Thalassemia Patients and Friends
Discussion Forums => Miscellaneous Questions => Topic started by: Annie on October 18, 2008, 10:31:18 AM
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HELLO HELLO,, :smiley :smiley
How ru frns?
m doing fine..Here is some questions for you all :whaat
Age-
Height-
Weight-
Thala type-
Chelation (Asunra/Desirox/Exjade/Desferal)-
Medicines-
Supplements-
ferritin level-
occupation-
bt duration-
last cbc reort(hb,plt,wbc)-
last S.G.P.T Report-
wheat grass(y/n)-
plz post your information..
thank you
bye bye take care
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Hi Anie,
The following stats are about my son "little A"
Age- 10
Height- 129.5 cm
Weight- 27 kg
Thala type- thalassemia major
Chelation (Asunra/Desirox/Exjade/Desferal)- Exjade/desferal
Medicines-
Supplements- calcium/magnesium (will be starting zinc soon), IP6, vitamin C (with chelation) 250 IU, omega 3-6-9, will resume vit e, vit resume folic acid, L-carnitine (he was off of these supplements for his treatment this summer).
ferritin level- 1300
occupation- student (5th grade)
bt duration- 4 - 5 weeks
last cbc reort(hb,plt,wbc)- will post
last S.G.P.T Report-
wheat grass(y/n)- yes
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Hi Anie,
Following is mine
Age: 24
Height: 4ft 10"
Weight: 42kg
Thal: Thal major
Chelation: Desferal/ L1
Medicines: hormone and thyroid
Supplements: Calcium, vit D, E, C (with dfo), folic acid, Magnesium,
Ferritin 1900
Occupation: Student in BA Mass Communication yr 3
BT: every 3-4 weeks two units
last cbc report: somewhere arnd, too lazy to search for it.. heheheh
last S.G.P.T report too
Wheat grass: No
btw, where is ures?
tc and love always..
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hello,
how ru all?Thanx 4d post.
Hey Sharmin How's "Little A"?
Plz Tell him I'm waiting for his post..
Maako next time no laziness plz give me your update..will b waiting
and about my
m so stupid,here is mine..
Age-26
Height-5ft 3.7"
Weight-47
Thal- major
Chelation-Asunra
Medicines-Carnitor, Cardivas, Lanoxin, Envas..
Supplements-Calcium, Folic acid.(going to ask my doc. about Zinc, Vit C & E)
Ferritin-710
Occupation-Graphic Designer
BT-IN 15 days(1 unit)
Last cbc and S.G.P.T reports-I forgot (sorry)will tell you about next Reports
Wheat Grass-Sometimes(m So irregular)
Anywaz wat Happnd to my other frns waiting 4 ur reply
bye
Take care
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Age- 21
Height- 5 feet
Weight- 40
Thala type- Thal Maj
Chelation (Asunra/Desirox/Exjade/Desferal)- Defferiprone + desferal
Medicines- Ferriprox ( defferiprone) , Aldectone ,Zeffix
Supplements- Vit-D , Vit-E , Zinc syrup
ferritin level- 2902
occupation- None
bt duration- 14 Days
last cbc reort(hb,plt,wbc)- 8.2 , no platelet report , 14.2 (normal range 4-10 )
last S.G.P.T Report- 100 ( normal range 0-55)
wheat grass(y/n)- No
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Hi,
My son's profile is
Age: 6.1
Height: 112cm (in July 2008)
Weight: 18 (in july 2008 )
Thala type: thal intermedia
Chelation : none
Medicines: multivitamin and minerals (condensed) + l-carnatine + folic + carao + osteocare
Supplements:
ferritin level: 64
occupation: Primary One :biggrin
bt duration:
last cbc reort(hb,plt,wbc): (6.6 - 380,000 - 10,000 ) in October
last S.G.P.T Report: normal
wheat grass(y/n) : according to availability -- on and off
manal
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Hi Anie,
here's mine
Age: 31
Ht.: 5 ft.
