Thalassemia Patients and Friends

Miscellaneous Forums => Recommended Doctors Who Are Knowledgable About Thalassemia => Topic started by: red on November 03, 2012, 04:46:23 AM

Title: any thal dr.s in D.C??
Post by: red on November 03, 2012, 04:46:23 AM

Hi, does anyone know any doctors in the D.C area, Maryland or Virginia, that are knowledgable about Thalassemia Major? Thanks!!

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on November 03, 2012, 05:46:04 PM

Hi Red<

I have the name  Dr. Craig Kessler at Georgetown University Hospital. 202-444-8676.

Title: Re: any thal dr.s in D.C??
Post by: red on November 08, 2012, 12:35:44 AM

Hi Andy! Thanks so much for the reply! I actually had contacted Dr. Kessler to get an appointment, but unfortunately they told me he's no longer taking any new patients. I explained to them the ordeal I had with seeing doctors who were not too knowledgable about Thalassemia and how that has hindered my care. That didnt seem to make a difference at all, and they referred me to another colleague of his.
Dont know what I can do further.  :dunno

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on November 08, 2012, 02:39:30 AM

I'm checking on the Facebook thal support group to see if I can get any other names.

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on November 08, 2012, 03:17:44 AM

Also, is there a specific area that would be more convenient for you?

Title: Re: any thal dr.s in D.C??
Post by: zahra on June 23, 2015, 01:31:10 AM

Hi ,
Did you find any doctor in this area? I plan to visit family in this area in the summer. Knowing a good doctor would help. Also could the same doctor run a search for a bone marrow/ cord blood match or are transplant  doctors separate from paediatric hematologist?
Zahra

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on June 23, 2015, 01:36:15 AM

Zahra,

I know some patients in the DC area. I'll see if I can get some contact info.

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on June 23, 2015, 02:10:51 AM

The list Eugenio put together from sources, including our list of treatment centers, has these two centers listed for DC.

Children’s National Medical Center –Washington,DC
George Washington University Hospital –Washington,DC

Johns Hopkins in Baltimore is another possibility. I have been told that for children, Children’s National Medical Center is recommended.

http://www.thalassemiapatientsandfriends.com/index.php/board,9.0.html
http://www.curethalassemia.org/thalpedia/thalassemia-treatment-centers/

Title: Re: any thal dr.s in D.C??
Post by: zahra on June 23, 2015, 07:40:57 PM

Thank you Andy. You continue to amaze.
I took my son to Childrens National last time I visited but the Dr we saw has left. Is it possible your contact can recommend another doctor @ John Hopkins or Children's National?

Zahra

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on June 24, 2015, 01:52:16 AM

I got a bit more info. The Peds doctor I know at Georgetown is Dr. Corina Gonzalez.  I can send you the email address if you need it.
And they do BMT at Johns Hopkins, but I don't have the contact info.

Title: Re: any thal dr.s in D.C??
Post by: Andy Battaglia on June 24, 2015, 09:51:07 PM

I also received these two names from Johns Hopkins, but they couldn't verify that both doctors are still there. Dr. Kato or Dr. Cassella.