Title: Re: Manal Will be Away for a Bit
Post by: nice friend on September 02, 2009, 08:46:19 AM
Manal, i m sorry to hear this .. i hope that you'll come out of this painful condition, very soon .... (http://images.flexy8.com/categories/dailycomments/getwellsoon/images/6.jpg)
Lots of Best Wishes & BesT RegarDs Take Care Umair
Title: Re: Manal Will be Away for a Bit
Post by: jade on September 02, 2009, 01:01:52 PM
Manal I am so sorry to hear this. I hope you get well soon. Jade
Title: Re: Manal Will be Away for a Bit
Post by: Dori on September 02, 2009, 01:13:22 PM
Yakkes!!! Kidney stones are terrible! :( I hope those stones will pass soon and that she soon feels better.
:getwell :getwell :getwell
Warmest wishes, Dore
Title: Re: Manal Will be Away for a Bit
Post by: Canadian_Family on September 02, 2009, 01:41:49 PM
Get well soon Manal, we are all praying for you.
Regards.
Title: Re: Manal Will be Away for a Bit
Post by: Emby on September 02, 2009, 09:39:02 PM
manal, praying that you'll get well soon...
emby
Title: Re: Manal Will be Away for a Bit
Post by: Lena on September 03, 2009, 05:01:05 AM
My best wishes to Manal for a speedy recovery,
Lena.
Title: Re: Manal Will be Away for a Bit
Post by: Madhavi on September 03, 2009, 07:26:29 AM
Sending Manal tons of good wishes and hoping that she recovers soon.... Madhavi
Title: Re: Manal Will be Away for a Bit
Post by: jade on September 06, 2009, 08:01:47 AM
Any news of Manal?
Title: Re: Manal Will be Away for a Bit
Post by: Sharmin on September 06, 2009, 04:41:16 PM
Missing you Manal,
Hope that you are feeling better and that you will be back soon. Hope that they kids are doing well, sending my love,
Sharmin
Title: Re: Manal Will be Away for a Bit
Post by: Zaini on September 12, 2009, 08:12:43 AM
Manal,
Its been long :( i hope you are feeling better now, :flowers .
Zaini.
Title: Re: Manal Will be Away for a Bit
Post by: Sharmin on September 13, 2009, 02:19:35 PM
Quote
Manal,
Its been long i hope you are feeling better now, .
Zaini.
I was thinking the same thing. It's been so long, I hope that you are feeling better. Missing you :(
Sharmin
Title: Re: Manal Will be Away for a Bit
Post by: Lyanne on September 14, 2009, 02:56:39 AM
Wishing Manal, to have a speedy recovery! just a week ago a cousin of mine had the same problem but the doctor's in Manila suggested to have it remove via shockwave.
Title: Re: Manal Will be Away for a Bit
Post by: Manal on September 15, 2009, 03:07:51 AM
Thank you sooooooo much my dear friends for your prayers and thoughts. :hugfriend :hugfriend
It has been a horrible expierence. I can tell that kidney stones is the pain of all pains, nothing can make it stops. Though i had the same expierence more than 10 years ago but this time it was much worse,may be because the stone was bigger but finally (thanks God) i got rid of it and i am fien now with no pains. I just have to drink tons of water (i have to learn to do so) cause it seems that it my body nature to make these stones
Anyway, thank you deep from my heart for everything. I terribly missed thalpal and i have never been away for such long time. I guess i missed a lot of posts that i will try to catch up with
LOVE YOU ALL :heartred :heartred :heartred :heartred :heartred :heartred :heartred
Manal
Title: Re: Manal Will be Away for a Bit
Post by: Sharmin on September 15, 2009, 04:49:09 AM
Welcome back Manal,
I am soooooo glad that you are better now and that you are back on thalpal - we all missed you so much!
Sharmin
Title: Re: Manal Will be Away for a Bit
Post by: Manal on September 15, 2009, 05:02:32 AM
Thank you dear, it feels like back to home. :grouphug :lovethissite :lovethissite :lovethissite
manal
Title: Re: Manal Will be Away for a Bit
Post by: Zaini on September 15, 2009, 08:33:13 AM
Yay!! Manal is back :biggrin
Welcome back dear friend and you were terribly missed,i even thought of calling you but didn't know if you were home or not.Glad to have you back :bighug
Zaini.
Title: Re: Manal Will be Away for a Bit
Post by: nice friend on September 15, 2009, 09:59:59 AM
Welcome Back Manal Sis, (http://i51.photobucket.com/albums/f366/Carlito4000/welcome_back.gif) we missed you alot... :)
Umair
Title: Re: Manal Will be Away for a Bit
Post by: Manal on September 15, 2009, 10:46:12 AM
Thank you dear Zaini, i missed you too soooooo much. Thank you Zaini for your concern and prayers, they mean a lot :hugfriend :hugfriend
Umair Thanks my friend for the warm welcome, missed your sense of humor, hope you are more than great :hugfriend
manal
Title: Re: Manal Will be Away for a Bit
Post by: Andy Battaglia on September 15, 2009, 03:09:10 PM
Welcome back, my friend. I'm happy to hear you're feeling better. We really missed you around here.
