Thalassemia Patients and Friends
Discussion Forums => Thalassemia Intermedia => Topic started by: Lokkhi maa on March 14, 2015, 08:37:35 AM
-
Dear all,
Please share your experiences and benefit from wheatgrass.How it is working and helpful for a thal patient?When it is applicable?
Please note,
My baby is 17 months 15 days old,weight 13 kg and needs transfusion after every 7 weeks.Already she taken 9 transfusion.Iron overload treatment not started yet.
Will it be helpful for my baby? Please share...
-
There has been a lot of talk about wheatgrass recently. We have known for some time that it helps raise the hemoglobin level in some patients by stimulating fetal hemoglobin production, but more recently we have heard many questions about its value as a chelator, so I emailed Dr Chris Reynolds who has long studied the effects of wheatgrass and has long promoted wheatgrass as having great value for thalassemics. This is his reply.
"As for wheatgrass being an iron chelator, I have no doubt about it. I think I may have tried to get the message across some years ago about wheatgrass and beta thal, but it was basically ignored. In fact I have no doubt had any thalassemic patient taken up on regular daily wheatgrass shots, many, if not most, would by now have a better quality of life, have better control over ferritin and iron levels, and possibly be requiring less medication. Here are a couple of articles that back up what I’ve been saying:
http://drwheatgrass.com/BlogRetrieve.aspx…
Wheatgrass reduces transfusion requirements and ferritin levels in thalassemia intermedia
The role of iron chelation activity of wheat grass juice in blood transfusion requirement of intermediate thalassaemia. Mukhopadhyay. S., Mukhopadhyay. A., Gupta. P., Kar. M., Ghosh. A. 2007 Am. Soc. Hematol. Ann
2.
http://drwheatgrass.com/BlogRetrieve.aspx…
Wheatgrass as a natural iron chelator in myelodysplastic syndrome
The role of iron chelation activity of wheat grass juice in patients with myelodysplastic syndrome. Mukhopadhyay. S., Basak. J., Kar. M., Mandal. S., Mukhopadhyay. A. 2009. J. Clin. Oncology 2009:7012
Here is another article (there are several others) showing increased blood element production by bone marrow in cancer patients treated with wheatgrass.
http://drwheatgrass.com/BlogRetrieve.aspx…
There is also Dr. Marwaha’s ground-breaking article of reduced transfusion requirements in children taking wheatgrass juice daily.
http://drwheatgrass.com/…/post/Thalassemia_major_wheatgrass/
There is also considerable evidence now that wheatgrass has a potent effect on gene expression (which I have been saying for years) and, more specifically, on cellular proteasomes, in a positive way. Cereal grasses are also known to increase growth hormone output from the pituitary, which is most likely the root cause of increased haemoglobin and HbF. Unfortunately, Marwaha didn't measure for this in his patients, but I am almost certain he would have found an increase.
I hope this is of some use to you and your followers."
-from Thalpal FB group
-
Dear HANUMANT,
Thanks for your sharing.But I want to take decision.So need help and advice...
-
Dear Andy,
What do you suggest about taking the wheatgrass...
-
Thank you for sharing. I tried giving it to my daughter in different ways but she couldn't get past the smell and taste.
-
Hi,
Wheatgrass is available in many forms. For little kids wheatgrass super shots from Dr Wheatgrass work well.
This is b/c they only need to take half a teaspoon and because it's taste is good. Its my child's favorite medicine because he likes the taste. You can order online.
My child is doing well on transfusions and exjade and ferritin is well controlled but it isn't easy to say what helps with what as I am giving most supplements recommended here and homeopathic medicines also.
Zahra
-
Hello Zahra,
Thanks for your reply..Is wheatgrass will helpful for my 17 months old baby?Is it increase hb level?Exjade and wheat grass both are not available in Bangladesh.How can I get both of them?
Thanks
-
Hi,
Another Bangladeshi thalpal has told me exjade is available there under the name asunra.
Please check for it. Wheatgrass super shots are available online in many places. I ordered from grass factor last time. You can contact them at info@grassfactor.com for details on how to pay and how they will deliver.
-
Dear Zahra,
Thanks for your reply and information..
-
Hello Zahra,
Thank you so much... I have got Asunra in my country...Thanks a lot...
-
Hi Zahra
Asunra and wheatgrass work is same?
My wife hemoglobin below. She is bearing thal beta. Transfusion need after every 5-6 months.
Can I give her wwheatgrass?
-
Hi,
No Asunra is the same as exjade, an oral iron chelator used to remove excess iron caused by the blood transfusions.A doctor should prescribe it and supervise it's use with dose depending on how much the iron overload is.
