Thalassemia Patients and Friends
Discussion Forums => Living with Thalassemia => Topic started by: nice friend on August 08, 2008, 11:20:30 PM
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1 ) is that possible to grow up in height after controling iron level in the age of 21 yrs ?.....
2 ) is there any treatment available for this purpose ?....
3 ) what is the average height of thalassemics ?.....
i m asking this just for sake knowledge i m not worried abt my height .. i m a short man but i dont feel that i m a very short man as my height is 5 or 5.1 feet ....
hey reader if u r thal then i have a question for you to answer that is :
what is ur height ??... plz dont forget to write the answer in reply :biggrin
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my height is 1.63cm I hope that is right 5 feet 4 or 6 inches
and weight is around 51kg
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I'm 160cm or 5'3" and weigh an embarrassing 35kg :blush
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My daughter is 121 cm and weighs 26 kg.
ZAINI.
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Ops i forgot to mention my wiehgt soo ...
ahum . ... ahum.... 43 Kg ....
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oops I did it wrong....
My height is wrong its 163cm 5 feet 4inches
Weight is about 51kg. :biggrin
Sajid never be embarrased
It took me 35 years to reach over 50kg and maintain it :biggrin
Be proud, you are doing great.
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thats ok wid the height,,,usually thals dont hav much heights bcuz of the reason that iron interferes in this area ...and those thal wid more height often hav themselves damaged by iron somewhere else ,, i ws "ONLY" damaged in growth and hight by iron ... mine too is 5.1 ........ weight keeps on changing 44-46 ....
actual thing is the height of ur character... not the apparent height .
Reach upto the level that 6" ppl envies ... b more energetic stamina confidence self esteem knowledge and acheivements .. after which ppl would look upon u ...as a gr8 man .
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Waleed, I believe you are right.
God made up for the thal by giving us all....
Excellent strength in our selves (ego), Stubborn ( won't take no) :bat, self accomplishments, warm characters and just wonderful people to know and love :grin
I could go on..... but we all know what great people we are. :flirty
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well im the taller than my sister im 171 cm
and 50 kg
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hi maryom :
you got a good height ..... wow 5.7" super...
that's the height i wana reach too ....
@cheriean
you are right ...... God blessed us with everything ..... good attitude , super confidence , self determination , a good and strogn character ,strength, courage and everything anyone can wish to have .....
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@ All who replied to this post and will reply soon to this post :
my question was abt know average height of thals.i know that height factor depends on treatment , conditions , and your parent's height ... but just wanted to know.....
i want to say thank you to all of you who replied to this post .... i also want to say thank you to all of for your kind words .......... i realy like the resoponse i got to you people under this topic .....
UMAIR
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Well I am a tiny 5ft and weighing in at 55kgs... :rotfl
But what I lack in height is I make up for the loudness.... :rotfl
I am a little pocket rocket...hahahahaha
My voice makes up for my height...
Cheriann we are all what you said and more!!!!
Well I started treatment young, but it has to do with your hereditary too...My family isnt that tall either...well my mother and father arent that tall, I am taller than my mother and alittle shorter than my father...My sister is the tallest in my family..
Take care all...
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is there only five active member on the site ..no definately no ..then reply friends .. we have to make result wat could b thals average height and weight soo plz help me finding out the results ...
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Umair, it's about genes and your locality.
A similar topic was on another forum and one of their Dutch member is about 6 or 7 feet high. Don't you see the hockey matches. Our players look like kids in front of them.
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Umair, it's about genes and your locality.
yeah buddy :
i know that .. but it is for the people who feell that they r not as tall as a normal person ... i started this thread to make a thread in which they can asses that is not bcoze of thalasemia ....
and they can feel that they are as tall as normaly other thals r ...
in the other hand i want to say that ... as Iron effect's on the growth it could also effect on ur height ... in my relatives and cousin they r about around 5.10 ......
i m only 5 feet there is a big diffrence ... it doesn't matter for me ..but it was a general question to the thal's view ...
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Just to clarify this.. I DONT FEEL INFERIOR that I am short... I love my height infact...
