Thalassemia Patients and Friends
Discussion Forums => Thalassemia Major => Topic started by: Annie on October 16, 2008, 11:32:55 AM
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HELLO TO ALL,
I have a question
Friends m in great confusion..
which medicines a thala major should take?
I found very useful information on this site about this, but m nt taking all these medicines
I m on-
Folvite
Shelcal
Rocaltrol
Carnitor
Cardivas
Lanoxin
Envas
My doctor Suggested me Zinc and Vit C but I Thought it's not necessary for me, so I stopped These Tabs.
I'm also having the hairfall problem and i have some spots on my body now I got the reason behind it, May be beacouse of m so irregular about my Medicines.
after talking to you frns M thinking to start all useful medicines
so plz tell me What Should I start, So i will consult to my doctor.
I Want to make a proper Medicine chart for all thala friends
waiting for your posts..
Thanks
with regards
take care :wink
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Hi Anie,
This is what i think a thal major should be taking,if you are talking about supplements only.
Folic acid
Calcium
Magnesium
Vitamin D
Vitamin E
Vitamin C (when taking desferal)
Zinc
IP6 (If available)
And any kind of multivitamin which does not contain Iron.
Some one remind me if i am missing anything.
Zaini.
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Magnesium ?? for what? and is it necessary? how does it help? what is the name of tablet? and dose?
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A proper dose of calcium and magnesium helps your heart to function properly,and vitamin D helps in absorption of calcium.
I am sorry but i am also unable to find any tablet containing calcium,magnesium and vitamin D,tabs with calcium and Vitamin D are available though.Ayesha i think we'll have to bug Dr Anwar this time to get our answers :huh .
Zaini.
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I hope we get our answers Zaini :(
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Zaini, Ayesha
Osteocare ( found in the form of tablets, syrup, tablets that dissolve in water) has calcium, magnisuim, zinc and vitamin D
http://www.vitabiotics.com/osteocare/osteocare_tab_faqs.aspx?ID=16&sm=10
manal
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I will be sure to order this as well. Manal, is there a dose recommended for children? Thank you:) :hugfriend
Sharmin
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You are welcome Sharmin. I found it by coincidence and got the syrup as it is more easy to take. You will find the dose in this link
http://www.vitabiotics.com/osteocare/osteocare_liq_formula.aspx?ID=15&sm=3
hope this helps
manal
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Manal,
The problem is all international brands are not avaiable here in Pakistan,and ordering them online can be very expensive,so i guess we'll have to find some brand which is localy available.
Thanks for the link though :hugfriend.
Zaini.
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Thank you for the link Manal:) :hugfriend
I looks like a great supplement.
Sharmin
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You are welcome Sharmin :hugfriend
Zaini, it is the same here in Egypt too. Actually international brands are sold 20 times more than it real price. This supplement i found i Dubai airport pharmacy and i got as much as i can and then either i will continue it if i have any friends travelling or i will just have a local brand. the bad thing about local brands is that they are in pills form and at the same time you don't have all the 4 things togather.
Sometimes i am worried about our children's stomach getting ulcers from all these pills and syrups they are taking :wah
manal
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Manal,
The point you brought up about giving kids all these pills is valid and reason to make sure that we use good quality supplements that don't contain a lot of junk fillers, colors and artificial flavorings. I will not take any supplement without reading the label first and there should be some standard in the minds of parents when choosing supplements.
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Supplements can give ulcers? ???
Zaini.
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Zaini: check this, i found this and its available in Pakistan
http://matrixpharma.com.pk/pro_nutra_c-maxplus.htm
but It doesn't have ZINC!
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Manal,
The point you brought up about giving kids all these pills is valid and reason to make sure that we use good quality supplements that don't contain a lot of junk fillers, colors and artificial flavorings. I will not take any supplement without reading the label first and there should be some standard in the minds of parents when choosing supplements.
Hey Andy,
I know am hyping it a bit too much, but I don't have an option. I had been for my transfusion yesterday and asked the pharmacy whether I'll get Centrum Silver as its not marketed my Wyeth in India. He said yes, he could arrange for me but it would cost a bit more than what the actual cost is, as it is imported.
Now, I just want to finalize it with you that surely can I go ahead with this drug? Are you satisfied with its contents? I asked my doc too, he said as long as there in no iron in it, you can go ahead.
\peace/
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we are talking about Centrum Silver here... I found something called Centra Silver which is being sold here in Pakistan BUT it contains 9 mg iron :o
check this out : http://www.thevitamincompany.net/centraSilver.html
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and found Surbex Z by Abbot, it doesn't contain iron, magnesium and vit d :/
http://www.abbott.com.pk/Surbex.htm#c
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Ayesha,
Surbex Z contains 500 mg of Vitamin C which is not suitable for thals.Good searching though :) .And C max plus doesn't contain Vitamin D,calcium isn't absorbed properly with out Vitamin D and can lead to calcium stones.
Zaini.