Thalassemia Patients and Friends
Discussion Forums => Iron Chelation Corner => Topic started by: Andy Battaglia on November 02, 2008, 07:11:55 PM
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It was my pleasure to meet Meysam Seyyedifar of OSVAH Pharmaceutical Company at the Singapore conference. On their behalf, I would like to announce their new version of Deferasirox, Osveral® to our group. Osveral® is the equivalent of Exjade and has gone through physicochemical tests and shows equality with Exjade. (Once a drug is introduced, generic equivalents do not have to undergo the same testing on patients as the original drug, but rather, chemical equality is shown. Patients can expect the same results once chemical equality has been proven). Osveral is an oral chelator and is taken in the same dosages as Exjade in the same manner.
This is very good news for patients in Iran and elsewhere, as it offers a new opportunity to thalassemia clinics throughout the region, as the makers of Osveral are very willing to offer their lower priced alternative to Exjade for export to other countries. Medical providers interested in learning more about providing Osveral to their patients should contact the company.
· OSVAH Pharmaceutical Company
· +982188561269
· www.osvahpharma.com
For more information see the attached file. Efficacy and safety of Osveral® (Deferasirox) in Iranian Thalassemic Patients with transfusional iron overload.
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It's good to see local companies trying to help patients and in a way competing with multi nationals,i wish i could say the same for my country,Andy any idea about the price,website has no information about it.
Zaini.
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Congratulations, i am happy that new brands are coming so it can reach everyone.
As for the price, i emailed them Zaini and will update you when i receive a reply
manal
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The pricing will be competitive with Asunra.
The price of Exjade [Asunra] in India & Pakistan is about 10$ for each gram & the price of Desirox (cipla's Defrerasirox) is about 2-3 $ for each gram, Osveral's price is much less than Exjade price in Middle East (Exjade price is more than 30$ per gram).
We can provide it with 4-8 $ per gram, of course this range will be affected by order amount, registration fees & etc.
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Thanks Andy, For the information,i am still waiting for my daughter's ferritin to go below 1000,then i will start Deferasirox,currently it's 1259 ng/dl.
Zaini.
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WOW .. its a COOOOL Update/NEWS .... Thanx Andy For The Update/NEWS..... :ty :thankyou
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Andy,
Are they also making generic desferal? I heard there is this Iranian desferal available in the market,made by an iranian company.
Zaini.
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Zaini,
I will try to find out if desferal can be exported from Iran to Pakistan.
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A big thanks Andy,
A friend of my husband told him that it might be available in the market in a few days,he wasn't sure though,i didn't know that iranian pharmaceutical companies were making desferal.
Getting Novartis's desferal is becoming a bit hard,it's not easily available,don't know why. ???
Zaini.
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Hi Zaini ,
Iranian Desferal , i think these r the desferal of Novartis, Iran. and its smugled from Iran, to Pakistan , these are cheap in price and available in the markets to a long time .. i heard abt these desferal desferal a long time ago ... i heard that these desferal doesn't work well bcoze these are smugled and dont handled with the care and dont followed the storage related instruction during the smugling thats why many desferal expired due to heat and other reasons and come's useless ....
Take Care
Umair
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Novartis will start playing game soon, desferal will be disappeared, because they want people to buy asunra, idiots they are and idiot they will remain!
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Umair,
I am not talking about desferal which is smuggled from Iran,although we were using this desferal,and there are no efficacy issues,we've been using this desferal since long time,but right now it's also not available in the market.I was actually talking about iranian made desferal,desferal made by iranian pharmaceutical companies.
Ayesha,
That may be the case,i desperately want my daughter's ferritin below 1000,so i can start Asunra,but the point that worries me is that what if my daughter couldn't tolerate Asunra ??? what would i do then?
Zaini.
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Zaini,
Do you not have desferal at all right now? I am still confused about why your doctor wants Zainab's ferritin below 1000 to begin using Exjade. My son started Exjade when his iron levels were 2880.
I think that exjade should be started at 20mg/kg - and if well tolerated (this can be evaluated by blood& urine tests as well as GI issues and skin related issues) then it can be increased to 30mg/kg. The patient should be well monitored - every 3 weeks a metabolic panel and urine test should be done. Under the strict observation of doctors - 7 days of Exjade and 3 days of desferal (12hours) can be very effective in keeping iron levels low. Maybe you can talk to your doctor about this, or have your doctor contact Drs in the US who are using this combination therapy.
Keep us posted on the availability of desferal,
Sharmin
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Keep us posted on the availability of desferal,
yes please do Zaini and i am assuming that if you start Asunra, you will stop the L1/Kelfer???
manal
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Sharmin and Manal :hugfriend
Good news,we got desferal today,since 1 week we had no desferal,she was on Ferriprox/L1 alone,it's not the doctor,it was my idea to start Asunra once her levels reach 1000,as i don't intend to use Asunra and desferal both at the same time,because i know that doctors here won't allow it,and if God forbid anything will wrong,i'll be held responsible,Novartis has told them not to use both drugs at the same time and now it's like a verdict for them.
Once we start Asunra,which i assume will be in a couple of months,we'll definitely stop L1.
Zaini.
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Hello all
Umair is right ...
about one month ago I was have Iranian Desferal and it was not work, now I use the Switzerland Desferal and it's the best one .
Best Regards
Qiji
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How do you know it didn't work?
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the urine colare didn't change brcoze that I know that didn't work. coze my doctor say to me if urine colare didn't change that mean desferal didn't work.
and I didn't say all iranian desferal didn't work my desferal I was take it from hospital may be of the bad storing they didn't work may be from other cause, and I say that from my test.
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I am sorry to differ but we have been using this desferal since years and we never found it not working.
Zaini.
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I agree with Zaini!, we have been using! and its works :)
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Are counterfeit drugs a problem in Pakistan?
Qiji, did the Iraninan desferal you used have packaging that appeared to be legitimate?
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The desferal i am talking about,doesn't come in packaging,it's the desferal by Novartis,probably sold by Novartis in Iran,but smuggled across the border to Pakistan through some locals may be! i am not sure,but there is a huge difference in price,and since it's effective,so we don't have any complains.
Zaini.
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yes, it was packaging, and I take it from hospital, that's mean it's legitimate.
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Hi Buddies ,
Iranian Desferal , i think these r the desferal of Novartis, Iran. and its smugled from Iran, to Pakistan , these are cheap in price and available in the markets to a long time .. i heard abt these desferal desferal a long time ago ... i heard that these desferal doesn't work well bcoze these are smugled and dont handled with the care and dont followed the storage related instruction during the smugling thats why many desferal expired due to heat and other reasons and come's useless ....
it doesn't mean all iranian desferal (smugled ) are useless or all iranian desferal (smugled ) will work promisingly ... it mean's in some cases where they don't handleed desfearl with care or they don't follow's the instructions , that lot of desferal could expire before its expiry date ... it doesn't mean that every lot of iranian desferal will definately expire before the expir date ...... this rule completely apply's on local and legaly imported desferal as well ... if you will not handle legaly imported desferal or local desferal then those desferal will alos expire due to lack , of care and lack bcoze of not following the storage instructions & conditions. thats wat i want to say ..... i mentioned abt iranian desferal , bcoze when somthing is being imported illegaly by hidding somewhere in truck and other transport where there are conditons r not suitable for desferal storage ( wat usualy happened ) , there is huge & more chances of affecting its quality and effectiveness than others ...
i hope i cleared my point of view and wat i realy want to say ....
Best Regards
Take Care
Umair