Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: Joe_H on May 04, 2011, 03:40:37 PM

Title: Blood transfusion Period
Post by: Joe_H on May 04, 2011, 03:40:37 PM

Hi,

how are you all, I hope that every thing is great with you

I'm a 22 yrs Old , Thal Major, wwight 60 Kg

I have blood transfusion every two week or more (14-18 day) and I have 350 ml Full Blood because there is no only washed RBC where I live,

and the HB level is always  (9.8 - 11 ) ,

I want to go on trip for six weeks and I'm thinking to take more blood like taking 3 bags not in the same day but day after day before the
trip day , so I don't need Blood transfusion for a six weeks , I've read that some one his whight 59 kg and he takes 3 bags of blood each one 300 ml every
six weeks,

there is formula said that every one could have 20 ml per 1 Kg and that's mean I can take 60*20=1200 ml means 3 bags of 400 ml

I want your opinion about that is it possible and what's the complications ?

I know I've asked many time about this thing but I really need your help and this is important to me

many thanks

Joe

Title: Re: Blood transfusion Period
Post by: Zaini on May 05, 2011, 03:03:13 AM

Hi Joe,

You can take 16ml per kg blood,so i guess you can take about 3 bags,but thats the formula for packed red cells,i don't know if transfusing whole blood changes anything.Did you discuss it with your doctor?

Zaini.

Title: Re: Blood transfusion Period
Post by: Dori on May 05, 2011, 10:16:20 AM

Hi Joe,
Where do you live? Maybe we can help you better or more with knowing that.
I have no clue about blood formulas as we do not use it here in the Netherlands.
Btw, happy travelling!

Title: Re: Blood transfusion Period
Post by: Joe_H on May 05, 2011, 11:30:01 AM

Zaini , thank you for the replay, I think I can mange RBC but I didn't discuss this with my doctor but I need your opinion if you try this ?

thank you

Dear Dori , thank you for the replay I live in IRAQ and forget about the formula if I take more blood can I hold for six weeks ?

many thanks

Title: Re: Blood transfusion Period
Post by: Shama on May 20, 2011, 04:10:44 PM

Hey Joe
Firstly, Happy journey and happy stay.
Actually I am new on this forum and I am so happy to read your profile detail. My brother is 26 years old and beta-thalassemia major. His height is 5.5 or 5.6 but his weight is 45kgs. He is not putting on weight since last 4-5 yeaars. He gains 1-2 kgs but as he falls sick it comes back to 45kg. Can you suggest something as how to put on weight. Also, his Hb is never more than 8.5-9.0.
Please suggest some solutions
Thank you and GOD BLESS U

Title: Re: Blood transfusion Period
Post by: Dori on June 25, 2011, 10:47:14 PM

Joe, are you travelling now?
Shama, has someone answered your question? What I did to put on eat was eating a lot of pasta. I was able to add a few kilos and over the years I have added more weight. It sound a bit silly but all the pasta did work.