Thalassemia Patients and Friends

Discussion Forums => The Spotlight => Topic started by: Nicole on June 14, 2013, 08:44:18 PM

Title: Hi fellow thalassemics
Post by: Nicole on June 14, 2013, 08:44:18 PM

Hi everyone iam new on here, i was very happy to find this website as it would be great to talk to others who have my condition! I have never met anyone else who has thalassemia major. Iam 31 years old, i go for a transfusion every 4 weeks and my ferritin is 600. Iam on dessferal which i take 4 times a week. Anyone in similar situation feel free to msg :)

Title: Re: Hi fellow thalassemics
Post by: Rashmi on June 15, 2013, 06:03:40 AM

Hi Nicole,

Welcome. Here we are all brothers, sisters and friends. You will get a lot of support. Feel free to put up your questions and feelings.

Love and luck

Title: Re: Hi fellow thalassemics
Post by: Dharmesh on June 16, 2013, 07:39:55 AM

Hello Nicole,

Welcome to the group :)

I am also thal major , taking desferal and defrijet

This place is very nice for thals.. keep posting

Title: Re: Hi fellow thalassemics
Post by: Pratik on June 16, 2013, 09:54:15 AM

Hi Nicole,

Thalpal welcomes you! :)

Feel free you share your feelings and ask questions.

Best,

-P.

Title: Re: Hi fellow thalassemics
Post by: Nicole on June 16, 2013, 01:14:26 PM

Aww thanks everyone :) this is great, nice to know i can come and chat to you guys, sometimes people just dont get what its like haveing a medical condition like ours.

Title: Re: Hi fellow thalassemics
Post by: Andy Battaglia on June 16, 2013, 03:43:10 PM

Hi Nicole,

Your ferritin level is good. Have you also had liver and heart scans to measure iron loading in your organs?

Title: Re: Hi fellow thalassemics
Post by: Nicole on June 16, 2013, 04:43:56 PM

Hi Andy, yes i have MRI scans every couple of years.  There is no iron in my heart (touch wood) and just a very small amount in my liver which my consultant said not to worry about as its not a lot.  I have always taken my medication from a very young age, something which i want to tell other thal's to also do as it pays off in the long run.

Title: Re: Hi fellow thalassemics
Post by: sydneygirl on September 11, 2013, 12:48:43 PM

Hi Nicole,welcome to the group.its such great support to talk to others in same situation! What country are you from?

Title: Re: Hi fellow thalassemics
Post by: shrikant on September 16, 2013, 01:18:14 PM

Hi Nicole,
Welcome to thalpal. It is very nice to know about you ,tell us something more about  you ?

All the best

Shrikant