Title: Re: Manal Will be Away for a Bit
Post by: Lena on September 15, 2009, 03:34:20 PM
I have also suffered the kidney pain--I know what it's like,it's really awful--hope everything is past and gone. Welcome back, Manal.
Lena.
Title: Re: Manal Will be Away for a Bit
Post by: Manal on September 15, 2009, 04:18:23 PM
Andy, Thanks a lot my dear friend, i missd you too and all my friends here. Hope everything is going well by your side :hugfriend
Lena
Yes Lena, it is past and gone hopefully forever, but we have to remind both of us to drink water as much as possible. Missed you dear :hugfriend
manal
Title: Re: Manal Will be Away for a Bit
Post by: jade on September 16, 2009, 01:19:56 AM
Welcome back Manal
we all missed you here. It is good to know that you are better now. take care Jade
Title: Re: Manal Will be Away for a Bit
Post by: Manal on September 16, 2009, 02:22:41 AM
Thanks Jade for your welcome :hugfriend, i missed you too. Hope you and the kids are well.
manal
Title: Re: Manal Will be Away for a Bit
Post by: Dori on September 16, 2009, 03:18:16 PM
Welcome Back!!!!!
Title: Re: Manal Will be Away for a Bit
Post by: Manal on September 16, 2009, 03:25:40 PM
Thank you Dore so much, :hugfriend I Have just read about your big achievment with the ferritin, Congratulations my friend :clap :clap :yahoo :yahoo
manal
Title: Re: Manal Will be Away for a Bit
Post by: jade on October 09, 2009, 03:14:38 PM
Hi Manal
I hope that you are ok. How are our little champion and little lady faring?
It has been some time since I last heard from you. Is there still H1N1 in Egypt?
Take care jade
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 10, 2009, 01:41:12 AM
Thanks Jade :hugfriend i am fine now and the kids are back to school. But unfortunatly my son'r Hb has dropped after the summer cough and infections. It has reached 7.8 with the hydroxyurea but it dropped to 6.6 again last month in addition to a zinc defiency which i am working now to correct.
This Zinc deficency is driving me crazy because as soon as i correct it, it goes down again :wah :wah
As for the H1N1, actually it is still there. Until today, 1007 people (with 475 people coming from abroad and the rest locally) has been infected and only 3 have died. Now there is more worry cause school has started and the government is afraid it will be more spread especially in December and January. They are also afraid that the virus would mutate with the bird flu which is there in some villages
As for me i am very concerened about my son's immunity now. I am trying to work on strengthing it by natural ways as much as i can because i believe he is a critical case cause he does not eat that well, nor able to take viamin C in big amounts, nor he has a high HB as with thal majors since he is not transfusing and in addition to all of this he is on hydroxyurea and is unable to take the flu shot cause it is a live vaccine. So all of the above just scares me what if he gets infected :wah :wah
So that all about me these days, hope things become much better :-\
manal
Title: Re: Manal Will be Away for a Bit
Post by: jade on October 10, 2009, 07:18:20 AM
Hi Manal
I am sorry to hear that Ahmad is having these problems. As you have said the hb went down because of the infections, now that he is better, it will inshalla increase once more.
For the zinc, maybe you should continuously give him a maintenance dose. I mean after correcting the deficiency may be you should give him a lower daily dose. What does the doctor say about this?
For the H1N1, when you leave him at school, peep into his class and have a look at the other kids, or talk to the teacher and tell him/her to send Ahmed back home if there are other students having flu in the same class. For boosting immunity, I once heard a doctor say that zinc as well as yoghurt should be given to children. To protect oneself against H1N1, it is being advised to eat lots of fruits and vegetables. I understand what you are going through, I was equally scared. Avoid going to crowded places and give the children hand sanitiser to use at school especially before eating.
I really hope that things get better.
Jade
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 10, 2009, 11:19:54 AM
Thanks Jade :hugfriend
Actually i used to give him the Osteocare which had zinc (10mg), i only stopped for less than a month because the person who was supposed to get it from abroad was late, so it was just few weeks that he didn't take the zinc. I am not sure if this was the reason (which i doubt) or may be the 10mg is low dose for maintaing the zinc level. So i have to check this by examing the zinc level every now and then while i he is on Osteocare
Fortunatly his school is taking very strong precautions against the flu and they refuse to take any child with a fever and quickly put any kid in an isolating room if he gets any fever during the day until his parents come and pick him up
Thanks so much Jade for your concern and wishes :hugfriend
manal
Title: Re: Manal Will be Away for a Bit
Post by: Lena on October 10, 2009, 04:21:50 PM
Manal,
I do not know much about what happens with thal intermedias. In my Unit there are some intermedias who have started transfusion at an old age. For how much long can a thal intermedia keep his/her hb under control with hydroxyurea? And how high does it get with hydro? Does the 9-10 hb range goes for intermedias, too? because in thal major this is the normal range to keep...
