Thalassemia Patients and Friends

Discussion Forums => Living with Thalassemia => Topic started by: lukaperfect on December 23, 2011, 12:41:21 PM

Title: Information about "protected class"
Post by: lukaperfect on December 23, 2011, 12:41:21 PM

Hello all
I wanted to ask you ... in the state where you live ... the government recognizes thalassemia patients for a disability pension?
I live in Italy and here the state recognizes a disability of 90% for patients with thalassemia major and a contribution of 260 € per month ...

Where do you live? The government will pay a disability pension and how much? You are facilitated in finding a job as a "protected class"?

Thanks to all friends  :wink

Title: Re: Information about "protected class"
Post by: lukaperfect on December 26, 2011, 02:31:28 AM

Hey guys...22 view and no answer?? ???

Title: Re: Information about "protected class"
Post by: lukaperfect on December 29, 2011, 03:10:50 PM

I don't understand why people don't answer...

Title: Re: Information about "protected class"
Post by: Andy Battaglia on December 29, 2011, 05:06:49 PM

I think most members are not familiar with the concept of "protected class", disability in the US, so you have not received any replies. Europeans are very fortunate to have a good health care system that provides for their needs. In most countries, this is just a dream, as treatment is costly if available. The concept of being protected does not exist in most of the thalassemia regions of the world.

Title: Re: Information about "protected class"
Post by: joyce on December 30, 2011, 12:10:23 AM

Hi..

In my country, thallasemia patients is not classified as a disability person. They were just ordinary patient- no benefits at all.
in fact, they still have to pay every charges the hospital charge on them.


Joyce!





 

Title: Re: Information about "protected class"
Post by: CatherineM on December 30, 2011, 03:41:37 AM

In Australia parents of thal majors can get a carers allowance.

All my daughers bloods test so far have been free.  There was also no charge for chest x-ray wh
ich was performed in hospital.

Title: Re: Information about "protected class"
Post by: lukaperfect on December 30, 2011, 12:43:59 PM

Oh this is very sad...

Who live in another European country can tell me theire experience?

Title: Re: Information about "protected class"
Post by: joyce on December 31, 2011, 02:49:49 AM

So I think.... you are very lucky compare to us here..

Title: Re: Information about "protected class"
Post by: lukaperfect on December 31, 2011, 12:42:02 PM

Many things do not work in Italy, but the health care system is really great
I have a right to 4 packs of 500 EXJADE, 1 pack of 250 and 125 every 20 days for free
Cinema,museum,public transport and more all for free
Monthly allowance for disability of 260€ month

I can not really complain, but I think in countries like France or Germany there are still more rights

Title: Re: Information about "protected class"
Post by: baal on January 02, 2012, 02:29:43 AM

hi luka

i have seen ur post some weeks before but i have not the nerv to
answere earlier because off some personaly problems.
anyway now i here and can give u some input.

i lived in germany and yes, i think it is for a thal major the best
place to be.  i become a disability pension every month of 800 €.
i get my pension since i was 20 years old. now i am 45.......
they pays the costs for my treatment witch is not cheap....
4-5 bloodbags (about 3.000€),3 pack exjade (about 9.500€)
8 ferriprox (2.300€) revatio (1000€) about a dozen more (500€)
and since 2 years i take siklos too.  (2000€).
and this is every months costs.
with the rest of the treatment (x-rays and controlls and sourgerys
it is about 350.000€ in one year.

i hope i ve ansered ur question...    panos

Title: Re: Information about "protected class"
Post by: Dori on January 04, 2012, 10:45:17 PM

I will try to explain the Dutch system later, ok?

Title: Re: Information about "protected class"
Post by: Bobby on January 05, 2012, 11:27:44 PM

As a child I recieved disability benefits because of my Thal and poor health. It took a long time and a number of lawyers to get approved. I recieved free health care and monthly payments. As soon as I was able to go to college and work a job it was reduced based on my rate of pay until it was completely stopped. Fortunately by that time I had gotten health insurance thru my job.