Thalassemia Patients and Friends

Discussion Forums => Thalassemia Intermedia => Topic started by: kitkat_2727 on August 23, 2013, 06:46:43 PM

Title: Naturopath or Specialist for Thal.?
Post by: kitkat_2727 on August 23, 2013, 06:46:43 PM

Hi All,

Hope everyone doing well. I am looking for a naturopath who can complement the treatment I receive from my hematologist. Has anyone tried any vitamins, wheat grass, etc. to help with increasing hb and energy levels?

Or if someone has a specialist who provides alternative treatments (preferably in the Greater Toronto Area but any other location is ok) please let me know.

Thanks in advance for reading this, and your assistance.

Title: Re: Naturopath or Specialist for Thal.?
Post by: Bobby on August 23, 2013, 08:24:12 PM

I take multi-vitamins along with individual Folic acid and Vitamin E on a daily basis. I also exercise 3-4 days a week. Mostly weights. Minimal cardio because I found anything over a couple miles will completly drain me. My Hb is usually around 8.9 to 9.1. I haven't found anything that can consistently keep it higher than that.

Once I was taking N.O Xplode on a regular basis for workout energy and my Hb was 10.1 at a Dr's appt, but it only happened once. Despite not being able to raise it, I do believe the exercise keeps me energized. I have no issues going the whole day.

If you find something that works please let me know. I was actually going to ask my Dr about oxygen therapy because I believe my oxygen saturation drops during sleep and causes me to be a very irregular sleeper. I know a lot of Thals have this issue with sleep.

GOOD LUCK!!!

Oh. You should post this in the FaceBook group also to increase responses. :)

Title: Re: Naturopath or Specialist for Thal.?
Post by: Andy Battaglia on August 25, 2013, 09:28:20 PM

Some will respond to wheatgrass with a higher Hb, but even if the Hb doesn't rise, wheatgrass has many positive properties, so it is recommended. B complex, folic acid and magnesium can also help with energy levels, as will vitamin D if deficient.

Title: Re: Naturopath or Specialist for Thal.?
Post by: Andy Battaglia on August 25, 2013, 09:33:15 PM

I am administrator at two Facebook thal groups.
https://www.facebook.com/groups/78504283219/
https://www.facebook.com/groups/thalsupport/

Because it's Facebook, they do get quite active at times.

Title: Re: Naturopath or Specialist for Thal.?
Post by: kitkat_2727 on July 31, 2014, 03:11:10 AM

Thank you Andy and Bobby!

Great suggestions about vitamin supplements. I need to add the magnesium and zinc to my daily intake.

I would like to exercise (several times a week) as I do not as of now. I am sure it would help even if minimal increase in energy. My challenge is that with work and kids, I barely have enough energy to make it through the day as it is.

How will I gain strength and stamina to begin an exercise regimen? I do like to walk, but winter is harsh where I live and it is best for me to get to the gym, if only I could somehow!