Thalassemia Patients and Friends

Discussion Forums => Miscellaneous Questions => Topic started by: Life is Beautiful ~ on August 22, 2008, 12:38:26 PM

Title: Queries pertaining to legal issues - thalassaemisa major patients in India
Post by: Life is Beautiful ~ on August 22, 2008, 12:38:26 PM
I have got a few queries pertaining to legal issues involving thalassaemia major patients in India:

- Can a thalassaemia major patient be classified as disable and get some of the disability benefits?
- If he or she can be classified as disable then what would be extent of disability in percentages? It is a very standard question as per the Indian Laws pertaining to disability.
- Can the partents of a thal major get the income tax benefits for his / her treatment?
- Is there any special privilege they could get in jobs / studies etc.?

I would appreciate if someone could provide clarifications on these points.
Title: Re: Queries pertaining to legal issues - thalassaemisa major patients in India
Post by: Tamizhan on November 07, 2013, 05:33:59 AM
It would be better, if Indian govt declare Thalassemia as a disability and provide us Job.
We people should join and raise a concern on this.
Title: Re: Queries pertaining to legal issues - thalassaemisa major patients in India
Post by: Dharmesh on November 07, 2013, 06:06:04 AM
Hi LIB,

In India
Thal is not recognized as Disability. So No benefit is available like handicapped people.

The parents can get IT benefits U/s 80DDB upto Rs 40000/- deduction from the Income chargeable to tax.

Unfortunately  there is no benefits or special privilege in jobs and studies , even there is a chance that u may be denied a job if u mention u r thal. However, there are some good employers also.
Title: Re: Queries pertaining to legal issues - thalassaemisa major patients in India
Post by: Himanshu Kumar on November 07, 2013, 06:38:35 PM
Thalassemia was included in the disabled and handicapped list last year. They can now avail benefits given to disabled or handicapped person in india.
Title: Re: Queries pertaining to legal issues - thalassaemisa major patients in India
Post by: Dharmesh on November 08, 2013, 06:59:37 AM
That's Good news, Himanshu kumar,

Can u please share the official announcement.?

To the extent i believe " The Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995 " do not include Thalassemia.

However,
THE DRAFT RIGHTS OF PERSONS WITH DISABILITIES BILL, 2012 do include Thalassaemia. Which is still waiting to be enacted.
Title: Re: Queries pertaining to legal issues - thalassaemisa major patients in India
Post by: Himanshu Kumar on November 08, 2013, 05:18:17 PM

It was a TOI front page news in Bangalore which I cannot forget. One of my office colleagues also called me regarding the same that day. I am not able to trace back the same article.