Wheatgrass juice is the juice of wheat in its early stages of growth. More like a food. You can use this on your own. Has several health benefits including increased energy and there is some research showing it decreases transfusion requirements in some patients. Search it up for more.
Zahra
-
Hello Zahra,
Before two weeks I have done the following 2 test of my baby and got the below results.But not test serum ferritin.Doctor said her serum iron is normal.So will I test her serum ferritin now? She already taken 9 transfusion.Her weight is 13 kg.
TIBC: 49.00 mcmol/L
Serum Iron : 25 mcmol/L
Thanks
-
Thank you verry much Zara
-
I have collected wheatgrass powder. From Sunday I will start 1 tea spoon daily.Do you know what time will be the great for taking this? Empty stomach or Full stomach?
-
I don't think the timing makes any difference since wheatgrass is a food product. The powder can be mixed with liquid and taken. Adding it to a nutritious smoothie is a good way to get kids to take it.
-
Dear Andy,
Have you any information about the availability of wheatgrass powder in Bangladesh?
Thanks
-
I do not. I would suggest contacting the Foundation and seeing if they can advise you.
Organization Bangladesh Thalassemia Foundation
Address: House # 36, Road # 27
Dhanmondi, Dhaka - 1209
Bangladesh
TelePhone: 88 02 8150111
Fax: 88 02 8127397
E-Mail: info@thals.org
Web Site: http://www.thals.org
-
Dear Andy,
Thanks for your information. I am growing wheatgrass now at my home and they are now 3 days old .But how much juice I will give my 18 months baby?I mean how much ml ? Her weight is now 12 kg.
Thanks
-
15-20 ml should be enough at her age.
-
Thank you Sir. 15-20 ml only wheat grass juice I mean before mix the liquid?Which liquids are best for mix with it?
Thanks
-
Try mixing it with juice or in a smoothie.
-
Dear Andy,
If I mix carrot ,apple or honey with the wheatgrass juice then its working capacity will be remain same?After taking it in empty stomach then when I will give her breakfast?
Best Regards
-
Dear Andy,
I want to buy wheatgrass Tablet 500 mg ( 250 Tablets) Pines International Free Shipping from
http://www.puritan.com/pines-international-brand-0100/wheat-grass-500-mg-034338?scid=30425#tab-2
Which contains :
Calories 15
Calories Fat 0
Total Fat 0 g
Cholesterol 0 g 0%
Sodium 0 mg (1) 0%
Total Carbohydrate 2 g 0%
Dietary Fiber 1 g
Sugars 0 g
Protein 1 g
Vitamin A 1500 IU 30%
Vitamin C 7 mg 10%
Calcium 15 mg 2%
Iron 1 mg 4%
Folic Acid 35 mcg 8%
Potassium 103 mg 2%
1 tablet is 500 mg so what will be quantity for my 18 months 20 days baby?When the best time to consume it ?
Pls advice
-
Dear all,
Is it a reliable site for purchase www.puritan.com ? Please advice...
-
Yes, Puritan is reliable. I have used them for years. I would suggest getting wheatgrass powder, rather than tabs unless the child can swallow tablets. The dose would be 500-1000 mg daily.
-
Dear Friends
How you are taking wheatgrass powder ?
Your doctor instructed you taking it in what way ?
As I am taking it 1 tablespoon ( about 1.7 gram) mixed with 1 glass of warm water in empty stomach or half empty stomach 3 times per day.
is it mandatory to taking it in empty stomach?
-
No, it doesn't have to be taken on an empty stomach.
-
No, it doesn't have to be taken on an empty stomach.
Our doctor has advised to take it first thing in the morning empty stomach. ???
-
Thank you Sir .
I take WG mix with warm water. I observed that WG is more readily soluble with warm water than cold water. I don't know too much about it. I take it mix with warm water but When I travelled outside home it is little difficult to take WG mix with warm water .
Is WG workable to same extent either it is taken with warm / cold (normal room temperature ) water ?
-
My baby take WG tablet mix with normal water after 4 hrs of lunch.. :)
-
Wheatgrass is food. It doesn't matter how or when you take it. Warm and cold water make no difference. It all gets real warm in the stomach.
-
Hello Andy Sir
When I search about the nutritional fact of wheatgrass I am little bit confused about the nutritional value of WG. As many websites claims it has most of the minerals humans needed , 17 amino acids and most of the vitamins.
There are such a link below
nutritiondata.self.com/facts/custom/900675/2
I think the sites explain it something larger than the original fact.
Would you give a reliable link from which I can get the idea of nutritional data of WG .
