Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: zs on January 17, 2010, 10:40:37 PM

Title: if you use desferal you use which kind? (product of which factory)
Post by: zs on January 17, 2010, 10:40:37 PM

hi all
if you use desferal you use which kind? (product of which factory)
I know 2 factory that product desferal is thaer any other?


1 novartis pharma from switzerland that product deferoxamin methansulfonic

2 valdepharm from france that product deferoxamine mesylate

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: Zaini on January 18, 2010, 04:13:08 AM

Hi ZS,

We don't use desferal anymore but when we did,we used the novartis one,infact i have never heard of that other company you are talking about,may be any other member might have heard about it.

Zaini.

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: Madhavi on January 18, 2010, 08:27:32 AM

Novartis....
Like Zaini, I havent heard about the other one....maybe Novartis has a better marketing strategy and global reach!
Madhavi

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: Lena on January 18, 2010, 09:09:21 AM

Hi ZS,

Novartis for me, too---thirty years now.

Lena.

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: nice friend on January 18, 2010, 11:21:39 AM

Hi ZS,
well , me too used n still using Novartis's Desferal (deferoxamin methansulfonic ), and  never heard about 2nd one valdepharm's (deferoxamine mesylate ) .... :) ..

Take Care
Umair

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: Laura on January 18, 2010, 12:12:43 PM

I used to use Novartis. Now I'm on Exjade but I still remember my 25 years of Desferin (that's what we called to Desferal in Spain).

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: zs on January 18, 2010, 02:12:50 PM

tanx from all for replay
we use desferal in iran yet  and there was  Novartis only first but nowaday there is onother kind that is from VALDEPHARM and 1 factory in iran order for that and named that desfonak
(http://images.google.com/imgres?imgurl=http://i19.tinypic.com/6ll5y5j.jpg&imgrefurl=http://www.thala-r.blogfa.com/86102.aspx&usg=__aA05-DQi-0_JW_G78yxn6D_kKaM=&h=1200&w=1600&sz=153&hl=en&start=3&um=1&tbnid=r6dPkIpNu07QNM:&tbnh=113&tbnw=150&prev=/images%3Fq%3Ddesfonak%26hl%3Den%26client%3Dfirefox-a%26rls%3Dorg.mozilla:en-US:official%26sa%3DN%26um%3D1)

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: nice friend on January 18, 2010, 02:54:39 PM

Hi ZS,
i used iranian desferal to many year ago .... those r much affordable price vice than Novartis's Swiss Based Desferal ....
About Desfonak :
i m aware of this name too as it is being used in my thal center :grin , but i never been interested to use that , so, i always used to manage Desferal myself, but i used Desfonak twice in the whole time when desferal wasn't available in market  ....

Umair

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: Fadd on January 18, 2010, 06:28:52 PM

Desferal.
Hearing the other name for the first time

Fouad

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: zs on January 18, 2010, 08:43:27 PM

umair desfonak isnt iranian desferal it product with france factory as I said but iranian factory ronak biopharmaceutical order that so change the name to desfonak

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: nice friend on January 19, 2010, 11:18:09 AM

ZS,
actuly there was "Farsi" written on that,  and all the instructions including name was written in "Farsi" and only a few things was in english ..... that's why i thought that's made of Iran :grin ...

Umair

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: zs on January 20, 2010, 05:07:56 PM

yes the factory (ronak )provide farsi guide for iranian user :biggrin

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: pianjy on February 06, 2010, 08:16:46 PM

Hi Laura, I´m Antonio from Badajoz. (sorry, my english worster than yours). I read it all your post, I see you by angels photos last marató.

Have you see the new comics in ALHETA WEB? We want work at english translation. Metete en la nueva web cuando quieras y me comentas que te parece.

I see Andy last year in Singapore, but I don´t reconogzide(se escribe así?) him then. Angels, Mónica and Marta go to Berlín next month.(te animas?). I use Desferal yet.

Hope see you soon.

Antonio César Cerrato
ALHETA
www.alheta.com

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: zs on May 24, 2010, 03:03:59 PM

hello all
as reply of all seems all use desferal from novartis but this days we must use second 1 valdepharm from france that product deferoxamine mesylate

Title: Re: if you use desferal you use which kind? (product of which factory)
Post by: Denise on June 06, 2010, 04:46:01 AM

We use Exjade.