Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: Sharmin on October 21, 2008, 04:20:33 AM

Title: Woman discusses her thalassemia on Good Day New York
Post by: Sharmin on October 21, 2008, 04:20:33 AM

Woman talks about her thalassemia and need for blood to survive on GOOD DAY NEW YORK:

http://www.myfoxny.com/myfox/pages/InsideFox/Detail?contentId=7137873&version=1&locale=EN-US&layoutCode=VSTY&pageId=5.2.1

Title: Re: Woman discusses her thalassemia on Good Day New York
Post by: Manal on October 21, 2008, 07:56:54 AM

Sharmin, thanks for sharing.

We need to have awarness in the countries like US who have scientists and  funds to cure thal (it is a fact that most effective cures had come from first world countries, either for high technologhy or politics or manipulation of pharmacutical companies, actually i don't care for reasons but it is a fact) I say this because the way the anchor was introducing the thal patient saying that she has a genetic disorder gave me the impression that she had never heard of the word '' THALASSEMIA''  :nope :sadno

We need to be heard
 :hysterical :hysterical
manal

Title: Re: Woman discusses her thalassemia on Good Day New York
Post by: Lyanne on October 21, 2008, 08:21:32 AM

      :exactly I agree Manal ....... very few knows about the disorder and sad to say very few knows the do 's and dont's of the disorders....... and many are still confused to what  is really thalassemia........ :wah