As Sajid has mentioned before..It does have to do with genes... But the local part doesnt really count, cause I have relatives that are 6ft tall and they are in australia nd greece....
I also know of alot of Thal Major patients who are tall and their parents who are shorter than they are...
Thank you..
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Hi smurfete :
i have replaced the word ...well ... as i mentioned before that it was just to know the percentage of tall thals and short thals ... well if it hurt's you or someone else of this forum then i want to that it could be by mistake ... i did't mean to hurt someone ...
nothing more to say thank you and all others who participating in this thread ..
i know its a game of genes but there is a little involvement of Hb and IRon overload .... i thinnk that
Andy plz contribute in this thread and plz let me know that i m right or not ????...
i hope ur cntribution could help us to find a fine answer ....for this ...
Best regards
Take care
UMAIR
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Hi there,
my son - who will be 10yrs old next month - is 128cm and weighs about 27kg.
Let's see what his adult height will be.
Cheers,
Sharmin
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It's well established that thalassemics are generally shorter in stature than non-thals. However, genetics also plays a role so there are thals over 6 feet tall and some are 4' 6". Bigg even posted a link to a study that showed that thal minors are shorter in general than non carriers at
http://www.ncbi.nlm.nih.gov/pubmed/15507851
Personally, I wish thals wouldn't let themselves get distracted by issues like their height or youthful appearances. These things aren't really important yet I know thals who don't want to live because they are short. My niece is 4' 10". She isn't thal but she is a mom to 2 kids. She doesn't worry about her height. She's got short parents and is genetically short. My mom was 4' 11', but no one back talked her. It isn't your height. It is your heart. What kind of heart do you have? Are you a strong person? Do you have a good heart? Are you confident in yourself? Are you a person who defines yourself or do you let others define you? I know how Smurfette answers these questions and I think every thal should be the same. Be yourself and define yourself. Don't let a silly think like stature affect your life. Napoleon was short and conquered Europe. Go out and conquer your own worlds and never let your height matter.
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@ Hi Andy :
thanx for the post , it helped me alot to understanding the picure...
height and other complications doesn't matter in my case...
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@ every visitor
(1) why i posted this question ???..
it doesn't matter that how i m looking and how tall i m ...
it was for the people who didn't know that Iron (which is big complication in thal) could effect the growth of the patient...soo they will strongly determine to, not to stop chelation... thats y i posted that question.. otherwise i m not worried abt my height .... my way of thinking is " if i cant change my face then i m happy with it and i have the world's beutifull face " it was an example only ... i mean to say that, stay happy thanx to God, that u have 2 hand and 2 eyes bcoze some people even dont have these... plz read my posts to see the Impression of my positive approach, thoughts & thinking,..
special thanks to you andy for understanding me and exlpaining my words to others ...
thank you :hugfriend
take care
bye
umair
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Be yourself and define yourself. Don't let a silly think like stature affect your life. Napoleon was short and conquered Europe. Go out and conquer your own worlds and never let your height matter.
I agree totally :biggrin and not just with our heights & weights but our life span.
Drs and text books put a limit on how long we live.... I don't agree.
I believe that I will live a long and fruitful life because thats my goal.
Whether it is short or long... I will make an impact on the people I meet and who know me.
That will be my legacy just like our founder.
Until then I will continue to make my mark in this world and enjoy every second.
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hello friends,
I am 165 cm and 45 kg and I am 22 yrs old...
:)
Fouad
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hi friends
my height is 5'3''
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hi everyone,
my height is 5' 2" and weight 52kg.........good combination of 5 and 2 :rotfl
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I am new here, was going thro some of the posts,
I am 6 feet 3 inches and weigh around 53 kgs.
some docs told that thalls dont grow very tall but was surprised at me
:biggrin
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I'm 5" tall and 46 kls. I'm 31 years old,we(me and my sis) are the shortest from both of the side of the family.
