Thalassemia Patients and Friends
Remembering Our Friends => In Memory Of => Topic started by: Sharmin on September 23, 2008, 04:19:45 PM
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Dearest Sajid,
I am sad because I have lost a good friend, I am sad because the world has lost one of its kindest and brightest people.
I am sad because we watched you suffer, and then we watched you die.
I feel miserable because despite how much I wanted to there was nothing I could do. I am sad because you are irreplaceable in our hearts and on this website. I love you like a little brother, and I won't have the opportunity to tell you that because you are gone. I would tell you to take care of yourself, but silly me - shouldn't I have known? How?? how could you take care of yourself? The help you needed was not available to you. Andy tried desperately to save your life and to encourage others to do so, but in the end nothing was enough.
Andy, although I cannot replace Sajid I am 100% with you in continuing your dream to help others. I will commit as much time and effort as I can to this cause. I will try to welcome newcomers and help them as Sajid would have. I know that everyone else here will do the same.
I would also like to encourage everyone to join me in making a donation in Sajid Rauf's name. Whatever anyone can afford. We couldn't save him, but in his name I hope we can change the outlook for others.
Sharmin
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I totally agree .
Zaini.
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I Agree ... and hope that you will meet to success in what you're aiming for ... my wishes and prayers are with you .. wishing you best of lluck .... Sajid, he left us alone here to suffer and to feel loneliness ... to live with his memories ... he had suffered more than our thoughts .... it feel very bad when you wake-up in early morning prepare your self to go for Tx and when you reach the thal center you come to know that they cant Tx you bcoze of blood shortage ... he has suffered to this situation several times for only one Tx .... i feel he will be feeling relaxed and free of tension and will b enoying himself in PARADISE .... i think he is sleeping bcoze he hadn't a good sound sleep freely since last 1 and half year bcoze of chelation every night ...... May GOD showers all his blessings upon Sajid's soul and rest his soul in peace ( Ameen )....
UMAIR
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Thank you Zaini and Umair,
Anyone wanting to join in this cause can check the main thalassemia patients and friends page for information on how to make a donation.
Hopefully we can make a difference.
Sharmin
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.. he had suffered more than our thoughts .... it feel very bad when you wake-up in early morning prepare your self to go for Tx and when you reach the thal center you come to know that they cant Tx you bcoze of blood shortage ... he has suffered to this situation several times for only one Tx .... i feel he will be feeling relaxed and free of tension and will b enoying himself in PARADISE .... i think he is sleeping bcoze he hadn't a good sound sleep freely since last 1 and half year bcoze of chelation every night .....
It hurts !!
Zaini.
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We have gone through so much shock this week and we are missing Sajid so much. I know that we are all feeling the need to do something to honor someone who meant so much to us. I have been trying desperately to think of someway to honor him and someway to say goodbye. It has been very hard to let go. This seemed like one way - I'm sure everyone has there own way of dealing with the loss. My prayers are with you all. Just don't lose your faith - and don't forget what Sajid was always trying to do. Never give up on a better life!!
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It hurts !!
Zaini.
wat do you say sis , should i have to remove this words from my post , if you feel that then please let me know , i will do this without hesitation .. i know it hurts , but it is the truth and its wat i felt ....
dont hesitate just tell me and i will remove it from my post ..... i mean't to hurt anyone ...
take care
umair
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Sajid, you'll will always be in our hearts..... We will be missing you. May you rest in peace. :sorrow :sorrow
:ty thank you for the times you shared yourself to pple like me..........
Does anyone knows how young Sajid when he was taken by our ALMIGHTY GOD?
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No Umair,
I never said that anything you said hurts,it's just the bitter facts that you told us about him,that hurts that he had to suffer that much,that he couldn't sleep well,and that he had to face problems with blood availability.
This is what hurts,nothing that you said.
Zaini.
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Dear Lyanne,
Sajid was 27 years old when he was taken from us.
I thought that I had finished crying - but the tears keep coming.
It hurts to know that Sajid was hurting.
Sharmin
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Sis ,
these are the fact almost every thal has to face many times in his/her life ... i m just pointing these bitter facts out soo people who r not interested to donate blood try to start thinking about it.. secondly i want to say about chelation in night , its not that we can't sleep if we are chelating with pump , we can sleep but that sleep isn't the deep soundy sleep that normaly we had ... you will woke up several times handle infusion system , ther will remain a thought in your mind that you have to change the position of your infusion system when you're going to change the side , even while you're sleeping .. soo , you could sleep but not like that freely ... your are regular with chelation or not , its a hard truth that thals have to face more dificulties in both ways .... stoping chelation will create complications and having chelation is a little dificult process .... i dont kow i have to share facts like these or not but its a hard truth ........
UMAIR
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Umair,
I have heard about shortage or unavailability of blood so many times,i can understand how frustrating it can be,although fortunately ,thatnks to God,we never faced any such problem.
I wish i can donate blood,but my hb being on the lower side always,my blood is not useful.
Zaini.
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Sis ,
sajid mentioned about it in his many posts ,, he mentioned several time about the delay of his Tx .. he told several time that his Tx has been post poned bcoze of shortage of blood ... its a little dis-hearting reality of life ...
sajid , i m feeling that my brain is getting exhausted without you ...
UMAIR
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Hi! Sharmin, thanx for answering my question, anyway, he was younger than me, all along I thought he was older, he sounded mature and knows a lot in the field of thalassemia. He was same age as my younger brother if they were both still alive today. My brother died really young too. :wah :wah
We also have a shortage of blood here in our country...... It's been difficult to buy blood ever since our government had to close private blood banks and depend on Red Cross.... now that's also one of the dilemma of thal patients here aside from expensive medicines (Desferal and Exjade)
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Oh I am really Sorry about your brother Lyanne,and do you have to wait for transfusion till the blood is available or they somehow arrange it for you on you schedualed appointment,I don't know about the statistics of thal patients in your country,but can't all thals start a campaign for that,why were private blood banks closed in the first place?
Zaini.
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Hi! Zaini. Well it's the government policy, most pple here don't trust Red Cross that much coz the blood they're selling is not completely tested and if you wanted it to be tested it's the buyer's cargo. Unlike in private blood banks they are tested completely all you have to do is to buy it. And with this they thought why not close the other blood banks and pple would depend only on Red cross, but the thing with Red cross is that if you wanted blood you have to give them a donor in exchange of the blood. And they also ask for a certain amount. Well, hospital can provide blood while you can't get blood yet but you have to replace the blood before you are discharge in the hospital. :wah
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Whoa,
It's tough going,govts are supposed to provide facilities to citizens,not deprive them of their basic needs,blood being the basic need of thals.
Be careful Lyanne,you know non screened blood can just add to thal's miseries.
Zaini.
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Hi! I know but none in the government knows that, they even had our rice iron fortified, imagine that??? Now all the fast food serves iron fortified rice, good thing is not everyone selling iron fortified rice in stores but the bad thing is I can't eat rice in fast food anymore. :wah :wah
And thanx for the reminder, Zaini. So far the last time I had my transfusion was when I got sick a year ago when my hb got really low to 4 and my hema rushed me to the hospital to have a bt and gave me injectable anti-biotic.