Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: KaterinaFilipp on October 04, 2015, 05:42:12 PM

Title: WHAT TO DO WHEN ALL 3 CHELATORS DONT WORK FOR YOU? FERRIPROX ,EXJADE AND DESFERA
Post by: KaterinaFilipp on October 04, 2015, 05:42:12 PM

HI EVERYONE I HAVE A THAL PAL SHE IS 28 YRS OLD

SHE USE TO TAKE FERRIPROX THEN WHITE CELLS DROPPED SO THEY STOPPED
SHE USE TO TAKE DESFERAL BUT NOW SHE GETS A FEVER EVEN WITH LOWER DOSE
SHE TOOK EXJADE AND THAT STARTED GIVVING LIVER TESTS RESULTS PROBLEMATIC

HAS ANYONE HAD THIS? AND IF YES WHAT COULD SHE DO?

THANK YOU

Title: Re: WHAT TO DO WHEN ALL 3 CHELATORS DONT WORK FOR YOU? FERRIPROX ,EXJADE AND DESFERA
Post by: Andy Battaglia on October 04, 2015, 05:51:04 PM

I would suggest that she try Exjade again at a lower dose and that she takes milk thistle capsules, as well. Many patients have been able to control their liver values by taking milk thistle herb. It is definitely worth trying.

Title: Re: WHAT TO DO WHEN ALL 3 CHELATORS DONT WORK FOR YOU? FERRIPROX ,EXJADE AND DESFERA
Post by: KaterinaFilipp on October 04, 2015, 06:07:02 PM

ok ty once again Andy

Title: Re: WHAT TO DO WHEN ALL 3 CHELATORS DONT WORK FOR YOU? FERRIPROX ,EXJADE AND DESFERA
Post by: Andy Battaglia on October 04, 2015, 06:11:49 PM

I would also suggest splitting the dose and taking twice a day, so not as much Exjade is in the system at one time.