Thalassemia Patients and Friends

Discussion Forums => Miscellaneous Questions => Topic started by: nice friend on August 22, 2008, 04:14:03 AM

Title: Need the help of all members of the site who r using these suppliments
Post by: nice friend on August 22, 2008, 04:14:03 AM: Hi everyone :
i need your help .. about the spplements you're using ... herbal , natura and medicines ..
i want to ask my doctor to start the supplements like Wheatgrass, L-arnitine, Hydroxyurea, Aloe Vera juice, red clover carao fruit syrup etc... etc... people who r using plz reply inn this post and sen ur coment and the a short detail about side-effects and ingredient that can react in case of Hep-b ... i willl b realy thankfull to you ... Take Care
Umair
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: Smurfette on August 22, 2008, 10:05:44 AM: Nicefriend!!!

Hydroxyurea from my experience is used in sickle cell patients only here in australia..Not for Majors as far as I know...

Wheatgrass is apparently good..but how much you have to take of it to see results is of not my knowledge...

I cant help you on the rest....

Hope you find answers..
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: nice friend on August 22, 2008, 11:54:43 AM: hi smurfete :
thanx for the reply ... it realy helped me ... i m still searching for the more hellp .. i hope i will find my answers of all my question and concerns ... Thank you for the being first to reply and solving my prob ...
Take care
Best regards
Umair
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: sah on August 22, 2008, 01:47:57 PM: My son is using hydroxyurea which possibly raised his Hb from 6.2 to 6.9 after 1 month.I am still using it and found having no side-effects. My son is also taking wheatgrass and his HB changed from 6.1 to 6.2. I do not know whether it was due to coincidence or wheatgrass effect.It also did not have any side-effect on my son.I was trying to use resveratrol ,but presently not able to procure it.
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: nice friend on August 22, 2008, 11:45:02 PM: Hi sah :
thanx for the reply buddy ...
i wana ask that :
is ur son is thal maj ??...
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: sah on August 23, 2008, 04:38:50 PM: Umair hi,
my son is intermedia[hbe beta thal].
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: nice friend on August 23, 2008, 09:03:09 PM: i think i should have to diagnse my thalassemia again.. bcoze i m not sure abt which one disorder i got... so i will definatly ask to my doctor about Hydroxyurea and milk thistle and i will try to convince her to prescribe test if it is possible (to diagnose which one disorder i m having) ..

thanx for the help Sah & smurfete ..

take care
best regards
umair

i have More qestions ..

where i can get ale vera juice ?
is it easily available everywhere ?.
can i get it from natural resources on my own efforts ??..
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: Andy Battaglia on August 23, 2008, 09:07:57 PM: Most doctors don't know a thing about milk thistle so it doesn't do much good to talk to them about it. Most also resent patients when they try to help themselves. The docs usually think they are almighty and all things should be approved by them even though they are often completely uninformed about natural remedies. Many doctors don't even know about hydroxyurea, which is a drug, being used to raise Hb in thals.
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: nice friend on August 23, 2008, 09:20:17 PM: i asked to my doctor when i last time met her ... abt the wheat grass and ip6 ... she knew abt these suplement, she replied "these r natural suplements so i think u may use these suplements " i want to say she was aware to these suplements even once i asked her for medicine for my caugh&cold she told me that " it will will b good if u try some herbal recipe " and then she told me a recipe for the coughncold and that worked alot for me. ...
i hope she will understand wat i m gonna ask to her ... lets see wat happens

Take care
umair
Title: Re: Need the help of all members of the site who r using these suppliments
Post by: nice friend on August 26, 2008, 07:44:43 PM: i have some more questions to ask plz reply if anyone know abt it ...

1) is milk thistle safe for hep-b patients ???
2) is milk thistle also beneficial for hep-b patient ??
3) does it have any side-effect ?...
4) if yes then tell me a little about the side-effects ??

waiting for the answers ...

take care
umair