Thalassemia Patients and Friends

Discussion Forums => The Spotlight => Topic started by: dani75 on November 09, 2006, 04:40:16 PM

Title: Hello all ...
Post by: dani75 on November 09, 2006, 04:40:16 PM

hello thalaassemia friends and patients...
i'd like to chat with thalassemia patient from all over the world...
i'm thalassemia major also from germany, 31 y. girl... married with 2 childnren ...

Title: Re: Hello all ...
Post by: Christine Mary on November 09, 2006, 06:35:58 PM

Welcome Dani!  :flowers

You will LOVE this sight!! It has been very helful for me since discovering my child is Thal Major.(she is almost 3 months).
Can you shed some light on your expieriences being a major and all? How was your life growing up? I see you trasfuse every 3 weeks...what is your chelation schedule like? I am sorry to pry, but I can use any advice you have for me regarding my little one for the future. :biggrin 

Thanks,

Christine

Title: Re: Hello all ...
Post by: Lyanne on November 10, 2006, 05:41:10 AM

Hey Dani,
  welcome!!! just like what christine said you will  LOVE this site, hope you could share and learn from this community . Does your kids have thalassemia too?

Title: Re: Hello all ...
Post by: dani75 on November 10, 2006, 07:28:27 AM

no...my kids don't have thalassemia major ...

Title: Re: Hello all ...
Post by: askari on August 10, 2007, 07:42:36 PM

hy hi nice to hear frm u .i am new member name is bis frm pakistan.24 and am dental surgeon n suferring frm the ssame disease.want to knw allot people n its good way of knowing