Thalassemia Patients and Friends

Discussion Forums => Working Towards a Cure => Topic started by: mrtariqkhan on July 14, 2010, 02:07:55 PM

Title: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: mrtariqkhan on July 14, 2010, 02:07:55 PM
http://www.sciencedaily.com/releases/2010/07/100713171559.htm .   Hello I found this article today, Is this the news we all have been waiting for??

"Italian scientists pioneering a new gene transfer treatment for the blood disorder β-thalassemia have successfully completed preclinical trials, claiming they can correct the lack of beta-globin (ß-globin) in patients' blood cells which causes the disease. The research, published in EMBO Molecular Medicine, reveals how gene therapy may represent a safe alternative to current cures that are limited to a minority of patients."
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: 7assan on July 14, 2010, 07:18:48 PM
Yeah this wht we was waiting 4 it . and thnx 4 the great news
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: Sharmin on July 15, 2010, 03:20:45 AM
Thank you for sharing.  This is great news. The more vectors, methods etc studied the better it is for us. 

Sharmin
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: WHY on July 15, 2010, 11:51:12 AM
That's good, looking towards it of course. Good Luck
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: 7assan on July 16, 2010, 01:48:41 PM
Im waiting to see more reply no this topic ....... ! :rolleyes
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: Andy Battaglia on July 16, 2010, 02:39:15 PM
My reply on this is it's a shame we have so many groups competing with each other, rather than working together for a cure. It's all about how much money these groups believe they can make from the process. I wish curing thals was the main focus, but I do not believe that is so for many of the people involved in this research around the world.

I wish them all success, but it would make far more sense if patients were put first and a cure was more important than cash.
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: 7assan on July 19, 2010, 09:54:58 AM

A completely new method for producing an image of individual DNA molecules' genetic make-up has been developed by researchers in Sweden and Denmark. The results are published in the latest issue of the journal Proceedings of the National Academy of Sciences of the USA (PNAS).

"The technique is quicker, easier and cheaper than existing methods. Therefore we hope that it can be used in hospitals in the future. Mapping a person's genome, or genetic make-up, is currently an expensive and complicated process", explains Jonas Tegenfeldt, researcher in Solid State Physics at Lund University and one of the senior authors of the article.

According to the researchers, the technique could be used to find out more easily whether someone is carrying a genetic predisposition to certain diseases.

The hope is that it could be used to diagnose and characterise diseases that are caused by significant changes and mutations in the genetic make-up, known as structural variations, that are associated with, for example, cancer, autism and several hereditary diseases.

In addition, the method could be of use in criminal investigations, because it might speed up identification of evidence.

http://www.news-medical.net/news/20100719/Researchers-develop-new-method-for-producing-image-of-individual-DNA-molecules-genetic-make-up.aspx
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: 7assan on July 19, 2010, 09:59:17 AM
Hey anyone have any update on gene plz share ...........?
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: Sagar on July 21, 2010, 10:13:14 AM
its good and remarkable news and breakthrough for all the thalassemia patients and families. But can anyone tell me how much time it will take this treatment to come out to save the lives.
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: 7assan on July 21, 2010, 03:21:25 PM
Dear Sager Nice quiz but There is no answer ........?
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: Zaini on July 22, 2010, 07:01:34 AM
I don't think there is any time line for that,we are all waiting as anxiously as you are,but its in trials right now and all we can do is hope for the best.

Zaini.
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: Madhavi on July 22, 2010, 04:54:15 PM
....FINGERS CROSSED...!
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: love and prayers on July 26, 2010, 12:38:53 PM
Asa,
i read the artcile, it said all preclinical trials are complete. when will the clinical trials start?
how do i keep a check on their work?
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: namitha on July 28, 2010, 10:17:35 AM
I have been following this for quite sometime. Does anyone know when they are calling for the clinical trials and how do we contact them?

Regards,
Namitha
Title: Re: Gene Therapy Breakthrough Heralds Treatment for Beta-Thalassemia
Post by: 7assan on July 28, 2010, 06:04:10 PM
Yeah i want to contat them but i dont know how .My bro is wating for gene therapy sinc 2 years go . ther most be some contact email or phon number or website for gene therapy .all the best for gene therapy .gene therapy may represent a safe alternative to current cures that are limited to a minority of patients. so why they are not start gene therapy on patients ...they most start soon as posibel ..?