-
Every wheatgrass product should have a nutritional label, such as you can see at this link, http://smile.amazon.com/Amazing-Grass-Organic-Serving-Container/dp/B004LW8AH8/ref=sr_1_7?ie=UTF8&qid=1450846269&sr=8-7&keywords=wheatgrass
But, we have to remember that the most important values of wheatgrass in relation to thalassemia are not shown on the label. Wheatgrass is a powerful antioxidant, and it has a property that is called wheatgrass factor, but it is not understood how it works, but it is shown to have much value, including an ability to raise fetal hemoglobin levels in many thal patients.
-
Hello Abhishek2,
Try WG tablet..Its easy to take. :)
-
Hallo Lokkhi ma
I lives in a village and only powder form is available in my nearest district town . So I'll go to kolkata to search WG tablets . In future I'll try this.
WG powder is something effective for me but I am worried about tablets. Are tablets are also effective same extent ? As WG is a new product we don't know how it works.
How much days taken WG to your baby ?
Are you observe something different ?
-
Dear Abhishek2,
I buy wheatgrass Tablet 500 mg ( 250 Tablets) of Pines International from Puritan's Pride on last July 2016.
http://www.puritan.com/pines-international-brand-0100/wheat-grass-500-mg-034338?scid=30425#tab-2
Which contains :
Calories 15
Calories Fat 0
Total Fat 0 g
Cholesterol 0 g 0%
Sodium 0 mg (1) 0%
Total Carbohydrate 2 g 0%
Dietary Fiber 1 g
Sugars 0 g
Protein 1 g
Vitamin A 1500 IU 30%
Vitamin C 7 mg 10%
Calcium 15 mg 2%
Iron 1 mg 4%
Folic Acid 35 mcg 8%
Potassium 103 mg 2%
As per Andy's advice she is taking daily 1 tablet since 5 months.She never feels tiredness even when her HB is 7 and always her appetite is very good.Recently there is no change after or before transfusion.
All day engage with play and she is very energetic also which was increased after taking WG.First time when she start taking WG then it was difficult to take her bed to sleep.She was not interested to sleep.But now its adjusted and she is fine.... :smiley
-
Dear Lokkhi ma
Thank you for sharing the information and experience about WG.
I am happy to hear your daughter doing quite well after taking WG.
-
Hallo Lokkhi ma
I lives in a village and only powder form is available in my nearest district town . So I'll go to kolkata to search WG tablets . In future I'll try this.
WG powder is something effective for me but I am worried about tablets. Are tablets are also effective same extent ? As WG is a new product we don't know how it works.
How much days taken WG to your baby ?
Are you observe something different ?
Hi Abhishek,
If you want i can send WG tablets (Sarvayush brand) to you by Courier/ Post.
I am using the same since long.
Let me know
Dharmesh
-
Please, wheatgrass is food and can be taken anytime of day. I hope no one ever asks me this again, as I have answered it over 1000 times.
-
Sorry Sir . I am very sorry .
-
No worries.
-
Dear Andy,
According to your help I found the product.
Please see the below link and give me your valuable opinion.
https://gallery.foreverliving.com/gallery/FLP/download/products/2013_Product_Manual/068_Forever_Fields_of_Greens_ENG.pdf
-
Please, wheatgrass is food and can be taken anytime of day. I hope no one ever asks me this again, as I have answered it over 1000 times.
Brainy Idea :idea
Put this line as a Signature Andy :P
-
Dear HANUMANTAASHRIT,
Have you seen the above link? This tablet contains Barley Grass,wheat grass,Alfalfa and Cayenne.
I have no idea except wheatgrass.So I need suggestion from Andy.
He helped me to find out this product which is available in Bangladesh but I was unknown..
-
Lokkhi,
The product is good, but if you can get wheatgrass in a larger dose, it would be superior. Please contact Dr Rajpal. He said he could have it delivered by courier from India. drrajpalsingh11@gmail.com
If the price is reasonable, I would choose that over the other.
-
Hello Andy,
Thanks a lot.
I will contact with Dr Rajpal.But you know my problem.
-
Hi
The mentioned product is good but it is in low dosage. Means more tabs to be taken consequently more pills and higher budget.
As i told earlier that Sarvaayus wheatgrass tab 500mg can be sent to Bangladesh. It also can be sent to US
-
Dear HANUMANTAASHRIT,
Please send me details of price and sending procedure.
I need the product immediately bcoz my babies wheatgrass from Puritan will be finish this month...
-
Dear Lokhi Maa,
Please tell me the quantity of Wheatgrass tablets needed. Each tablet of Sarvaayush contain 500mg wheatgrass and 1 bottle contain 120 tabs.
Sending in low qty will be difficult as it increase the cost shipping etc.
