Thalassemia Patients and Friends

Discussion Forums => Thalassemia-related Issues => Topic started by: Angel's Mom on August 22, 2012, 04:34:33 AM

Title: what routine tests needed- pls advise
Post by: Angel's Mom on August 22, 2012, 04:34:33 AM

Hi all,

My daughter is 3 yrs old and every 4 weeks she needs BT. B4 BT, CBC report is done and every 3 months ferritin is checked. Pls advise what all other tests she needs and at what interval - at her age.

Awaiting revert. Thanks.

Reema

Title: Re: what routine tests needed- pls advise
Post by: Pratik on August 22, 2012, 05:25:14 AM

Quote from: Rima on August 22, 2012, 04:34:33 AM

Hi all,

My daughter is 3 yrs old and every 4 weeks she needs BT. B4 BT, CBC report is done and every 3 months ferritin is checked. Pls advise what all other tests she needs and at what interval - at her age.

Awaiting revert. Thanks.

Reema

CBC, SGPT & SGOT (creatine/kidney/liver tests). Also get her Fasting Blood Sugar (FBS - for diabetes) and HIV Aids get done every SIX months. Also do get Vitamin D report done at least once an year (for now as she's only 3 years old). This should suffice it, however, Andy may give you more advice. :)

Regards,

-P.

Title: Re: what routine tests needed- pls advise
Post by: Dharmesh on August 22, 2012, 10:42:41 AM

Hearing and Vision Tests need to be done when starting Asunra or Desferal and one in a year thereafter.

Title: Re: what routine tests needed- pls advise
Post by: Andy Battaglia on August 23, 2012, 11:38:15 PM

Which chelator is she using?

Title: Re: what routine tests needed- pls advise
Post by: Pratik on August 24, 2012, 05:44:12 AM

Quote from: Andy on August 23, 2012, 11:38:15 PM

Which chelator is she using?

Asunra.

Title: Re: what routine tests needed- pls advise
Post by: Angel's Mom on August 27, 2012, 07:42:24 AM

Dear Andy Sir,

pls advise. My 3 yr old daughter - weight - 12 kg, currently as per doc's advise giving her 200mg per day of Asunra and folic acid syrup 2.5 ml twice a day.

AS per other member's advice will ask doc to increase the dose of asunra during her next BT.

pls advise what all other supplements and tests needed for her at this age.

Thanks
Rima

Title: Re: what routine tests needed- pls advise
Post by: Bostonian_04 on August 27, 2012, 07:09:53 PM

My daughter is 6 yrs old and we give her age appropriate multivitamin gummies and Vit D drops and try to make sure she eats a balanced diet. So far Oakland children's or Boston children's did not recommend anything additional. so, you can try these two for a start...

Title: Re: what routine tests needed- pls advise
Post by: Andy Battaglia on August 29, 2012, 12:41:42 AM

Rima,

Her Asunra dose should be higher. She should be on a dose about double what she is currently taking. I suggest 200 mg twice daily for a total of 400. It is quite advantageous to the glands and organs if the iron load is kept as low as possible. A ferritin of over 2000 needs to be lowered, and this is so important when children are growing, so that their hormones are less affected. Antioxidants like natural vitamin E are also important for protecting the glands.