Wt.: 42 kg
Thal type : Beta Thalassemia Major
chelation: Desferal and Exjade
Medicine: Folic Acid 5mg, B complex, Vit. E and L- Carnatine
Ferritin Level:1000+( no exact result coz we don't have the kind of test that tells the exact amt)
Occupation: business woman :wink
Bt duration: I've stopped years ago
last cbc report:96 - 240 - 21.5
last S.G.P.T.: creatine 54.20
wheatgrass: never taken :biggrin
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About my Daughter,
Age: 7 years 8 months
Height: 120 cms
Weight: 28 kg
Thal type: transfusion dependent intermedia
Chelation: Desferal + L1
Supplements: Folic acid,carao,wheat grass,vitamin E,Zinc,Calcium,Vitamin D,and a multivitamin
Ferritin: 1259
BT Duration: 3-4 weeks
Zaini.
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Age: 5 years 3 months
Height:
Weight: 17.2kg
Thala type: Major
Chelation (Asunra/Desirox/Exjade/Desferal): Exjade since 2 years old (hospital stop supply)
No choice, but have to start using started desferal a month ago.
Medicines:
Supplements: Folic acid 5mg,Vitamin C 50 mg,Calcium 150mg,Multivitatmin-,D3,B1,B2,B6,B12,E,Nicontinamide,
Cod live syrup 5ml
Ferritin level: 1080 on September '2008
Occupation- Student
Bt duration- 28 days 400mls (will shorten to maintain pre above 10.5)
Last cbc reort(hb,plt,wbc)- What is this??
Last S.G.P.T Report- I do not know is it important to know?
Wheat grass(y/n)- Never take ( Is this importnat??)
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Hello Kinny,
How are you?
Welcome to the site..and thanx for the information.
Kinny hb, plt,and wbc is the part of cbc report
hb means haemoglobin,plt is for blood platelets,and wbc is white blood cells..
and S.G.P.T. belongs to liver function(m right Andy?)
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i m not Andy but i want to say that you are right ...
C.B.C = Complete Blood Count
Hb = Haemoglobin
Plt = Platelets
W.B.C = White Blood Cells
L.F.T = Liver Function Test
S.G.P.T. = Serum glutamic pyruvic transaminase - a liver function test
LFT Cover's the S.G.P.T test as well ...
http://wiki.answers.com/Q/What_means_sgpt-_alt_in_the_comprehensive_metabolic_panel
i m pretty sure that its the correct information, but if you think, its not, then Please Correct me Andy if i m wrong ... ..
Best Regards
Take Care
Umair
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HELLO
thanx Nice frnd...
i know you are not Andy but You are doing great job for the site..
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:agree :agree
You are very valuable to us Umair :hugfriend
Sharmin
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HI Anie & Sharmin ,
Thanx for the encouragement .
i know its going out of topic of this Thread,
soo , a short message for this time ....
Best Regards
Take Care
Umair
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Hi Anie
The following is for my son Mohamed
Age:12years and7 months
Height:137cm
Weight:36kg
Thal type:well,he has Sickle Cell major
Chelation:Desferal..1500mg/6 nights
Medicine:for asthma:ventolin,seretide and singulair(nothing for S C)
Supp:vitamin C ..1000mg /day
Ferritin:1530
Occ:student
BT; every 4 weeks
Last results:HB 112,PTL:NOT SURE,WBD26.7
Last SGPT:not sure
Wheat Grass: no
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Age- 21.5
Height- 1m61
Weight 46
Thala type- well, I got pyruvate kinase deficiency (pk).
Chelation (Asunra/Desirox/Exjade/Desferal)- Exjade, 625 mg. Mine target is 2000mg
Medicines for allergic stuff, but i refused to take it. Nowadays I am fine.
Supplements- Vit D (0.25 microgram) and folic acid (prescribe by doc) I also take calcium, magnesium with zinc tablets (with bamboo).
ferritin level- 2485
occupation- Student at college and I am studying law
bt duration- 3 weeks
last cbc reort(hb,plt,wbc)- i will hear them tomorrow.
last S.G.P.T Report- What's that?
wheat grass(y/n)- No
Update:
ferritin level: 2501 :(
hb: 5.0 mmol/l (after 4 weeks! :) )
the printer was out of order so I don't have copies of new results. I only hear this 2 results.
SGPT. the last one is blocked, doc can only see this, the other is ok but I never hear what 'ok' is....
There are 4 weeks between those 2 ferritin levels, so it's quite good if your realize how much iron one bag of blood gives you (as a present). Pretty sunny conclusion, isn't it?
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Hi Dore ,
last S.G.P.T Report- What's that?
please read this post of this thread ...
http://www.thalassemiapatientsandfriends.com/index.php?topic=2188.msg20162#msg20162
Take Care
Umair