Thalassemia Patients and Friends

Discussion Forums => Diet, Nutrition and Supplements => Topic started by: Manal on October 15, 2008, 10:27:11 AM

Title: Supplements & Minerals Protocol for thals
Post by: Manal on October 15, 2008, 10:27:11 AM

Hi Andy

I think that we should put a standard protocol for thal patients, please check it in terms of dosage for adults and children. I know we have a detailed one but i think this is a summary for it

1- Multivitamin (with no iron and no more than 250mg of Vitamin C)
2- L-Carnitine  (5 days a week and dosage according to weight)
3- Folic Acid
4- Antioxidant (Vitamin E, Curcumin, N-Acetyle Cytosine, fermented Papaya Preparation (FPP) or all togather)
5- Magnisium, calcium, zinc, Vitamin D, Vitamin B complex ( thal need higher amounts of these more than found in multivitamins and still these are subject to regular testing)
6- HB inducers (wheatgrass, resveratrol, carao, aloe vera,....)
7- Anticogulante for Intermedias

manal

Title: Re: Supplements & Minerals Protocol for thals
Post by: Smurfette on October 15, 2008, 12:13:22 PM

Manal,

Welcome back!! And thank you for the info...really good..I am taking some of them but not all...

Nos: 3,4,5 are all in my multivitamin and also I am taking Vit E in the natural form.. 400ium twice a day..also extra milkthistle...

Plus extra calcium and Vit D...

Title: Re: Supplements & Minerals Protocol for thals
Post by: Manal on October 15, 2008, 11:07:32 PM

Thanks Smufette :hugfriend and i guess we should add IP6 along with the different chelators.

Manal

Title: Re: Supplements & Minerals Protocol for thals
Post by: Annie on October 16, 2008, 06:48:37 AM

Hello Manal,
Thanks for the information.
I'm only taking calcium and folic acid.

Title: Re: Supplements & Minerals Protocol for thals
Post by: zahra on January 05, 2014, 07:47:48 PM

Hi,
Can anyone recommend a brand of milk thistle?  How much shouald a 5 year old (19.1kg) be taking?
Will it help sn adult with slightly enlarged fatty liver with thal minor? What is the he dose for adults?Does it iinteract with other medicines?
Zahra

Title: Re: Supplements & Minerals Protocol for thals
Post by: catchR on March 11, 2014, 05:14:12 PM

Thanks for sharing this information!!

Can we list these supplements as Mandatory and Good to have? and we can probably add wheat grass as good to have. Also, can we have recommended doses wrt age/weight?