Thalassemia Patients and Friends

Discussion Forums => Curing Thalassemia. Bone Marrow & Cord Blood Transplant => Topic started by: Alia on September 01, 2012, 11:07:06 AM

Title: Bone Marrow Transplant
Post by: Alia on September 01, 2012, 11:07:06 AM

Hi To All of you.

Last week sara was seen by specialist who pretty much deal with all the transpalnt in the country. I asked if i was allowed to have baby trough  IVF , which will fix sara after using the baby's bone marrow. They said no to both. They said even if i have baby the matches sara, they would not do the transplant. They said they dont want to take the risk. They said she is older and something might happend to her.

My question is what if she becomes very sick and she needs urgent transpant? The doctors would not even consider the IVF.
Iam really worried ,plz can any one give any suggestion.
Alia

Title: Re: Bone Marrow Transplant
Post by: CamisMom on September 03, 2012, 01:53:23 AM

I'm curious how old Sara is? 

Title: Re: Bone Marrow Transplant
Post by: Pratik on September 03, 2012, 06:42:30 AM

I've same question as Camis's.

Normally, 3-8 years max is the ideal age for BMT. If shes older than that, I can certainly understand the concerns of doctors.

-P.

Title: Re: Bone Marrow Transplant
Post by: Alia on September 03, 2012, 12:14:39 PM

Thanks for your reply
She will be more then 8 years old by the time she is ready for transplant.
Alia

Title: Re: Bone Marrow Transplant
Post by: Andy Battaglia on September 04, 2012, 01:04:33 AM

http://www.curethalassemia.org/faq/

Quote

How old a thalassemia major patient can be to be successfully cured with a BMT?
Thalassemic patients with a HLA identical donor has be transplanted as soon as possible,but the results in adult patients( age >17 years old) are not so brilliant.
Adult thalassemia patients are higher risk patients for transplant-related toxicity due to an advanced phase of disease and have a cure rate of 62% with current treatment protocol.
BMT is not the best therapeutic option for adult patients.

 

For questions not answered at the FAQ, you can contact Dr Sodani at http://www.curethalassemia.org/contact/