Thalassemia Patients and Friends
Discussion Forums => The Spotlight => Topic started by: HaIkEr77 on November 05, 2008, 01:58:32 PM
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Hai.. I’m thal from Malaysia (sabah).. right now i'm using both desferal and L1.. so far so good, my only problem is my knee join, sometime its hurt but sometimes the pain just seems to disappear .. I just find out this website.. fantastic, I learn a lot about desferal, L1 what supplement should I take.. wow u guy are amazing.. and andy u are my inspiration.. I just want to say thanks 4 all the info.. u guy are the great.. :hugfriend
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Welcome HaIkEr77
We look forward to seeing your posts!
Sharmin
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Hello HaIkEr77,
:welcomewagon on the forum,keep posting and sharing.
Zaini.
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hii welcome ..its soo good to c all the thals here i regret y didnt i was here b4 ???...but so far so good..welcome to the club
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Hi HaIkEr77 ( Sabah )
:welcome to the Family , i hope you will find all answer of concerns and you will find this site very useful , as i . soo keep visiting , keep reading the threads , keep posting and dont hesitate to ask , wat ever you want to ask and wat ever you want to kow about .........
Best Regards
Take Care
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thanks nice friend, sarah, ZAINI and sharmin.. nice to meet u all.. :hugfriend
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Hi HaIkEr77 ,
Same Here ( nice to meet you too )...
Umair
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yeah v all r very frndly ppl for real ...dnt think that v r only being nice to u v r actually very nice n cool ppl :biggrin
nyway how r u n howz life treating u i smtimes feel that here ppl r very fourmal i mean to say that as if v r treating thals as they r sm kind of ppl from another planet...v should treat every body like normal if u know wt i mean n most important stop feeling sorry for each oder ...
stay cool but dnt freeze....if i said anything rong the apologies r mine but that the way i am i can ne a bit strght fwd..but i thot to let u know all about how i feel :wink
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Exactly , i dont know about the others but i m COOL, almost freezed and shivering here is my pic .
(http://www.anitasplace.com/holiday/xmas/graphics/ani-shivering-snowman.gif)
:rotfl :rotfl :rotfl :rotfl :biggrin :biggrin :grin :grin
Umair
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hahahaahaha :rotfl..i know ur very nice mr nice frnd laikin can i know ur real name..n now i have no doudt that ur really cool ..lol
:biggrin..nyway wt r u upto these days oder then ur thalaseemic activities ?
im a very busy person to be honest i have been in Pakistan all my life like i was 7 wen i came to Pakistan from Qatar n i basically love n adore my country Pakistan..n now im married in England n miss Pakistan every day :wah n my frnds so i make sure i take sm time our from my frnds n keep in touch with them thru emails n stuff...like i do talk to all on PH but cmon internet is alot fun :wink
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thanks sarah and nice friend. . i know.. everyone here are very fridly.. that's why i join this forum.. :biggrin
i hope i can share all the question that i always want to ask, especially to the most experience thal here.. hehe..
its like i have found a new world in here. . full with hope and promise. . . :clap :veil
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@ HaIkEr77
Hi , your welcome .. please dont wait & hesitate to ask and anything you want to ask ...
we always welcome the questions ....
@ Sarah
hummm ... a little late to reply na??.. Thanx for accepting that i m cool hahhahha ... my real name is Umair for more details you can visit my profile, just click on my nickname to do that . nothing just trying to take controle of my ferritin levels then i will join my father in his business as they want to me ... yeah i agree, comunicate on interntet is better than the phone and it has alot of fun to chat on internet than thetalk on phone ...
Best Regards
Take Care
Umair
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yeah u should join ur dad in business n inshallah every thing will be fine with ur firriten .. :wink my sons treatment is just going on ..he is on regular checkups now. having infection control medicine after every oder week ..he is much better after BMT but atill needs blood smtimes ..
as his his body is still adjusting to the new bone marrow..inshallah he will get der..:)
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yeah u should join ur dad in business n inshallah every thing will be fine with ur firriten .. :wink my sons treatment is just going on ..he is on regular checkups now. having infection control medicine after every oder week ..he is much better after BMT but atill needs blood smtimes ..
as his his body is still adjusting to the new bone marrow..inshallah he will get der..:)
Why would some one need blood after BMT? Anyone heard that before,was that the case with Abdul wahab?Or Omega's daughter?
Zaini.
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one needs blood after BMT for a while bcoz doctore here in England say that it takes a while for the body to adjust with new cells so smtimes sm cells keep going up n down n they say that its totally normal , it takes abt 6 to 10 months for the body to settle down with new cells. i dnt know the oder ppl u vr talking abt:)
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Hi Zaini
My daughter does not need any blood transfusion since the marrow engrafted in May 2006.
Thank you.
omega
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hello HaIkEr77,
welcome to his site :biggrin
I am from malaysia too.Kedah to be exact.
Good to see that this site is growing bigger by the day. i'm sure that you will find this site to be so much helpful..Some of the topics can even make you feel good about yourself and amazes you because the expiriences are so amazingly the same as yours eventhough we are all came from a lot of different places :wink
So...selamat berkenalan dan rajin=rajinlah bercerita ok?
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Welcome welcome HaIkEr77!,
You've made the right choice? This group does help a lot! By any means please ask anything on thalassemia, we have a group of experts in here! but unfortunately i'm not one of them yet! :biggrin
Once again, Welcome! Jangan segan-segan ba!
:biggrin
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Hellooo.. NUR and AL it’s good to hear someone from Malaysia here.. :grin