-
Dear HANUMANTAASHRIT,
Need 500 mg 250 or 500 tablet.
-
Unfortunately,
The minimum qty which can be sent there is 60 bottles of 500 mg.
-
60 bottles !!
How much qty in 1 bottle ?
-
It is containing 120 tablets of 500mg in each bottle.
-
That's mean 7200 tablet !!
Sorry I am not a trader.
Thanks.
Please don't play with emotion
-
That's mean 7200 tablet !!
Sorry I am not a trader.
Thanks.
Please don't play with emotion
NO OPINION SHOULD BE FORMED WITHOUT KNOWING THE BACKGROUND OF ANYONE IT CAN DEFINATELY LEAD TO AN INCORRECT OPINION.
I had not told you that you buy in the quantity and sell it there.
About the product,
It is the best and the cheapest product available in the world, even it can be sent to US (It means there is no doubt in quality)
You just tell me at what price you are currently getting Wheat grass tabs?
Then i will tell you the price of the WG tabs product.
-
Last time I buy 250 tablet (500 mg) from Puritan @ $ 21.47 (total cost with freight).
-
In Indian Rupees, it comes to aprx Rs 6 per tablet while the one i mentioned it cost Rs 2 per tab aprox.
The problem is that i am not aware about shipping procedure for parcel to be sent to outside India.
-
Sorry I am not a trader.
Please don't play with emotion
Why are you become rude and use offensive words. Please never post about someone without knowing him properly.
All thals have their own sufferings and emotional issues. Here all we are friends and we need each other . So please try to use pleasant words that would not be hurt someone.
Sorry for become rude myself.
-
Why are you become rude and use offensive words. Please never post about someone without knowing him properly.
All thals have their own sufferings and emotional issues. Here all we are friends and we need each other . So please try to use pleasant words that would not be hurt someone.
Sorry for become rude myself.
Thanks Abyaya Jyoty for understanding a thal. Means a lot to me :)
-
Many of our members are from different places, English is not everyone's first language. Please trust that everyone is here to learn and gain information for their own treatment or for the treatment of their loved ones. Our beloved members also go out of their way to reach out to one another and assist one another whenever possible. I trust that our members can continue to respectfully interact, learn from each other and offer one another support. Let's also continue to give each other the benefit of the doubt when there appears to be a misunderstanding.
:grouphug
-
Thanks Sharmin.
Need wheatgrass for a baby.But how suggest for 7200 tablets?
Dear Abyaya Jyoty,
All thals have their own sufferings and emotional issues.
Its true.So please respect your own words.
-
I haven't pushed you to buy 7200 tabs. It was just the information that was provided to you directly from the supplier.
You still had not marked my word.
I had clearly written that -
UNFORTUNATELY the minimum qty (as stated by supplier) is 60 bottles.
And i understand no one can buy that much qty in bulk.
But your reaction was excessive which was not tolerable.
Even i was planning to send you wg directly to you in qty desired by you, but now i am not willing to do so as your words killed my passion to help thals.
Here , i rest my case.
-
Dear HANUMANTAASHRIT,
I am also not interested.
Thanks for all of your efforts...
-
I always advise people that for many members, English is not their primary language, so always give the benefit of the doubt when communicating with each other.
-
Hello Andy,
I need your suggestion about the best and reliable brand of wheat grass tablet of India.
Please help me.
-
Try submitting an inquiry at this link. I was given this link by a company in India that sells wheatgrass. http://www.naturaltherapyindia.com/classified-listing.htm?action_search=search&seachFor=products.htm&keyword=wheatgrass&submit=Search
-
Thanks Andy..
-
Here is another link I was sent. They do deliver from India. https://www.auroville.com/aurospirul-wheatgrass-tablets-450u-p-3191.html
-
Hello Andy,
Thanks a lot.Recently we have purchased some medicines from India by our relative who is now in India.So I also interested for wheatgrass to purchase.As we given earlier to our baby wheatgrass of Pines for that my husband interested on that product but I am searching the best as per your sending link... :)
-
Try submitting an inquiry at this link. I was given this link by a company in India that sells wheatgrass. http://www.naturaltherapyindia.com/classified-listing.htm?action_search=search&seachFor=products.htm&keyword=wheatgrass&submit=Search
Hallo Andy Sir, The above link of wheatgrass powder given by you is available in my area and it also not too much costly.
But I want to know about the quality of the product.
Please tell me. .
-
They make a quality wheatgrass product.
-
Thank you Sir for replying.
I can't understand properly.
Is this a good quality WG product ?
Please reply.
-
Yes, it is.
-
Thank you so much Sir.
Sorry for repeating the queries .