Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: jatinder on November 30, 2008, 10:52:44 AM

Title: i m happy
Post by: jatinder on November 30, 2008, 10:52:44 AM

hey guys and gals,

i am happy bcs  after a gr8 mission of taking desefrol :nurse and ferriporox regularly  my ferriten went down from 10424 to 8965
so now my ferriten is 8965

 :yay :yaaaaaay

Title: Re: i m happy
Post by: nice friend on November 30, 2008, 12:42:59 PM

Thats Great Jatin ,
its realy good to hear thsi ..  keep the good work up buddy .. hope you will see more amazing results realy soon ...  Way  To Gooo ,, Hurrayee .. :yay :yay

Umair

Title: Re: i m happy
Post by: Zaini on November 30, 2008, 03:26:35 PM

It's good to see your ferritin level is going down Jatinder :) ,but at your ferritin levels,you need to do aggressive chelation,how any times a week do you take desferal?

Zaini.

Title: Re: i m happy
Post by: stacey_lou on November 30, 2008, 04:48:10 PM

Congratulations Jatinder, that's fantastic news & I'm really pleased for you. Keep it all up and may you have even more positive results really soon.   :yes
Best wishes.

~x~

Title: Re: i m happy
Post by: jatinder on November 30, 2008, 05:05:23 PM

thanks zaini  nice friend(umair) and  stacy lu  for your kind replies

well zaini i m taking 4-5 times a week @ 6-8 hours

and taking ferriprox at the dose of 7 tabs per day

rgrds
jatinder kewlani

Title: Re: i m happy
Post by: Manal on November 30, 2008, 05:06:39 PM

Way to goooooooooo Jatinder, i am sooooooo happy to know such good news. All you need is determination and i think that it will help a lot if you take your desferal IV too , it will help lowering your ferritin really fast

Conratulations :hugfriend

manal

Title: Re: i m happy
Post by: Canadian_Family on November 30, 2008, 05:13:04 PM

This is great news, please keep working on it.

Title: Re: i m happy
Post by: Andy Battaglia on November 30, 2008, 05:19:36 PM

Jatinder, whenever it is possible, take the desferal for a longer period. Minimum 12 hours would help a lot, even if only a couple times each week. You're making good progress but if you increase the desferal duration, you will see an even more rapid drop in ferritin levels.

Title: Re: i m happy
Post by: nice friend on November 30, 2008, 08:16:53 PM

 :exactly Jatin , i :agree to Andy .... you have to increase your chelation time .. increasing chelation is not difficult , its easy ... only prob is to take pump with you ... and solutiion is , to use pump on your arm or if you are using pump on ur tummy then put the pump in your side pocket or in the pocket near knees ... your this one period of chelation is too short ,  your results are good n encouraginn but it could be more good if you increase the duration ... i used to take 3 vial in18-21 hours and my results are showing the  super fast rate of decreasing SF level ... soo i will sugest you to increass the time of desferal to take the most benefit of it .... i hope you got wat i want to say .. and i hope that you will at-least once try to follow these advices

Best Regards
Take Care
Umair

Title: Re: i m happy
Post by: Sharmin on November 30, 2008, 08:21:58 PM

Jatinder,

I am happy to hear that your ferritin level is decreasing - but I must also agree with Andy and Umair that you need to increase your chelation time.  I sometimes thing that getting around the clock IV desferal for a few days can be a great help - even if you do it a few days a week. 

You should be taking desferal at the very least 12 hours a day - 3 to 7 days a week.  If you can do it 7 days a week for a while that would be ideal.  Once your iron levels come down you can reduce that to 5 days a week.  Desferal is not effective if it is used for less than 10 hours.  Your ferritin is still keeping you in the danger zone.  Please be sure to be treated for any fever that you ever experience because fever with ferritin that high can be very very dangerous. 

Please see the following thread for information on chelation, duration and effectiveness:

http://www.thalassemiapatientsandfriends.com/index.php?topic=2335.0

We look forward to hearing that your ferritin has dropped further,  I am very glad that your ferritin has dropped so much!

Sharmin

Title: Re: i m happy
Post by: jatinder on December 01, 2008, 10:26:49 AM

thankx,
ANDY, CANADIAN FAMILY, SHARMIN AND NICE FRIEND(UMAIR) ONCE AGAIN.

THANKX FOR YOUR KIND REPLIES AND KIND INFORMATION 

YUP I PROMISE THAT I WILL DO MY LEVEL BEST AND OFFCOURSE YOU WILL HEAR A GOOD NEWS FROM ME EARLY EARLY.


RGRDS
JATINDER KEWLANI