Thalassemia Patients and Friends
Discussion Forums => Iron Chelation Corner => Topic started by: nwalsh528 on May 10, 2012, 12:42:18 AM
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When my son was adopted from China at age 3 in 2010, his first ferriscan was 17.4 (severe iron overload).
10 months later, after 8 months on 500 mg Exjade, his ferriscan was 4.1 (normal range for transfusion dependent patients)
one year later...(two weeks ago) ferriscan results 2.8 (normal range for a non transfused person!!)
We are meeting Friday to go over other bloodwork results to make a decision about chelation.
I believe we will be stopping Exjade for 6 months, or lowering it to 125 mg for 12 months.
We are ecstatic at the results! Never in a million years would we have ever imagined that we would be in this place right now!
Nicole
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Hello. :wink
Could you please state levels in terms of mg/dl like 1000, 4000, etc?
Thanks.
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Hello. :wink
Could you please state levels in terms of mg/dl like 1000, 4000, etc?
Thanks.
Those numbers are from the FDA approved Ferriscan MRI. I'm looking at the report. The results are in mg/g of dry liver tissue.
June 2010 at age 3 he was 17.4 mg/g dry liver tissue. Started 500 mg Exjade.
April 2011 at age 4 he was 4.1 mg/g dry liver tissue. This was in the normal/goal range of 3-7 mg/g dry liver tissue for transfusion depedent patients.
April 2012 at age 5 he was 2.8 mg/g dry liver tissue which is within the normal range for NON TRANSFUSION DEPENDENT people. (He is transfused every 21 days.)
Nicole