMS otherwise not.
(By the way, did you see me!?!? :biggrin )
Title: Re: International thalassaemia day 2008
Post by: Lyanne on May 10, 2008, 01:51:24 PM: Happy International Thalassemia Day everyone!!!!!!!!!!just had wonderful day with our support group (Mindanao Thalassemia International Foundation) here in our place..... We had a week long celebration and just had the last day today..... We had a blood letting and a new oral chelation(Ferriprox) introduced this day, we also had a motorcade and a drawing contest for the younger patients....which they could win a bottle of the new ferriprox.
Title: Re: International thalassaemia day 2008
Post by: Kathy11 on May 11, 2008, 12:04:56 AM: Hello Sajid.
How are you?I hope you are in manageable health.

Do you by any chance knows what has happened? to our for pastry cook :huh :huh

I would like to place an order for a nice cake to be sent to Zaini and Sharmin ,Vic,Manal and all the other mothers. To celebrate.
Please send the Account to " I forgot who" :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
What is life without a joke?
Title: Re: International thalassaemia day 2008
Post by: Manal on May 11, 2008, 12:54:32 AM: Thanks Kathy alot :kiss :kiss :kiss, you are sooooooo sweet and you really bring a smile on my face. Please Sajid we need a big one for Kathy too

manal
Title: Re: International thalassaemia day 2008
Post by: §ãJ¡Ð ساجد on May 11, 2008, 05:30:28 AM: Hi Kathy!

I'm doing good :ty

Your request has been fulfilled. Check the mother's day thread.
Title: Re: International thalassaemia day 2008
Post by: nice friend on May 11, 2008, 07:03:13 AM: Hi sajid :
i m sorry to say that i didn't saw u . i i m writing down the center i recognized in report .
one was the THALASSEMIA SOCIETY OF PAKISTAN ( LAHORE CENTER)
one was the (i don't know by name but ...... reporterting center was ( Peshawar)
one was the (i don't know by name but ...... reporterting center was ( Queta )
one was the i m not sure abt but i gues the in one report iheard the name of health minister ..
one was the (i don't know by name but ...... reporterting center was ( karachi ).
sorry sajid i didn't saw u sorry again yaar ( but i was keen to meet u in lahor thal conference & i was expecting too ......... i planed to go to lahore to routine check-up on thal day so then i can meet u but my blood reports ..........i got my blood reportsyesterday thats the reason y i didn't went............... BELATED HAPPY THALASSEMIA DAY to u i hope it will bring some good news for both of us related to the thalasemia.......... oh yes sajid can we meet on msn ??. i have some ideas to talk abt for ur website islam such ............n other............... yes 1thing more to add THALzone.com Thalclub.com thalportal.com think abt it ( THALSITE.COM ) wat u a said that r making site by this name i have send three sugestions think abt it instead of thalsite.com and the decission will be urs but just think abt three others domain names.................................... ok bro thank you itake care from
umair_586@hotmail.com for msn
Title: Re: International thalassaemia day 2008
Post by: §ãJ¡Ð ساجد on May 11, 2008, 07:38:20 AM: Hi Umair,

I am pretty disappointed at the outcome of the convention. It's likely of the politicians to involve politics at every occation possible.

As for the site. I didn't want to make a new site, I just wanted an "easy to jot down" URL for this very site. There are quite a few websites about Thal. out there but Lisa's site is THE ULTIMATE one. This site is the most comprehensive resource about Thal. and frankly I think it deserves the Thalassemia.com URL. No where else you would find in depth authentic answers from a resident expert who is so selfless for Thalassemia. Furthermore you would find representatives from all parts of the world, contributing all the information regarding Thal. from their countries and guiding others no matter where they belong from. Finally putting Thal. aside, nowhere else you would find such loving and caring members that treat each other not like friends but like family.

Just like our buddy Khalifa says: "All for one and one for all!" :grouphug
Title: Re: International thalassaemia day 2008
Post by: nice friend on May 11, 2008, 12:43:16 PM: HI sajid i agree to u abt the politicians ....

i heard that u r keen to make a site with domain name : thalsite.com thats y i sent some domain names .............. thalassemia.com is reserved domain name n also exist ... it is the site of CHILDREN'S HOSPITAL & RESEARCH CENTER OAKLAND CALIFORNIA :biggrin.....

plz send me URL of lisas thalassemia site thank you
Title: Re: International thalassaemia day 2008
Post by: §ãJ¡Ð ساجد on May 11, 2008, 03:08:27 PM: :huh

I thought I was pretty crystal about it :biggrin

Anyway, brother I was talking about registering a short Re-directing URL for this very site and not a top level domain. By the way, THIS VERY SITE IS Lisa's site and if you read that post again, I've edited it before the convention and mentioned the URL in it makethal.better.ws (http://makethal.better.ws)
Title: Re: International thalassaemia day 2008
Post by: Andy Battaglia on May 12, 2008, 06:10:13 AM: www.thalsite.com is Lisa's own personal site that is still administered by her mom, Shirley.

I don't think anyone on earth deserves thalassemia.com more than Oakland Children's Hospital. Oakland's Dr Vichinsky is my hero and a more dedicated doctor and researcher can not be found.

When choosing the name for our new site after leaving MSN, we did have the option of changing the name of this site to something shorter. However, this is the name Lisa gave her site, because she welcomed all. She made it very clear that it was to include family and friends and had no desire to run some exclusive, patients only site. In her own personal life, Lisa drew much strength from family and friends and recognized the value that everyone had to offer. I know the name is long, but to keep the true spirit of her site, we kept the long name. I like the idea of a short re-direct and wonder if we could find something even shorter.
Title: Re: International thalassaemia day 2008
Post by: §ãJ¡Ð ساجد on May 12, 2008, 07:18:18 AM: http://www.thalassemiapatientsandfriends.com

is a great comprehensive URL that addresses the interested audience of the site. It's good enough to be sent via email or bookmarks too as long as a computer is involved to handle it however, it's the people who make the mistakes while using the classic pen and paper :biggrin

A free redirecting ccTLD .tk is also available but it is slow, not always 100% up and has popups/ads :(