Thalassemia Patients and Friends
Discussion Forums => Thalassemia Major => Topic started by: pmeet on August 21, 2012, 12:56:34 PM
-
I am planning to relocate from India to US for better treatment for my daughter EVI (thal major)
I understood that blood transfusion related cost will be covered by insurance.
I need to understand chelation drugs and cost related to test while planning to sibling are covered too?
1. HLA matching serology followed by minor antigen(HLA match)
2. CVS(chorionic villus sampling) for prenatal diagnosis of thalassemia
Can someone also let me know approximate costs of these tests. I will be relocating to Redmond area.
-
Just wanted to ask if moving to USA is that necessary? Now better care can be taken in India and I am doing so as well, all the facilities a Thal Major needs are possible in my city itself. Also consider migrating to USA will increase cost of other general things as well.
-
Pmeet,
if you have insurance, these tests will be covered by insurance as well. based on type of insurance, you may have some type of co-pay...
-
i will have insurance.
Are you sure these will be covered there?
I was under impression that things are covered if they are considered 'necessary' .
These might not fall under those as these are to make sure sibling hla matches.
-
Just wanted to ask if moving to USA is that necessary? Now better care can be taken in India and I am doing so as well, all the facilities a Thal Major needs are possible in my city itself. Also consider migrating to USA will increase cost of other general things as well.
not necessary. India too has good facilities but I dont think they can be compared to developed countries .
-
not necessary. India too has good facilities but I dont think they can be compared to developed countries .
There are well chelated patients in various parts of areas as well. That's a vague excuse, but yes, USA of course, is superior. Anyways, I wish you luck. :)
-
Can someone also comment about the approximate cost of the tests
-
Pmeet, the cost generally vary by the place you go....but, if you know what insurance company you will be using, you can go to their website and get details on what will be covered by the insurance. Also, if you have a Thal Major child, they will cover CVS and HLA...I know few parents w/ thal major kids and for them these tests were covered by insurance. Sorry, I don't know the exact cost of these tests.
-
Hi PMeet,
I can provide some details based on my experience here in US:
- cost of blood work for B-thal mutation detection for me and my wife was around $1500. Paid by insurance. We just had to get an additional letter from the genetic counselor stating that we both are thal minors and hence it is important to detect the mutations for subsequent CVS/Amniocentesis.
- cost of Amniocentesis including prenatal diagnosis was around $5000. Covered by insurance.
I don't know the cost of HLA match.
-
The key is having insurance. If it is provided by an employer, there are usually only co-pays to pay, but if not provided, it has to be purchased and it is quite costly. My family plan costs over $1200/month.
-
Wow, the prices are very high.
-
The key is having insurance. If it is provided by an employer, there are usually only co-pays to pay, but if not provided, it has to be purchased and it is quite costly. My family plan costs over $1200/month.
I will have insurance, but not too sure if the tests will be covered there or not :(