Thalassemia Patients and Friends

Discussion Forums => Iron Chelation Corner => Topic started by: bucks502 on May 11, 2010, 02:40:15 PM

Title: ferriprox
Post by: bucks502 on May 11, 2010, 02:40:15 PM
hello,

I have superficial siderosis and I'm taking part of a study for effects of ferriprox. At the end of the month the study will end and so will the ferriprox. I was searching online and found some for sale in mexico. Has anyone purchased this from Mexico?
Title: Re: ferriprox
Post by: Andy Battaglia on May 11, 2010, 02:55:21 PM
I have sent an inquiry on your behalf to find out if Ferriprox is even legally available in Mexico. There may be one other possibility for getting Ferriprox in the US and I am checking into that also.
Title: Re: ferriprox
Post by: Andy Battaglia on May 11, 2010, 05:01:16 PM
Ferriprox is not available in Mexico, so if it's real Ferriprox, it is gray market and brought in from another country. I would be very suspect of it.

I am sending you some information to your email address. It may be possible for you to get Ferriprox in the US.
Title: Re: ferriprox
Post by: Rehman on June 15, 2010, 08:02:10 AM
Hello Andy

cane i take Feriprox Tablets  with Milk
Title: Re: ferriprox
Post by: WHY on June 15, 2010, 08:50:33 AM
Also Forget To Take My Feriprox tablet On Time, Anyone experienced that.

Taking 7 Tablet a day
Title: Re: ferriprox
Post by: Andy Battaglia on June 15, 2010, 03:24:32 PM
Ferriprox can be taken with food including milk.
Title: Re: ferriprox
Post by: Rehman on June 15, 2010, 04:44:30 PM
thanks a lot Andy
Title: Re: ferriprox
Post by: Rehman on June 15, 2010, 04:46:02 PM
WHY  no problem  im taking 11 tablets is a day dnt wory about that .
Title: Re: ferriprox
Post by: Ayesha on June 15, 2010, 06:44:54 PM
people using ferriprox: don't you feel nausea? I can't take more than 4-6 tablets :( I start puking..

any suggestion?
Title: Re: ferriprox
Post by: baal on June 15, 2010, 08:51:18 PM
hi

yes u are right.....

before many years when i start L1 i have the same feelings like u

and i have to stop them......

after this time (inbetwine i have to take 20 or more pills cause of

lot insufficiences) it dasnt bothert me anymore.....

its a matter of ur mind....try it again and again.....

its to imprtent to give it up for that reasen....panos
Title: Re: ferriprox
Post by: nice friend on June 17, 2010, 05:40:05 AM
@ WHY ,
i take Ferriprox 9 pills a day .. i m not good at memory but i always try my best to keep my meds on time and i rarely forget a dose ( though i did forget often to drink my tea placedneart o my Pc monitorr screen, infront of me :D , but i'm pretty regular with my meds ) ...

@ Baal,
Your nn mine Exprience is almost same ...

@ Ayesha,
when i begn to start ferriprox i faced the same probleme ... i had stomach dis-comfort , nausea and loos of apetite and a few more stomach, digesting and vomting kind of effects , so , i stopped it a few times but when i saw my ferrirtin then i decided not to stop it in any miinor side effect case.... so , i kept taking it and withini a few weeks i got used to it .. and since then i never had any side-effect to it..
when  one of my friend begn with ferriprox he had this side-efects , he asked me if i can buy remained ferriprox to him , i sugested him in light of my experience with ferriprox to keep taking ferriprox for 2-3 weeks more  and it will suit you otherwise i wiill buy it to you .. he agreed and kept taking farriprox within a few weeks he reported that he is no more feeling uncomfortable with ferrprox... now it has been more than 18 months since he's taking ferriprox and he's satisfied and comfortable with it ...
when another friend mine begn with ferriproc and   had the smae probleme i suggested himm to not stop ferriprox and it will suit you soon ,, he did and it has been more thana year since he is on Ferriprox .....
my personal opinion (its my personal opinion only ) to not stop ferriprox just bcoze of minor side-effects like nausea ... the friend of mien abt whom i wa stalking abt above in this post , at the time they asked me abt that i sugested them to not stop ferriproc bcoze of minor side-effects of it , ferriprox's benefits out weigh these minor effects .. i tolld them to carry on with it if they dont have any major side-effect like neutropenia ......

(Andy, please correct me if i'm wrong in my views for Ferriprox ... )

Best REgards
Take care
Umair