Lena.
Title: Re: Manal Will be Away for a Bit
Post by: Andy Battaglia on October 10, 2009, 05:42:01 PM
Manal,
10 mg zinc daily is probably insufficient. A study currently being done at Oakland ( http://clinicaltrials.gov/ct2/show/NCT00459732 ) is using 25 mg zinc daily to assess the importance of zinc on bone health. The study includes patients 6 years old and up, so he is old enough for this dose. Raising his zinc will also keep his copper level within normal range.
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 10, 2009, 11:11:45 PM
Hi Lena,
Thal intermedia is a bit complicated cause you can not compare two patients as every case is totally different than the other. You can find intermedias who start transfusion very early in life and others may not tranfuse at all. So it is not black and white, but there are many shades of gray in dealing with intermedias.
As for my son's case, the decision of transfusion is associated with growth. Our hematologist told me that as long as his growth is within the normal range for his age, she will not need to transfuse him. She commented that his body needs have adapted to the low Hb, but this is ''as of now'' which means that this does not gurantee that the future will be the same. Therefore, continous checking and monitering is so important (can not imagine how is that very stressful on parents because you are always waiting for the unknown)
As for hydroxyurea, it is also a personal expierence of the patient because the reaction to the hydroxy differs from one person to the other. Tuning the dose is so important, also some react from the beginning of using it and others take time, that is why it is agreed that it can take up to 9 months for hydroxy to work for some patients and in others is could take only weeks.
Also the increase differs, but it was found that it can increase the hb by 2 grams which is considered very good. Some patients can react positivley to hydroxy for so long time (one of my hematologist patients has been taking hydroxy for 18 years now and married with two children) and other patients just stop reacting to it after a while as in the case of little Olivia (Katheleen's daughter) who was doing good for her for two years and then it had no significant effect on her HB
So actually there is no rule with thal intermedia, but all what you must ensure is normal growth and avoiding bone deformity
manal
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 10, 2009, 11:26:41 PM
Thanks Andy for the importat information.
So now i have to choose either to shift to the calcium, magnesium and zinc suplement Of Puritan Pride ( it has 25mg zinc) instead of using Osteocare
Or i can give the Osteocare in addition to another zinc supplement (if i can find one in the form of the syrup) I will check if this is possible or not
Right now i am correcting the defiency by using the Puritan Pride (zinc 25mg) in addition that Ahmad loves eating meat, so is this enough????????
manal
Title: Re: Manal Will be Away for a Bit
Post by: Andy Battaglia on October 10, 2009, 11:32:38 PM
Manal,
Since he is occasionally checked for his zinc level, I think you can give him the 25 mg supplement safely, especially since he is testing low. If his levels do rise higher than normal, another dosage adjustment can be made. Some advice for eating meat. Make sure he takes iron inhibitors like tea and dairy products with his meat meals.
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 10, 2009, 11:57:13 PM
I will make sure Andy, thanks so much for the advice
manal
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 11, 2009, 01:16:22 AM
Andy
I have just noticed that the puritan pride zinc which is 25mg is only found in three pills togather as the serving size is three pills a day and usually i give him one pill only and it is impossible for him to have three cause he can not swallow, he just crush them and the pill does not taste good.
So do you think i should be back to the ostecare with the 10mg in addition to the 7.5mg of zinc found in the yummi bears multivitamin or there is another alternative??? ??? ???
Title: Re: Manal Will be Away for a Bit
Post by: Andy Battaglia on October 11, 2009, 03:05:57 AM
Manal,
Can he take Osteocare, Yummi Bears and one 10 mg zinc tab daily? That should give him a sufficient quantity of zinc, along with all the other nutrients.
Title: Re: Manal Will be Away for a Bit
Post by: Lena on October 11, 2009, 05:57:58 AM
Manal,
thanks for the info, now I get the picture.
Andy,
here we take 100mg zinc per day... the adults anyway, I do not know what kids get.
Lena.
Title: Re: Manal Will be Away for a Bit
Post by: Manal on October 11, 2009, 06:06:19 AM
Andy,
Now i am searching for this zinc supplement, that would be equivlant to the 10mg. Actually i can not use the one of puritan that has calcium and magnesium because it will be too much Ca and Mg since he is taking the suffient needs from Osteocare.
Unfortunatly puritan pride does not have zinc alone suitable for children
When i find something i will let you know, thank you so much