Thalassemia Patients and Friends

Discussion Forums => Iron Chelation Corner => Topic started by: surendra on April 17, 2012, 07:11:46 AM

Title: regular test for thal major
Post by: surendra on April 17, 2012, 07:11:46 AM

hello
we are giving asunra from last month to our baby and her serum ferritin came down from 1229 to 978. what tests should be done for liver and heart iron concentration??? what is the standard age for this???
she is 26 months old only.

Title: Re: regular test for thal major
Post by: surendra on April 17, 2012, 04:29:45 PM

waiting for reply

Title: Re: regular test for thal major
Post by: Andy Battaglia on April 18, 2012, 12:33:56 AM

Because scans take some time to do, the age when to begin can vary according to the child, because it requires lying still, although Ferriscan can be done in an MRI machine in as little as 10 minutes. When the ferritin is kept in check, it is not as necessary to scan, so it can be put off. The advice will vary, but generally, scans should begin at between 4-6 years old. If a child has had a high ferritin level, then scanning might be recommended earlier.

It would be nice to hear from parents in the US, Canada, Europe and Asia on what they are told is the age to begin liver and heart scans.

Title: Re: regular test for thal major
Post by: surendra on April 18, 2012, 03:05:21 AM

thanks Andy.
Her ferritin is under control  so heart and liver scan should be postponed.