Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: eesha on May 30, 2010, 09:01:40 AM

Title: thal majors with kids
Post by: eesha on May 30, 2010, 09:01:40 AM

any thal majors out there that have kids / married /long term relationships. Please share ur story/.

Title: Re: thal majors with kids
Post by: Tedi on May 30, 2010, 11:19:24 AM

Hi, I have a girl 3years old, but i adopted her a week ago. I tried to get pregnant but I had 2 unsuccessful in vitro.
I think its not necessary to give birth so to be a mom! :wub Wish u luck whatever u decide!

Title: Re: thal majors with kids
Post by: Zaini on May 30, 2010, 02:22:06 PM

Eesha,

We have members on the forum who have kids.

Tedi,

Conratulations  :hugfriend she is adorable.

Zaini.

Title: Re: thal majors with kids
Post by: Lena on May 30, 2010, 04:25:27 PM

Congratulations Tedi,

she is so cute. May she be happy and healthy.

Lena

Title: Re: thal majors with kids
Post by: Andy Battaglia on May 30, 2010, 04:27:22 PM

 :congrats    Tedi! I'm very happy for you.

Title: Re: thal majors with kids
Post by: Tedi on May 30, 2010, 06:58:39 PM

Thank u friends, this is my girl
http://www.facebook.com/album.php?aid=2047637&id=1603314149&saved#!/album.php?aid=2047637&id=1603314149 (http://www.facebook.com/album.php?aid=2047637&id=1603314149&saved#!/album.php?aid=2047637&id=1603314149)
 :party :love :bigparty

Title: Re: thal majors with kids
Post by: WHY on June 01, 2010, 01:12:45 PM

CONGRA HAPPY TO HEARD THAT :yahoo :cheer :clap :o :woot :happyyes :sadyup :grin

Title: Re: thal majors with kids
Post by: Dori on June 03, 2010, 06:04:52 PM

Congratulations Tedi  :hugfriend
You got an adorable daughter :)
Hugs from me

I already tried to post that two days ago, weird!
Tedi your link isn't working. But she must be a sweety :)

Title: Re: thal majors with kids
Post by: Manal on June 04, 2010, 12:42:54 AM

Congratulations Tedi, she is lovely , thanks for sharing the beautiful photos :hugfriend

Manal

Title: Re: thal majors with kids
Post by: Tedi on June 05, 2010, 05:15:44 PM

Thank u all  :heartred

Title: Re: thal majors with kids
Post by: Dori on June 28, 2010, 02:33:02 PM

Nice picture!  :hugfriend

Title: Re: thal majors with kids
Post by: motheroftwins on August 11, 2010, 08:36:37 PM

I have twin daughters that are turning 12 next month!!!!

I have Thalassemia Major and gave birth them to them.

Title: Re: thal majors with kids
Post by: motheroftwins on August 11, 2010, 08:46:23 PM

I am new to responding to these threads, so bare with me. 

In finishing my story.....I have been married for 14 years.  I have Thalassemia major and receive 1 transfusion every 2 weeks, and take Exjade daily.  I am 41 years old and have twin identical daughters that are turning 12 years old next month.  They were born 12 weeks early, but are very happy and healthy now.  I live in the Midwest where there are not many doctors who are famililar with Thal Major.   I sort of take my own care into my own hands.  I rarely see my Dr., and just schedule myself for transfusions every 2 weeks.  My girls are healthy and are only carriers of the Thal trait.  They do not have it.  I hope this is helpful.

Title: Re: thal majors with kids
Post by: Zaini on August 13, 2010, 09:05:57 AM

Hello Mother of twins,

Welcome on the forum :welcomewagon  :hugfriend i am so glad you joined our forum,people like you are an inspiration for us,we parents of thal kids look up to people like you.

Welcome once again :) .

Zaini.

Title: Re: thal majors with kids
Post by: Sharmin on August 13, 2010, 05:00:50 PM

Mother of twins,

I am so happy to hear your story.  You and your girls are beautiful:)  My son will also be turning 12 years next month so he is the same age as your girls.  I am a thal minor and he is a thal major.  I am glad to hear that you are taking good care of yourself despite doctor's lack of knowledge in your area. 

All the best,

Sharmin

Title: Re: thal majors with kids
Post by: motheroftwins on August 14, 2010, 04:24:16 PM

Thank you all for the welcome.  I need to get on here more and share stories.   

Title: Re: thal majors with kids
Post by: Andy Battaglia on August 14, 2010, 05:11:10 PM

Hi motheroftwins,

I am a bit concerned about the level of care you are receiving. Are you getting an annual evaluation that includes a T2* scan of the heart? This is extremely important at your age to make sure your heart iron load is under control. If you need any advice or help with getting a proper annual evaluation, please contact Eileen at Cooley's. She will help direct you to a center where this can be done, possibly Chicago. With these annual evaluations, you can be sure that you will watch your children grow and thrive. I cannot overstate the importance of the annual evaluation.

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org

Title: Re: thal majors with kids
Post by: Maako on August 30, 2010, 06:59:29 AM

hi motheroftwins,

ure twins look beautiful :)

Title: Re: thal majors with kids
Post by: jia on October 03, 2010, 03:38:07 AM

My thalassemia son just turned 7. Very happy child. I hope he will get married and have kids of his own someday.

Title: Re: thal majors with kids
Post by: pleasance on October 27, 2010, 01:26:23 PM

hey dear ,,,,
              so nicew to see u and hear about u ........we r so motivated and feel so good seeing u with ur 2 daughters........i have a daughter n she is a thal major and is 7 yr old.......really worried abiout her as hse is very much concerned about her looks her height and her health.......she wants to ook like her mama......no matter what...........we jst pray for her ...seeing u so strong we are impressed and i showed ur pic to my daughter and her comments were all these 3 women are so beautiful!!!!!!!!!!!

Title: Re: thal majors with kids
Post by: nat on April 21, 2011, 07:24:12 AM

A beautiful family, indeed.

Nice to know your story, motheroftwins :)