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I am new here, was going thro some of the posts,
I am 6 feet 3 inches and weigh around 53 kgs.
some docs told that thalls dont grow very tall but was surprised at me
Ray ,
you are an inspiration for the thals who think they cant grow tall , soo please do care of your self to impress other thals to take care of their selves and to keep their iron under controle so they can also as tall as you are. .. i personaly know many thals who think that they cant grow more than 5 feet , but i always say them that if they controle their Fe levels and maintain their Hg above 10 , they can also grow as normal persons .. soo please doo care of your self for you and for other thals as well ... keep up the good work, keep chelating and keep fighting against Thalassemia .... Rule the Thalassemia , dont let it to role over you ...
Best Regards
Take Care
Umair
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Ray,
Have you ever used desferal? I am curious because desferal is the other reason thals are short. It does slow growth. I have seen some tall thals Like Mike Michael but most are short, although it must be taken into account that many of these people would be short genetically anyway.
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Andy,
i remember in one of lectures in Singapore, one of the the doctors (can't recall the name now) said that it was discovered that taking desferal before the age of 2 years cause the bones of the vertabra to flaten anf therefore leading to a short vertabra compared to the limbs whose growth is not affected. From the above we conclude that the measurement of spinal cord is an essential procedure during the administration of desferal
manal
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Any idea how much height should a child gain in an year?
Zaini.
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Wow, dude!!! That is seriously tall ..... I do hope u r trying out to be a fast bowler (a la Ishant)!!
I am 5' 10" and weigh 60 kgs and used limited desferal.
My good friend Ashish was 5' 6" and used to weigh more than me - and Ashish was on desferal for a long time - it did not seem to have affected his height, although his mom is much taller. DFO did affect his ears, though.
Cheers
I am new here, was going thro some of the posts,
I am 6 feet 3 inches and weigh around 53 kgs.
some docs told that thalls dont grow very tall but was surprised at me
:biggrin
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Zaini
I am not quiet sure, but what i know is an average of 5 cm per year. The best thing is to asses the child genetically according to his parents' height
manal
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Thanks Manal,
Actually i noticed from Lil Z's records that she has grown only 4 cms since last April,i don't know if that's goos or bad,last April her height was 120 cms,and right now her height is 124 cms.
Zaini.
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Zaini
I think that the best one who can answer this is the endocrinologist who is familiar with thalassemia. He/She can evaluate her growth genetically according to her parents' height and give you in which percentile she fits
manal
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Hi All,
Just thought I would share my secret too :wink
I'm 152 (5 feet even) and weigh 42-43 kgs.
I'm the shortest in my family, however, my mom is about 5'1'' or 5'2'', so, not that much different. My brother is also shorter than my dad. Everyone accept me in the family is non-thal, Alhumdulillah.
I'm the chosen one! :wink
All my siblings' height is between my mom and dad's height.
I do believe that if you take care of yourself and keep your levels as close to normal as possible, and get evaluated routinely, it's possible to reach the normal height dependant on your genetic makeup. My levels have always been way out of range, and still, I reached the 5 feet mark!
One other thing I would add to our qualities is that thals generally look pretty young :wink, definiltey something everyone wishes to have... I have a sis 5 yrs younger than me, and everyone thinks I'm the youngest in the family!
Wish you all the happiness in the world!
-SF
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Me and my hubby we both are not very tall,i am 5.2 and my hubby is 5.8 may be,so i am just expecting that if Little Z reaches 5.2 like me,that would be fine.
Zaini.
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Insha-Allah! Let's hope little princess Z beats mommy in her height! :smiley
Wishing your family all the best!
Regards,
SF
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INSHA-ALLAH .....
Umair
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Thanks SF and Umair, :hugfriend Thanks a lot .
Zaini.
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:urwelcome
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(http://i195.photobucket.com/albums/z311/carbar57/MyWebCreations/YourWelcome.gif) Sis,
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Zaini,
In little Z's class pictures she looks like she is taller than her classmates - I am guessing 5'5" for her :wink :wink
Sharmin
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Again that proverb in Punjabi Sharmin,
"Tuhaday mu wich ghee shakkar" Now i really don't know if it would make sense in english . :rotfl :rotfl :rotfl
Zaini.
