Thalassemia Patients and Friends

Discussion Forums => The Spotlight => Topic started by: ye on February 17, 2009, 02:22:16 PM

Title: HI peepz! :D
Post by: ye on February 17, 2009, 02:22:16 PM

hi to all! im kinda new here.
im kaye from the philippines. dignosed with beta thal major, 19 years old (turning 20 in a few months). i underwent splenectomy in 1999 but still having monthly transfusions (actually its every 45 days more or less), 2 units rbc per transfusion. im currently in my third year as a college student taking up bs applied physics.  :thumbsup

Title: Re: HI peepz! :D
Post by: Zaini on February 17, 2009, 03:45:44 PM

Hello Kaye,

 :welcome2 We are glad to have you here,please feel free to ask if you have any questions in mind and do tell us more about your self i.e how are you maintaining your ferritin levels ? are you taking any kind of supplements? etc.

Zaini.

Title: Re: HI peepz! :D
Post by: anjjela on February 17, 2009, 05:32:13 PM

Hello Kaye

 :hithere

welcome to thalpal.. :welcomewagon
nice to know a bit about u...n applied physics?? sounds tough huh!! :shy
hope u find the site helpful as its helping loads of us  :thumbs

love n regards
angela

Title: Re: HI peepz! :D
Post by: nice friend on February 17, 2009, 08:47:07 PM

Hi Kaye ,
 :welcome2 , hope that you will find this forum very informative and its members very caring encouraging and helping ... best of luck  :goodluck .. keep posting and stay in-touch with us ...

Best Regards
Take Care
Umair

Title: Re: HI peepz! :D
Post by: Sharmin on February 17, 2009, 09:07:32 PM

Dear Kaye,

Welcome to the group, it has been a pleasure getting to know you from your posts.  It seems like you are on a very good transfusion schedule - 45 days is a great interval between transfusions.  It is also nice to know that you are studying and doing well.  It makes my day to see a young person like yourself looking after your health and asking questions that will allow you to take good care of yourself. 

I hope that you keeping your iron levels low and that your are taking supplements to protect yourself from iron damage. 

Best of luck,

Sharmin

Title: Re: HI peepz! :D
Post by: Krissi on March 14, 2009, 07:30:30 PM

Welcome!! :) I am 20 with Beta thal major as well! :) I get transfusions every 8 weeks. If you ever want to talk about trying to be in college with this and dealing with stress feel free to message me! :)

Title: Re: HI peepz! :D
Post by: Zaini on March 14, 2009, 08:05:13 PM

Krissi,

Transfusion after 8 weeks is great,what is your pre transfusion hb usually?

Zaini.

Title: Re: HI peepz! :D
Post by: Krissi on March 20, 2009, 03:48:29 AM

I'm not sure, I will ask. I just got diagnosed so I am new with all this lol

Title: Re: HI peepz! :D
Post by: Sharmin on March 20, 2009, 04:42:46 AM

Hi Krissi,

That is quite amazing - that you have just been diagnosed with thal major at your age.  Most thal patients are diagnosed as infants - and usually require transfusions by 1 year of age.  Your case is quite different - could you have been a thal intermedia who suddenly required transfusions?  I am glad that you were diagnosed and that you are getting the help that you need :)

Sharmin

Title: Re: HI peepz! :D
Post by: Lyanne on March 20, 2009, 01:17:30 PM

   Hi Kaye.....  :welcome2 i'm glad another kababayan found out about this forum where you from the Philippines? May you  find this helpful and educational..... How's your chelation therapy, so far? tell us more about you and keep us posted....... :hugfriend