Thalassemia Patients and Friends

Discussion Forums => The Spotlight => Topic started by: Algol on September 10, 2011, 10:20:22 AM

Title: Hello all
Post by: Algol on September 10, 2011, 10:20:22 AM

Hi everyone,

it's been a while I was reading your forum and
I finally decided to join you.

Just to introduce myself, my name is Roberto and I've got beta Thalassaemia.
I am patient at the Whittington Hospital in north London.

Hope to chat with you for long and share my personal experience.

Cheers,
Roberto.

Title: Re: Hello all
Post by: Dori on September 10, 2011, 02:19:51 PM

Hi Roberto,

Is doctor Shah by chance your doctor? My parents met her at a conference in the Netherlands. I believe you are treated at a good hospital.  How are you doing overal? Regular transfusions and what kind of chelation and vitamins?

Welcome on board!

Title: Re: Hello all
Post by: Algol on September 10, 2011, 03:44:58 PM

Hi Dori,

thanks for your welcome! Yes, she is my doctor there and
yes the hospital is very good indeed.

I get blood every ~20 days and Exjade (1.75gr per die).
I also get 3 tablets of Adcal D3 per day (calcium + D3).

Everything is going alright.

Title: Re: Hello all
Post by: Andy Battaglia on September 10, 2011, 07:44:41 PM

Hi Roberto,

Is nurse Emma still attending to thals at Whittington?

Title: Re: Hello all
Post by: Algol on September 10, 2011, 09:13:01 PM

Quote from: Andy on September 10, 2011, 07:44:41 PM

Hi Roberto,

Is nurse Emma still attending to thals at Whittington?

Yes, along with Niamh, who is there most of the time.
Plus there are some other nurses helping a lot,
Sandy above all.

Title: Re: Hello all
Post by: Laura on September 11, 2011, 07:59:55 AM

Welcome Roberto!!!

Title: Re: Hello all
Post by: Dori on October 16, 2011, 11:53:07 AM

How are you doing Roberto? I really like dr. Shah :)

Title: Re: Hello all
Post by: Algol on October 23, 2011, 12:01:57 AM

Just noticed this now... I'm really busy at uni. lately!  :-\

Is there anybody from London or nearby, around here?

Title: Re: Hello all
Post by: Dori on December 03, 2011, 12:38:16 PM

Hi Roberto,

I know UKTS organise events for people with thal. The ones I know from London are not on online forums.
What do you study or teach?

Title: Re: Hello all
Post by: laiba mukhtar on December 04, 2011, 10:27:34 AM

Hi algol ! welcome to the forum :)  :welcome2
keep posting :)
Take care
Laiba mukhtar

Title: Re: Hello all
Post by: laiba mukhtar on December 04, 2011, 10:31:13 AM

Quote from: Dori on October 16, 2011, 11:53:07 AM

How are you doing Roberto? I really like dr. Shah :)

yes dore u r right ... she is so nice doctor and i also met her as she is from Pakistan and came in last national conference of Pakistan as Tif delegate and it was really nice to meet her :)