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Good timing with that proverb - just as I had a nice piece of milk chocolate :)
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and i am having a kulfi :food today is one sweet day :biggrin
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Hey nice friend,
The reason could be that when I was young I prayed to God to become tall, That time i did not know much about thall condition, so Thanks to God for answering, :smileblue
Hi Andy,
the only chelating drug I took was kelfer
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Ray,
Good to hear that , wat-ever is the reason but i m realy impressed to your height .. :thumbsup
Umair
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Hello to all
well My height is 5.4Ft and weight is 54 kgs
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Im 158sm amd 45kg
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hello
i am 5 feet and 5 inches and my weight is 50 kg
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i'm 1.40 m and weight 38-40 kg.
i always thought i was small because i'm foreigner here.
Undernourishment i was told. Since 3 weeks i know better ;)
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My new-to-me 12 year old daughter is 4' 9 inches and 85 pounds. Her medical care was severely lacking, but I thought her height was from the poor nutrition and the constant junk food diet she was receiving. I wonder if she will grow a little more now that her diet has changed and supplements are started?
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Your intervention at this point will make a huge difference to your daughter's health. You can only wait and see if she grows taller, but more importantly will be what you can't see in terms of bone and organ health, and this is where proper nutrition will make a big difference. This will also be reflected in her mental abilities which will also benefit. A good diet and good nutrition makes a big difference for children in terms of their clarity of thought and their ability to understand and retain information.
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Cshells,
Have you ever checked her zinc levels?
manal
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The growth, height depends on many factors the prominent among them are the amount of iron deposits in the body and the organs responsible for growth. The age also counts and the proper nutrition outstands all other reasons as Andy said.
Fouad
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nutrition paves way for better mental ability and over all health ... but for height its not cuz the most starved ppl u see are the most tallest ... example african countries .... for a thalassemic , height depends upon the level of irondeposits...
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I am 6'2" 185lbs. When I was younger I was the smallest child in my class for a long time. By 14yrs old I had a growth spurt and grew straight up. By 18yrs old I was the 2nd tallest in class and was still growing. My father is 5'11" and my mom is 5'9" or so. I never had any other treatment besides blood transfusions. I was almost put on chelation, but was able to reduce the iron in my system.
I agree with you all about it's not about the size of a person, but their character that makes them big.
Take care of yourselves.
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Hi!
I'm 1,63 m. (I don't really know how much it is in feet) and 67kg.
I know I have to lose some weight but I've been in the same weight for the last 9 or 10 years and I feel fine.
kisses to you all,
Laura.
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That's about 5'4". And like so many women in this group, you look lovely.
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That's about 5'4". And like so many women in this group, you look lovely.
As usual, Andy is right.
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Thank you Andy and Bobby!!!
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5 feet 2 inches, 39/40 kilos.
(48 in my dreams)
:grin
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5 feet .... 50kg ... cough..cough.. ahum..ahum .. i need some tips to reduce weight :D .. i m getting Fat .. i dont wana look Fat :( .. .. :grins
Umair
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Hi there,
Now I am 5'8'' and 54 Kg.14 year's i take only 2 desfarial per month now I taking desirox 1000mg.
Bappy
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My daughter is 6"3" :biggrin
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My daughter's height is 78 cm. and weight is 9.7 Kg. She is 15 months old. Is this o.k. or she is short according to her age.
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Surendra,
The best thing is followup with an endocrinologist to make growth assessment for your daughter. The doctor will also need the height of both parents to evaluate the height according to parents rather than using the standard tables for height.
The most important thing in this issue is the growth rate as it should be at least constant
Manal
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thanks manal
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I am 4 11 and around 120 pounds.... Age 22
I'm thal minor and new to knowing anything about it. Been really tired for about two weeks. Have been known to black out and get dizzy. Tend to get leg cramps too. Went to the doc and they said take iron but I have read ok here not too. Not sure what step to take next but I'm tired of being tired and sometimes I'm so tired I can't drive home.
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Thal Major, 22yrs old, 5'7" and 57kg
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Hi i am 27 yrs old, thal. major
As on 31.05.2012 my height 159cms, weight 48.5kgs
when i was 20 years old and stated hormon replacement
height 149 cms, weight 35kgs
:yaaaaaay