Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: Rehman on August 17, 2010, 08:28:17 AM

Title: Reaction during Red Blood Transfuison
Post by: Rehman on August 17, 2010, 08:28:17 AM

Dear Friends



i have Always Reaction During Blood Transfusion .

and pleas tell the timing duration one blood bag.

i m suffering with Thalassemia Major.

Thanks

Title: Re: Reaction during Red Blood Transfuison
Post by: cherieann on August 19, 2010, 08:21:45 AM

hi Redman.
Most people receiving blood where I go have 1 unit of blood over 2 hours.
For me it is one and a half hours for 1 unit, only because I have a port and I seem to tolerate it well.
I had one reaction 5 years ago due to the ongoing transfusions.
Now I have a premed which they administer through vein before blood and the antihistemine I take at home before going in.
Ask your doctor if you are concerned.
This treatment has seen no more reactions to the blood.

Title: Re: Reaction during Red Blood Transfuison
Post by: Bostonian_04 on August 19, 2010, 01:59:39 PM

Hi Rahman,
Have you tried taking antihystamin (eg. Benadryl) before Tx? For my daughter, it worked so far. ALso, 1st 15 mns of Tx is slow then the rate is 5 times the weight (in Kg.).

Title: Re: Reaction during Red Blood Transfuison
Post by: Rehman on August 19, 2010, 04:02:14 PM

Hi cherieann and Bostonian_04

thanks a lot for you are reply .

 i will discus with my doctor then i will start it .

Title: Re: Reaction during Red Blood Transfuison
Post by: cherieann on August 20, 2010, 06:54:33 AM

 :hugfriend

Title: Re: Reaction during Red Blood Transfuison
Post by: Maako on August 30, 2010, 06:58:03 AM

Hi rehman,

Using leucocyte filters also greatly reduce the reactions in transfusions, as it removes white blood cells from the blood pack.. to use filter is highly recommended by a lot of doctors and you could ask your doctor if it is available :)

Title: Re: Reaction during Red Blood Transfuison
Post by: Rehman on August 30, 2010, 08:31:19 AM

Thanks a lot Mako for you are reply.

i know about leuckocyte filter butt here is not availebal .

im living in pakistan

Title: Re: Reaction during Red Blood Transfuison
Post by: nice friend on September 06, 2010, 12:57:09 AM

Rehman,
leucocyte filters.... hmmmmm , i think its available in Pakistan as far i remember i saw a kid having transfussion with that ( in ganga-ram hopsital , Lahore) , that is expensive ( as far i remember in 2007 its price was Rs.2500)...  my father wanted to put me on that but i refused bcoze i never had any serious  reaction to blood....2nd reason of refusing was ,,  that slow down the transfusion speed as well, the transfussion using leucocyte filter take a little more time then the normal blood transfussion (if m not wrong) the kid i saw there was 14 years old and  abt to cry to waste remained blood  as it already has been 7 hours to him and his blood was still 25% remaindered to go ..... as u know, i never b agree to stay there for that much long time ,, coze  i dont like to stay there for that much 4 hours r enough .... lolzzz

Best Regards
Take Care
Umair

Title: Re: Reaction during Red Blood Transfuison
Post by: Zaini on September 06, 2010, 07:41:33 AM

Leukocyte filters are available in Pakistan,we use them with Lil Z's transfusions all the time.And yeah they are a bit costly.

Title: Re: Reaction during Red Blood Transfuison
Post by: Rehman on September 06, 2010, 10:58:06 AM

Thanks a lot Umair brother for you are reply.

Dear Zaini cane you tell me where is available in Pakistan .

Title: Re: Reaction during Red Blood Transfuison
Post by: Zaini on September 07, 2010, 03:42:12 PM

I don't personally buy them,where do you go for transfusion,because our hospital provides them for us.

Title: Re: Reaction during Red Blood Transfuison
Post by: Rehman on September 08, 2010, 05:51:52 PM

zaini what is you are hospetal name .

Title: Re: Reaction during Red Blood Transfuison
Post by: Zaini on September 09, 2010, 07:28:17 AM

Aga Khan University Hospital Karachi.

Title: Re: Reaction during Red Blood Transfuison
Post by: eesha on September 13, 2010, 06:01:58 PM

Rehman

I have a lot of reaction in transfusion. I do have leukacyte depleted blood, but that is normal practice in UK.

Also i used to get bad rash and temperature, so i used to have IV piriton half hour before transfusion, it knocks u out! but it really works, if u cant get IV pririton then take tablets, but i recomend IV.

Also i have stopped piriton now as i dont get rash, but i used to have blood 1 1/2-2 hours but i always get high temperature, so now they give me one unit over 3 hours and that is better for me, so maybe you should try 3 hours, apparently the slower the better, but you must finish the unit before 4 hours.

Hope that helps

Title: Re: Reaction during Red Blood Transfuison
Post by: Rehman on September 25, 2010, 07:01:11 PM

dear eshan

Thanks a lot for you are reply .

I will try my best.